What a Week It's Been!

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SurfingSpouse
Regular Member


Date Joined Oct 2008
Total Posts : 23
   Posted 12/1/2008 9:02 PM (GMT -7)   
It's been one week since my husband's surgery. I don't think either one of us would say it was one of our better weeks. Hospital. Pain. Catheter bags. Antibiotics. Stool softeners. Ah, good times.

Well, now we've got the week behind us. The surgery is over. The prostate is gone. The cancer is now gone with it. Today was a day of celebration in a sense. The catheter was removed. Yay! The staples were removed. Yay! And much to our shock and surprise, my husband is having few issues with incontinence. Why is that? We're not sure. I choose to believe it was due to the advice of some of you on this forum. I had him doing Kegels weeks before surgery. So when they removed the catheter today, they filled his bladder with a little fluid and then asked if he could hold it. The physician's assistant told him that only 10% of men will be able to do so. (This was his way of making my husband understand that most men will not be able to keep the fluid in their bladders.) Well, he held it. He's only worn one pad today and he's not even sure if there's been any leaking. I think he simply feels it's safer to wear it.

Is this normal? I don't think so. Is it shocking? Quite. However, after the two months we've just had, this was like being handed a gift, a gift of continence. (How one wraps such a gift, I don't know.) We are well aware that he may leak nonetheless. He was told to do Kegels, but not too many.

We also left the office with samples of Cialis and Viagra. The PA believes that there will be success with respect to ED as well. We shall see. We know not to get our hopes up too high. Still, today was a good day and I want to share that with the forum. Thank you all for your support and well wishes.
Husband's biopsy: 10/3/08
Husband's diagnosis: 10/10/08
Husband's age at time of diagnosis: 54
PSA: 5.0
Gleason: 3+4
Clinical stage at time of diagnosis: T1c
DRE: No nodules
CT and bone scans: Negative

Surgery: DaVinci robotic on 11/24
Gleason: 3+3
Margins: Clear
25% of prostate involved
Incontinence issues: Surprisingly few
ED: Still working on that


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/1/2008 9:09 PM (GMT -7)   
Glad to hear things are working out so well.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 12/1/2008 9:39 PM (GMT -7)   
Hi, Guys
 
Glad today was a good day and hope there are many more to follow.  The continence issue is particularly encouraging.  I'm 5 weeks from surgery, about the same age, and found it interesting that you attribute his sucess with doing Kegel's.  My daughter said she did them with Caesarean birth and that they seemed to help.  Guess I'll be doing Kegel's.  Thanks for the info and hope things keep going well. Enjoy the holidays and keep us posted.
 
Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 2009


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 12/1/2008 9:52 PM (GMT -7)   

Good news!!!

I had a similar experience with continence so I don't think it's that unusual. I didn't do Kegels before, but I do an hour or so brisk walk every day, so that may have been a factor in my case. I wore a pad day and night for two days until confident I didn't need it. Since then, I've had the occasional very slight leak, but nothing that needed a pad.

Orgasms will be interesting, because it is quite common to ejaculate urine. For me that phase seems to have passed -- Kegels seem to have helped with that.


Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week and 7-month PSAs: 0
Bimix injections working well 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 12/1/2008 10:37 PM (GMT -7)   
This is great news Surfing. My husband was also lucky with regaining continence early after catheter out, so it is an unexpected gift sometimes, and a great one - good luck with the weeks ahead.
Creed_three
 
Husband 50 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03.
 


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 12/2/2008 6:34 AM (GMT -7)   
Count your blessings on the continence. My experience has been more like chas036. At first I seemed to have little trouble and thought the IC was going to be a breeze. Well, here I am more than 6 months out, and I still have the here and there squirts. I wear one pad a day.

I am almost at the same place I was 5 months ago - very little new progress. I am almost there, but not there. As far as kegels - I admit I am guilty of doing little in that area. I have for the most part gotten use to the ocassional leaks, but do hope someday to be completely dry as before surgery. It sounds like you will do well, but on the other hand take nothing for granted. Blessings.

RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/2/2008 7:51 AM (GMT -7)   
Certainly good news across the board.
It's great to see your post and know he is doing well. In fact it sounds like you BOTH are doing well. Still some work to do, but I know it will get done.

Surf's up! Er...now for everything else...lol

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 12/2/2008 8:18 AM (GMT -7)   
Great news!  Congrats.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0

 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/2/2008 8:31 AM (GMT -7)   
It is really good news.  I was quickly dry also, so understand the relief felt.  Time will tell if it is permanent.  I had a little backslide after a couple weeks, for a day or so, but after that, no problems.   I really didn't do many Kegels before and none after surgery, but did do lots of walking and stair climbing when available. 

James C.
Co-Moderator- Prostate Cancer Forum
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 12/2/2008 8:48 AM (GMT -7)   
Hey surf thats great news, im 6 mos. out and all is well for me ,at exactly 10 weeks someone just shut off the water, i was dry overnight , if this will help it sounds like your hubby is in the same boat as i, even though he has little leaks  they are minor like mine , if he can try the womens lightdays liners ,instead of those bulky pads, he will think hes wearing nothing at all , and mentally this does help things along, if your always worried  then i believe it holds you back , the liners do VERY well and are comfy as well i went through a box and a half , then i was done with them , just a thought  you wont be sorry you at least tried them we love your good news keep it up were all in this together,...................dirt

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


SurfingSpouse
Regular Member


Date Joined Oct 2008
Total Posts : 23
   Posted 12/2/2008 9:28 AM (GMT -7)   
I am kind of waiting for the other shoe to drop. I think he and I both know this could all change. We shall see.

Surf's up? That's funny. I am a surfer. There. Now you all know something about me. I don't just surf the internet. I also surf waves.

We've had no . . . um . . . movement in the ED department yet. But it's still early.

Again, I thank all of you on this forum. My husband reads threads I email him. (He won't read them if I drag him over here to the computer.) I give him the space to read them in private. I will keep you apprised of his progress.
Husband's biopsy: 10/3/08
Husband's diagnosis: 10/10/08
Husband's age at time of diagnosis: 54
PSA: 5.0
Gleason: 3+4
Clinical stage at time of diagnosis: T1c
DRE: No nodules
CT and bone scans: Negative

Surgery: DaVinci robotic on 11/24
Gleason: 3+3
Margins: Clear
25% of prostate involved
Incontinence issues: Surprisingly few
ED: Still working on that


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 12/2/2008 9:30 AM (GMT -7)   
Great news!! May you continue to receive good news and the gift of healing!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 12/2/2008 3:00 PM (GMT -7)   
That's great news. Keep a positive attitude.
Age 50
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/3/2008 7:34 PM (GMT -7)   
Hi Surf....Dont worry about the other shoe to drop..,right now it is great news!! Thanks for sharing with us all...and continue the battle with your husband...He needs you and you are there.....Congratulations!....Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008

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