42 years old and have prostate cancer what a shocker

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lastcowboy42
Regular Member


Date Joined Dec 2008
Total Posts : 22
   Posted 12/2/2008 11:47 PM (GMT -6)   
 Hello
 well this sept  I was told I have prostate cancer , what a shocker just 3 weeks after I was told I could not work anymore  because of a very bad  back and injury  here I am 42 with my first little girl at age 3 , the wife and I were trying for another  but to late  now .
 I was told my cancer was stage 5-7  and psa  was off the  scale so they  say 
  on the scale but was a agressive cancer and had taken the hole rt side of my prostate .
 The doc sat me down and we whent through the treatments  and so forth me still being out there from the news , I made my choice while up deer hunting this year and had the prostectomy  ON November 18  , I had the  cath tell Dec 1st then called the doc and told him it had to go  was in pain.
  I havae to say it is quite emberrising having the loss of controle and so forth  , I hope it will get better .
 I would like to know more about the recovery  if I wil ever have controle back ? trying to find  the kegal  have flexed every thing I can and with little or no  luck ? I dont know  I guess I am still in shock  and embarrest about it  not  sure   so I hope I can get  some advice from others who have had this done and what to expect in the long run .
             Thank you all for your time  and any advice  you ma give , I wish you all the best  in beating this thing

Post Edited (lastcowboy42) : 12/2/2008 9:53:52 PM (GMT-7)


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 12/3/2008 12:16 AM (GMT -6)   
lastcowboy42, welcome to the club that nobody wants to join and where being a zero is a good thing.
Firstly, of course you are in shock. That is completely normal and even more so given your age. But now the recovery begins. My first piece of advice is to get a written copy of all medical tests and pathology reports and keep your own file. I sometimes wonder if docs could be more conscientious in telling their younger patients before the op that it would be wise to store some sperm frozen in case a patient decides they want more children down the track. Of course it is still possible, although somewhat more difficult to get the little devils because the prostatectomy does not stop their production. On to the recovery. Times and rate of recovery vary....... incontinence is the norm and in all probability should show a gradual improvement over the next few months till it is no longer a problem. ED is a little more problematic but if nerves have been spared then it also should gradually improve. Even if nerve sparing was not possible there are ways around this. No effect on orgasms other than being dry with many members reporting greater intensity. Although it is difficult be patient as recovery from this (which is a major operation) can vary from very quick to a more leisurely pace. Stay with us and do not feel awkward asking any question. Many here have walked the same road and are anxious to help and advise. Take care and a speedy recovery.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)

Post Edited (BillyMac) : 12/2/2008 10:22:19 PM (GMT-7)


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 12/3/2008 9:42 AM (GMT -6)   

I was diagnosed at age 37. I was the youngest person my doc operated on, who has done of 2k of them. It is difficult at times seeing others my age having no idea what I am going through both physcially and mentally. But I keep reminding myself it could be so much worse. If I didnt take that psa test and never had the operation it would be much more lethal later down the road. What has helped me since being diagnosed 5 months ago, I go through the things that have changed my life for the positive since being diagnosed. I live each day much more fully and many things that bothered me before dont. But I do have this weight on my shoulders because of this and will never go away and my only suggestion is to talk to people who are willing to listen (you will notice many people avoid the questions of how u are really doing), and this board is one great avenue of talking to people that are livign with the same issues as you. You can live your life as a survivor or as a victim. These are the cards we were dealt and we must make the best of it, and enjoy what you have. Hope this helps. When I get stressed out which I am now taking my next psa test tomorrow, I pray and ask others to pray for me.

LIVESTRONG!!


Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: Praying for <0.01
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/3/2008 6:50 PM (GMT -6)   
Howdy Cowboy,
From another slow talker. I grew up in Texas ~ during my speech development years, love country music, love cowgirls, but I can't ride a bull...LOL. And I have advanced prostate cancer. But I am doing well on most fronts, diagnosed at age 44, and with an undetectable PSA. I have 99% continence contril. But I am impotent. My impotence is caused mostly by the extensive treatments I am still undergoing. But for most of the guys here, ED goes away and so does incontinence.

I second BillyMac, your information is missing a couple pieces. The best documents you need are your original PSA test, and your post-op pathology. There is a lot of information our layman here can help you with.

