I've been gone too long

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War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 12/3/2008 2:51 PM (GMT -6)   
Yes I'm back. I have been gone too long and ask for your understanding. It has been very busy over the past few months. No good excuses for not helping friends. Please forgive me.
Just to get you all back up to speed on what is going on.
 
"Bad Things"
1. Chemo did not work. It just kicked my rearend.
2. Came off prednisone too quick and paid the price with bone and joint pain.
3. Chemo did nerve damage to my feet and legs. (my 100 meter time is terrible)
4. Hair is back, but it's almost all grey and wavey.
5. My football team had an awful year and lost to "Bama". (I'm depressed)
6. Latest bone scan came back with increases to left ribs, T6 & L4 (spine) and pelvis. New small spots on right rib and L1. 
 
"Great Things"
1. My mom is finally out of the hospital (at home with us) and getting better.
2. I just started my clinical (12-1-2008) trial on Abiraterone.
 
The clinical trial is a stage 3 trial that is showing great promise for all PC patients. I will keep everyone up to date on how things are going. Just how good is this drug? One young man (age 72) on the trial, he is 2 months ahead of me, has had his PSA drop from 98 to 3 in two months with NO SIDE EFFECTS. How good is that? It feels good to be on the front lines with this trial. It will help so many in the near future. I just pray that I get the drug and not the "sugar pill".
 
So, it's good to be back and with my "other" family.
 
As usual, War Eagle, baby.
 
Walt
 
Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo 
PSA 10.86 4/24/2008 round three chemo
PSA 10.4 5/15/2008 round four chemo - increase dosage next month
PSA 12.98 6/5/2008 round five chemo
PSA 13.63 6/26/2008 round six chemo
PSA 10.46 7/17/2008 no chemo
PSA 4.56 8/28/2008 no chemo, Zometa and 6 month Eligard shot
PSA 9.25 12/1/2008 start clinical trial
 
"I will persist without exception - I will find a way where there is no way"


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 12/3/2008 3:46 PM (GMT -6)   
Hey Walt,

Its good to see you again. Sorry about the bad things but the trial results sound promising. Please keep us posted...

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Finished 4 cycles of chemo on 11/7/08.
First CT scan on 12/2/08 - in remission!!!
"Patience is essential, attitude is everything."


Missyj
Regular Member


Date Joined Sep 2007
Total Posts : 87
   Posted 12/3/2008 3:49 PM (GMT -6)   
Hey Walt, I log on often here and am always looking to see how you are doing.
 
Sorry to hear about the bad things that are going on with you, but really pleased to hear your mum is better - also that you have got onto the trial. I am sure that you will get great results. All the doctors I have spoken to here in the UK are convinced that Aberiterone is the golden bullet for PC.
 
Will look forward to hearing how you are doing as you are an inspiration :)
 
Take care, Julia
Age - 59
Dianosed - July 07
Gleason 8 (4+4)
PSA - 17.7
Bone Scan - August 07 revealed mets to spine, neck, rib, shoulder and pelvis
MRI - August 07 revealed seminal vesicle involvement
Treatment - Zolodex started on August 10th
First PSA  November 7th - 2.3
Second PSA February 7th - 1.1
Third PSA  May 5th 2008 - 0.8
Fourth PSA September 3rd - 1.7
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 12/3/2008 4:34 PM (GMT -6)   
Walt, good to read you again. You've got some challenges, for sure, Auburnite included, but it could be worse, you could be a Vols fan...lol
James C.
Co-Moderator- Prostate Cancer Forum
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
Present- 1 year: ED- Viagra, pump continues, no response- Trimix .10ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 12/3/2008 4:37 PM (GMT -6)   

 

...always good to hear from you Walt, and this day is not an exception!

 here's to you brother!


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/3/2008 5:18 PM (GMT -6)   
Always nice when you post, Walt...
Since I am able to talk to you regularly, and that wonderful wife of yours, I knew the updates. I am glad you came back to post today because you are right, this is a great family. I get asked about you from many and it's always better replied in your own words. I'll chat with you Friday again and you can cry on my shoulder about that 'Bama game.

Love from your friends,
Ruthie and Tony

PS: Hi Johnnie! As you say "Love ya bunches". Also say hi to all my Trussville buddies!
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 12/3/2008 7:46 PM (GMT -6)   

Hey Walt, I follow you and Tony on CaringBridge, so I'm aware of your trials, tribulations, and victories.  Your determination and courage are inspiring.  Keep on keepin' on.

