Hi all - newbie checking in!

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glabers
Regular Member


Date Joined Nov 2008
Total Posts : 31
   Posted 11/24/2008 7:12 PM (GMT -6)   
Greetings everybody;  I found this place yesterday morning while searching some RRP side-effect buzzwords (shrinkage wink ).  Read lots of stuff and found this place to be amazingly informative.   I wish I found it months ago to simply know more.   I've relied entirely on my amazing wife who did EVERYTHING for me from getting tested to fixing the problem.  Without her, I'd be useless to myself; likely just hide from the truth; bury my head in the sand and wait to buy-it.
 
My profile numbers tell my brief story.   It's done for now; had the surgery, just had the catheter removed 5 days ago days ago (my God, was I happy to get that awful contraption out of me), and now I wait to completely heal.   I'm doing ok in the incontinance dept, only need one pad a day.  I basically spot a bit before and after each pee pee session, but am able to last the night without getting up to pee for the most part.  The 1st 2 or 3 nights after the cath removal, I was getting up 3 times a night.   Kegel, kegel, kegel!  They're hard to reember to do.  I'm starting to use my cell phone's alarm.
 
I now find myself concentrating on dealing with the imminent side effects of a RP; i.e. ED, shrinkage & incontinence.   I'm expecting a prescription of cialis in the mail any day.  I'm reading alot about a pump as a supplement to the ED meds.  Is that recommended by most DRs, or should it be requested?
 
Anywho; just wanted to jump in and introduce myself.
 
Thanks,
Dan


Diagnosed:  8/24/08, age-47
Father died of prostate cancer at age 72
PSA 1.5 early 2007, 4.5 mid 2008, all remedies tried & reduced to only 3.2, uh oh.
Biop - 2 positives of 20 samples
Gleason - 3+3
RRP - 11/13/08 via Da Vinci by Dr. David Samadi, Mt. Sinai Hosp. NY
Post op biopsy - 75% of samples positive for cancer, Post op Gleason 3+4
4 lymph Nodes tested, all negative
Catheter in for 1 week, using 1 pad a day. 
 
 
 
 
 

Post Edited (glabers) : 11/24/2008 6:44:10 PM (GMT-7)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 11/24/2008 7:36 PM (GMT -6)   
Welcome Dan,

Looks like you're already on the way to a very good outcome! Thank goodness you wisely chose treatment over waiting any longer. On the pump, kinda dealers choice. You can wait a bit and see
or get a prescription for a pump. The oral meds probably do as much for younger men as both combined when both nerves have been spared. Good luck to you.

swim
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 11/24/2008 8:31 PM (GMT -6)   

Hi Dan,

Welcome to the club that no one wants to be a member of.  Sorry you're here, but glad to have you.  This is the only site I will go to for advice and treatment option opinions.  Everyone here has been, or is going through, this process of rrecovery. 

 

On the pump business.  They can be pricey, but as Swim said, you're young and may not need it with the ED meds.  So with the meds first and if they don't wuite make it...then talk to the doc about the pump.  My urologist's practice,which has 15 Drs. , has negotiated with the insurance companies to try and make it a part of re-hab. if necessary.  I'm in a group of 40 guinea pigs that they will question as to results, satisfaction, ease of use,etc.  You may check with your DR. to see if he, or his group, can do anything about this.

Until then , hang in there, enjoy life, and don't eat too much turkey.

Happy Thanksgiving! tongue

Bob


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 11/24/2008 8:42 PM (GMT -6)   
You are still very close to your operation. Give it time and
hopefully all will be just fine.
    1. Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Open Surgery. Northeast Georgia Medical Center, Gainesville Ga. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible (less than four months post op) with the assistance of Cialis.  Post Op Biopsy : No malignant cells in lymph node. Gleason 3=4=7. Tumor on both lobes. Urethral margins/apex free of neoplasia. Right and left seminal vesicles free of neoplasia. No invasion of prostatic capsule of the resection margins are noted by the tumor. Tumor occupies 10 to15% of the prostate gland. Path staging T2c, NO, MX- Group staging II.  Focal areas of perineural invasion by tumor are noted. 80% natural erections and full erections with 10mg Cialis. 9/22/08-Took 10mg Cialis on Monday night, had very usable full hard erection at night, the next morning, and the following Thursday morning, 60 hours after original dose !! Orgasm quality Excellent.!!!!! I am pleased with the progress so far. Married to same wonderful woman for 39 years. She is still beautiful and sexy as ever. A great help in my recovery !!:


nemo57
Regular Member


Date Joined May 2008
Total Posts : 43
   Posted 11/25/2008 10:32 AM (GMT -6)   
Glad to hear you are doing well. Keep up the good work. Thing will work out with time.
New Jersey
Age 51
Psa 0.9
Biospy 1 core positive
Gleason 3+3-6
Surgery date Aug.11, 2008 at Monmouth Medicial Center
Robotic Surgery By Dr. Lanteri And Dr. Esposito
Both nerve bundles saved. Margins clear.
Gleason score stayed at 3+3-6. Cancer contained to prostate.
1-2 pads a day. No problems at night.
ED 25mg viagra at night. Usable erections 1 day after catheter was removed.
First PSA Oct 2008 <0.1


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 11/25/2008 7:10 PM (GMT -6)   
You must be the other half of the pad and picture story (great). From everything I have read you young guys do very well in the ED department. You are very early but things will change soon - if you had the nerve sparing variety you will probably regain yourself completely. The shrinkage thing is a little freaky at first. I remember thinking that I would have to start squatting. It was like willy got pulled back into his shell. Well, don't get excited that will last for a few weeks, but soon things down south will be back as before. He won't stay like that! I suppose it has something to do with the reconnection after removal, the swelling, and the fact that things have not settled into place.

I do wish you a happy Thanksgiving.

RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008
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