Shu,
You will have mine with you!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/3/2008 9:27 PM (GMT -6)   
Howdy cowboy, from A wife....Stay strong, You have gone through the worst....Talk to your wife, Kiss your wife a lot, talk to her about your feelings....You are young and strong and you will get back to normal again...(whatever normal is)...This is life, and you will deal with your hand... You won't fold on this.....There are much worse things....My best to you....D
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008


lastcowboy42
Regular Member


Date Joined Dec 2008
Total Posts : 22
   Posted 12/3/2008 9:39 PM (GMT -6)   
thank you all :{) I wish I would have found this site months ago but better late then never
 I am 42 years  young
My psa was off the  scale
11 out of 17 bio tests came back pos full rt side agressive cancer
had the open RP on Tuesday November 18th of 2008 at 7:45  am , took 6 hrs and 3 pts of blood
 At Kaiser Sunnyside  in Oregon
Performed by Dr Matthew Forsyth
 Came home on 11-21 , cath and staples out on 12-01
now the real work begins
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/3/2008 11:46 PM (GMT -6)   
Hey Last, I was 43 at Dx and Surgery. We are here if ya need us. Good luck with the healing.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/3/2008 11:51 PM (GMT -6)   
Last, There is no need to be embarassed about ANYTHING here. We have all been where you are. Some of us were there longer. Stay Positive and keep workin on it. You might try looking for a physical therapist that uses bio-feedback for training the pelvic floor muscles. Just an Idea.
Good Luck,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


64dragon
New Member


Date Joined Dec 2008
Total Posts : 4
   Posted 12/4/2008 5:21 AM (GMT -6)   
Wow. You and I have had very similar experiences, both in timing and in age. I am 43, was diagnosed with prostate cancer on Sept. 5th and had my prostatectomy on November 5th. I have had problems with back and neck pain due to some herniated discs and that has affected my ability to work as much as I need to. I am also unable to work much since my surgery since I can't be on light duty at one of my jobs at a hospital.  The kegel exercises have been difficult for me to do post surgery because of pain that I continue to have at the astomosis site (where the urethra was reattached to the bladder, and where the prostate used to be. I also feel some pain in the testicles and still seem to have at least somewhat of a bladder infection which causes some burning.  I have some bladder spasms as well when I urinate and right afterwards.  I have had good success however with bladder control, which I attribute may be in part to having practice with kegel exercises with a physical therapist before surgery.  What may help you, is if you can see a good physical therapist that specializes in urological specific P.T., and they can do some kegel training with you using some biofeedback. They put some electrodes on you externally, (embarassingly though at the perenium near your anus) which is hooked up to a computer to show when you are properly isolating your kegel muscles.  If you are having pain with kegel exercises then you should talk to your doctor or a P.T. as I was advised to hold off on doing them until the pain subsides.  I hope and pray that all goes well with your recovery, just remember that it can take a few months to develop bladder control, that is not at all uncommon, I happened to get pretty lucky on that.  Practicing your kegels is essential to your recovery though, so if it is not painful yet do them religiously under the supervision of your doctor and physical therapist.  My cancer was stage T1, gleason 3+3, found through a routine PSA test, which I think was initially 3.2 or maybe 3.4.  Don't despair, your prognosis may be scary, but your attitude matters a lot, and advances are happeningn everyday.  I share your loss with not being able to father more children,  I never got to have any and didn't have any money to freeze the sperm. Good luck and blessings to you.

Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 12/4/2008 11:45 PM (GMT -6)   
Hello last cowboy IM CERTAIN you will get better in the continence dept. i was 43 when i was dx and i was dry in 10 weeks it will take time and patience though . i felt the same as you it did get better , remember it is also phsycological , you can become dependant on the pads if you uncertain in public , switch to the womens  panti liners  if you can it makes you feel ALOT more normal and you tend to forget they are there, good luck my friend,this is only one mans opinion , but we are all in this together , and we are all here  for ya !!!!!!!!!!!!!!!! dirt

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3218
   Posted 12/5/2008 10:45 AM (GMT -6)   
Hey cowboy I feel your pain. I was also diagnosed at age 42. I had had the disease for quite some time so they say as before they found out what was wrong with me it had spread to my bones and lungs. They tell me my prognosis is not good but I am now 45 and still really living my life.Perhaps living for the very first time. I see things much differently now. The birds sound really pretty in the morning. The sunsets are much more spectactular. Hormone therapy has recently quit working and I get to do a dance with chemo. My wife also wanted a child. There are other ways. Be open minded. A baby is a picture waiting to be painted much like our lives are a book waiting to be written. It is not a sperm cell that makes a man a father. Pca will offer many challenges. Facing these challenges will cause you to grow in ways you never thought possible. There are good people here who will be there for you if you need to vent, cry, or rage. I know as I have done all the above. Stay positive and have faith. Treat your body as a temple because it is. A lot of the things we eat these days are pure poison. I believe you will be fine. Hang in there and remember you are at the best place on the web for dealing with Pca. We are all walking the very same road. My E-mail is available if you want to talk. I will provide my phone number via E-mail. Todd
11/29/08 P.S.A. 1.49