Best,

Bill


August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 12/3/2008 8:49 PM (GMT -6)   
Welcome back - glad to hear about getting in the Abiraterone trial!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (11-3-08)
PSA: 31.18
Taxotere + Prednisone + Atrasentan
[8th Treatment on November 3rd]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/3/2008 9:05 PM (GMT -6)   
Good for you Walt.....Good to see War Eagle...You rock..! Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/3/2008 9:10 PM (GMT -6)   

Good to see you back Walt, I have not been writing as often as I should but I am committed to checking daily.
I do read your caringbridge everytime you have an update. Hang in there my friend you are an inspiration to us all.

peace and love

Dale


My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 12/3/2008 9:52 PM (GMT -6)   
I had noticed that the "eagle" had not posted for a while so it is good to see you back. Sorry to hear the bad part of your news but the good news about your mother's recovery and the trial is great. A lot of us may eventually follow your path so it is great that members such as yourself take the time and effort to keep us informed of your journey, both its ups and downs. Here's to the Abiraterone doing its thing and sitting that PCa right on its backsideyeah
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)

Post Edited (BillyMac) : 12/4/2008 4:10:38 AM (GMT-7)


Pelahatchie
Regular Member


Date Joined Jul 2007
Total Posts : 86
   Posted 12/4/2008 10:23 AM (GMT -6)   

War Eagle, hope you get great results from the trial, there are sure alot of encouraging signs out there that this could be a game changer.  On the football front would you mind if Mississippi St. borrowed Tubberville for a few years, we sure could use a good coach.

Keep fighting, good things are going to happen for you.

 


Age 45 at DX
 
DX 8/05 Gleason 5, Mayo clinic Second Opinion Gleason 6, PSA 2.8
 
Da Vinci surgery Dr. Dasari, Centennial Nashville 9/24/05
 
Pathology Report Gleason 6, 15 % on left side only very near to the edge of capsule, too close to call on margins, doc's said to watch it very closely, final decision T2A
 
PSA's have basically ranged from <.04 to .05 for two years.
 
no E.D. and no Incontinence, feel very blessed
 
PSA Nov 07 = .06
 
PSA Dec 10th 07 =.07
 
PSA Jan 4th 2008= .1
 
Started Guided IMRT on January 7th, 2008 to treat prostate bed and lymph nodes, completed on March 6th, 2008
 
PSA April 18th 2008 =.03
 
PSA August 18th 2008 = .01 or less, test only goes down to .01


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 12/4/2008 10:34 AM (GMT -6)   
Any day you are posting here is a great day! We have all missed you, but thankfully I subscribe to your CB site, so I get your updates :) Sorry to hear about the "bads" but glad that you are in the trial and I hope you get a little extra magic this holiday season. Keep us posted and keep on War Eaglin'. (That's a word right? :) Good to see you again friend!!

War Eagle in the House!!!!

Chayna
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 12/4/2008 9:38 PM (GMT -6)   
Hey Walt

Great to hear from you. Sorry about the bad but glad for the good. Please let us know how you are doing from time to time.

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 12/5/2008 6:12 PM (GMT -6)   
Walt-

Best of luck with the trial. I'll keep my fingers crossed that you get the "real stuff".

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.
9/2008 Interim bone and CT scans show progress vs. scans done before beginning trial. I'm cautiously optimistic. Next scans 10/30/08.
10/2008Bone and CT scans continue to show improvement. Med onc attributes mostly to Taxotere/Prednisone while I believe majority of progress attributable to investigational drug, Sprycel.


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/5/2008 6:29 PM (GMT -6)   
 Walt,
It sounds like your on to something there! I know you will kick it's ***! You hang in there old friend and keep us posted. We're all behind you!
Your friend,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 12/8/2008 3:28 PM (GMT -6)   

Well, we are over a week into the trial and the only side effects are from the prednisone. Joint pain is back, but we knew that was coming. No big surprise. I go in on the 11th for more Zometa and a PSA. Maybe we will get something of an idea on the burning question of Drug vs Placibo. I don't think we will, but I know we will have some idea by next month.

Just an update.

Peace, love, and hope to all.

War Eagle, baby (ya just gotta believe)

Walt


Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo 
PSA 10.86 4/24/2008 round three chemo
PSA 10.4 5/15/2008 round four chemo - increase dosage next month
PSA 12.98 6/5/2008 round five chemo
PSA 13.63 6/26/2008 round six chemo
PSA 10.46 7/17/2008 no chemo
PSA 4.56 8/28/2008 no chemo, Zometa and 6 month Eligard shot
PSA 9.25 12/1/2008 start clinical trial
 
"I will persist without exception - I will find a way where there is no way"


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2358
   Posted 12/8/2008 3:34 PM (GMT -6)   
Thanks for your update, Walt.  You're a fighter and not a quitter, exactly what is needed with prostate cancer! Your optimistic and never-give-in spirit
is an inspiration.  I hope that the new drug, Abiraterone is wildly successful!
Take care and be well...Tim

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