Just diagnosed 11-11-08 and I am preparing to cross the bridge with my Da Vinci Surgery on 12-3-08

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Ivory63
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 12/1/2008 9:01 PM (GMT -6)   

I was just diagnosed with PC on 11-11-08 which proved to be the most frightening day of my life.  I am 64 years old and my father having had prostate cancer.  My PSA was 3.3 and was just done last month.  There were 14 cores taken on my biopsy resulting in 7 samples with a Gleason score of 7, two with a 6, and 5 benign.  There was also one mid core sample with a focal perineaural invasion noted.

 

My doctor recommended that it would be in my best interest to treat the disease within the next 30 days.  The two options I considered were the seeds and the Da Vinci surgery which I ultimately chose.  I recognize the risks with both procedures but my wife who is a hospital administrator and a therapist by degree, and I felt the surgery was the best solution for me.  My Urologist and Surgeon feel that the disease is contained but of course no one knows until they go inside and then get the pathology information.

 

On the night before the eve of my surgery I of course am suffering a case of nerves, but at least I will begin my first step in dealing with this dastardly disease.  I am also curious about what I will feel like after the surgery and my recovery time.  I have just read some postings on what it was like for some folks and it is informative.  Thank you all for your comments and advice and realziggy your idea of a few drinks at night was helpful, and thank you califguy for your calls and emails.


cvc
Regular Member


Date Joined Jun 2008
Total Posts : 440
   Posted 12/1/2008 9:24 PM (GMT -6)   

Ivory good luck im sure it will all work out fine !  Isn't a PSA of 3.3 for 64 yrs old not really that out of line ?? Were there other things that caused the biopsy ??

 

 You picked a good site and from what I have read a good surgery to have, again good luck.... yeah


marang keru
Regular Member


Date Joined Dec 2007
Total Posts : 21
   Posted 12/1/2008 9:29 PM (GMT -6)   

Hey Ivory,

December 3rd. is my one-year anniversary of my daVinci surgery.  I can hardly believe it’s been a year!  These surgeons trained on the daVinci equipment are experts. Relax; you will be in good hands (well, actually, in good robotic hands).  All shall be well!  My results were outstanding.

From New Jersey,


Age - 57
PSA - July7, 2007 - 4.87
Confirming biopsy - August 30, 2007
Gleason scores of 6 (3+3) and 7 (3+4)
DaVinci surgery December 3, 2007 - Robert Wood Johnston Hospital, New Jersey
 
Cathether removed December 10, 2007
No incontinence after Day 2, December 12, 2007
Fully functioning sexual activity Day 2 after cath removal, December 12, 2007
 
Post-op pathology report confirmed Gleason of 7 (3+4), 30% involved by tumor, no positive margins.
 
Follow-up blood work March, June and Sept 2008 all "undetectable thus far!
 
 


Ivory63
New Member


Date Joined Nov 2008
Total Posts : 13
   Posted 12/1/2008 9:32 PM (GMT -6)   
Yes PSA of 3.3 is or perhaps was a resonable PSA for my age, but since I had a family history of it they suggested I get a biosy and thank good I did. I asked the urologist what would have happened if I want until my next phsical and he told me "You don't want to know".

Post Edited (Ivory63) : 12/2/2008 4:47:23 PM (GMT-7)


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/1/2008 9:57 PM (GMT -6)   
Hello Ivory....Good luck and best wishes. I wish that we had done what you are doing....but you cant look back. Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 12/2/2008 8:26 AM (GMT -6)   
I understand your anxiousness - I remember..but, believe me it is really no big deal. It will be over before you know it, and if you are like most of us you will have little pain. If you do, they will morphine you up so you will be just fine.

The surgery, other than the anticipation, was amazingly uneventful. The people who handled me do this everyday. They were gracious and professional, and the whole thing seemed to go smooth and quickly - you'll see. On the other side you will be happy to be alive and start the healing process. I know when I was done (which I didn't even realize at first - I was thinking when are they going to do the surgery?) they wheeled me into my room, and here came my family. I have five kids and 6 grand kids. Before long it was like a party going on. Keep your chin up. Blessings.

RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008

Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 12/2/2008 10:21 AM (GMT -6)   
For me, too, the surgical procedure was uneventful - I don't remember a thing. The after-effects are thoroughly discussed here in other discussions and you'll want to be prepared for what lies ahead. Best wishes for a successful procedure and happy life here on out.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 12/2/2008 10:58 AM (GMT -6)   
this is gonna be a peice of cake, you watch and see no one is more anxious than i and the whole thing was much less eventful than i imagined it the day you get out of the hospital is wonderful and its not bad ,if its any consolation i traveled for mine and didnt go home for a week , was in a hotel for a week instead no big deal .then got cath removed and flew home youll see were all her for ya ,i was on this site from my laptop in the hotel and everyone was here for me answering questions and whatnot  your gonna be fine HONEST ...................................dirt

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


SurfingSpouse
Regular Member


Date Joined Oct 2008
Total Posts : 23
   Posted 12/2/2008 2:26 PM (GMT -6)   
Your nervousness is understandable. While I do not have a prostate and will never say, "I know what you're going through," I did see and feel the nervousness in my husband right before his surgery. In fact, he went out for a ride on his motorcycle on the day before his surgery and I swore he wouldn't come back. When he came home, he admitted that he thought about not coming back. The whole idea of the cancer and the surgery was getting to him.

But now here we are, a week and a day removed from the surgery. The catheter is out. The incisions from the Da Vinci procedure are healing. There is still some pain, but the cancer is gone. Yes, there are now other issues to be dealt with, but the most difficult part is behind him. I think he was most worried about the surgery.

Good luck!
Husband's biopsy: 10/3/08
Husband's diagnosis: 10/10/08
Husband's age at time of diagnosis: 54
PSA: 5.0
Gleason: 3+4
Clinical stage at time of diagnosis: T1c
DRE: No nodules
CT and bone scans: Negative

Surgery: DaVinci robotic on 11/24
Gleason: 3+3
Margins: Clear
25% of prostate involved
Incontinence issues: Surprisingly few
ED: Still working on that


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 12/2/2008 5:05 PM (GMT -6)   
IVORY63, you'll do great. You'll be on the other side of this before you know it. Good luck on a speedy recovery. Your biggest worry tomorrow will be "why can't I break wind".  smilewinkgrin
Age 50
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 12/2/2008 5:34 PM (GMT -6)   
Hey Ivory,

Tomorrow it will all be over and we will be here to greet you to the "other side". Hang in there...

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Finished 4 cycles of chemo on 11/7/08.
First CT scan on 12/2/08 - in remission!!!
"Patience is essential, attitude is everything."


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/2/2008 11:28 PM (GMT -6)   
Ivory,

Everyone will meet you on the other side of the bridge. Thoughts and prayers for a quick recovery.

Swim
 


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 206
   Posted 12/3/2008 6:56 PM (GMT -6)   

Hi Keru,

Glad to see some of us dont have much issues with side effects and i am sure in time many will recover well, you shuld consider yourself among the lucky ones to be able to return to normalicy (almost) so soon after surgery....

Great going .

Good Luck!!!

marang keru said...

Hey Ivory,

December 3rd. is my one-year anniversary of my daVinci surgery.  I can hardly believe it’s been a year!  These surgeons trained on the daVinci equipment are experts. Relax; you will be in good hands (well, actually, in good robotic hands).  All shall be well!  My results were outstanding.

From New Jersey,



April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6
June 13 2007 Nerve Sparing open RP / Dr. Christopher Johnson at St. Francis Hospital NY.
4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence not an issue, no pads used from the get go.
1 month PSA next to not detected

ED is a longer battle:
1 month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response.
3 months and 6 months PSA not detected
ED 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.
April 2008 : 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.
1 year visit on June 13 2008 woohoooo!!!

UPDATE 1 YAER FOLLOW UP
ED: With Viagra Usable erection for intercourse , AND AT 80% without any medications !!
Fully continent since removal of catheter.
PSA one year : 0.0 as of 6/13/ 2008 BIG Wooohoooooooooo!!!!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/3/2008 7:21 PM (GMT -6)   
My best wishes and prayer to you today!
We'll see you soon...on the other side...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 

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