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 12/5/2008 11:12 AM (GMT -6)   
living1963 said...
 It is not a sperm cell that makes a man a father. 
Amen brother...
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 08 <.05


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/7/2008 11:35 AM (GMT -6)   
Welcome to the club Cowboy, I hope you will find the nurturing love here at HW that keeps us all coming back. Be sure to take your time and get as educated as possible. This is a tough battle, but if you have a good battle plan you can and WILL beat it.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 12/8/2008 6:20 PM (GMT -6)   
lastcowboy42,

I was 43 at diagnosis, and my little boy had just turned 4. I had been seeing a urologist for a few years after my primary care physician did a PSA and found it a bit high. The first two biopsies didn't find any cancer. The third one did the trick. I had a robot-assisted prostatectomy and when my PSA rose soon afterwards, salvage radiation. Now my PSA is less than 0.1. I'm pretty dry, and do okay on the ED front, sometimes using meds.

Your relative youth is a factor in your favor as far as regaining control of your bladder. If you're not getting better over time, make sure your urologist knows. There are medical interventions possible, but hopefully kegel exercises will get you there without the need for anything invasive.

I wish you well. Try not to give up hope. You're definitely not alone, but a member of a large brotherhood.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T3a, N0M0, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 <0.1, 12/07 <0.1, 4/08 <0.1, 11/08 <0.1
http://pcabefore50.blogspot.com


glabers
Regular Member


Date Joined Nov 2008
Total Posts : 31
   Posted 12/9/2008 8:02 AM (GMT -6)   
I too didn't find this place until after surgery, and what a help it would've been beforehand. Eitherway, it's a huge help to me now. No matter what the question, there's an answer from someone whose been there. My 1st question was a "shrinkage" issue, many responded and offered encouragement and info about how it rights itself when it matters - whew.. Plus, my wife always reassures me of what really matters.

Some particulars I discovered in the incontinence dept. At first, after surgery, I was rarely dripping because I was on my ass alot, however, as I became more active I spotted more. Go for a walk; drip, laugh; drip, sneeze; drip, pick something up; drip. I saw pinkish bloody-urin, came here to question it, and found it's common... take it easy & don't strain oneself.

By the way, that mention of a panty-liner is a great idea. This pad I'm wearing makes me look like johnny "wad" holmes 10 seconds before action. The bulge is ridiculous.

See ya around!
Diagnosed:  8/24/08, age-47
Father died of prostate cancer at age 72
PSA 1.5 early 2007, 4.5 mid 2008, all remedies tried & reduced to only 3.2, uh oh.
Biop - 2 positives of 20 samples
Gleason - 3+3
RRP - 11/13/08 via Da Vinci by Dr. David Samadi, Mt. Sinai Hosp. NY
Post op biopsy - 75% of samples positive for cancer, Post op Gleason 3+4
some lymph Nodes tested, all negative
all nerves spared - I'm told
Catheter in for 1 week, using 1 pad a day. 
 
 
 
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/9/2008 8:41 AM (GMT -6)   
Glabers, That johnny "wad" holmes made me laugh outloud! Pete is always talking about the huge bulge the pad he wears makes!! Wait till I all him Johnny the Wad Holmes!!! Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008


zingaa
New Member


Date Joined Apr 2008
Total Posts : 13
   Posted 12/10/2008 2:21 PM (GMT -6)   

Last Cowboy:

I was diagnosed at 40, just after my birthday..Its definitely a shock and hang in there you will be fine..Try and not stress about it, just get proper advise and get it taken care of..

 

My current status is down to one pad a day, which I never thought would happen ...ED is coming around, maybe 70%..PSA is now zero

 

Its been about about 8 months since surgery

 

Good luck, keep us posted


Don
Age 40
PSA 5.81 (2-1-2008) 
Biopsy Gleason 3+4=7
Surgery (4-1-2008)
Post op tests negative
10% of tissue cross sections
 

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