Help. Need advice and a little support

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Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3196
   Posted 12/3/2008 6:59 PM (GMT -7)   
Hey everyone hope you all are well. I just had my 3 month onco check-up. He is concerned about my rising psa. I dont know what happened to my signature but it went bye bye. Here is the short version. 42 @dx psa 3216.17 bone scan showed possible bone involvement in the pelvic bone. cat scan revealed multiple lung lesions and lymph involvement. Started lupron and casadex. It took 18 months but psa fell to .09. 3month intervals .25, .44, .86, 1.34 and finally 6 weeks later 1.49. I have Kaiser Perm as an H.M.O. Myonco wants to take me off of casadex, start doing scans and all he can talk about is chemo. My wife is terrified. Help. He told me today that statistically after I go off casadex that I have 36 to 40 months. Todd


11/29/08 P.S.A. 1.49

Post Edited (living1963) : 12/4/2008 7:58:52 AM (GMT-7)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/3/2008 7:13 PM (GMT -7)   
Thanks for writing living and I am sure your wife is terrified. Where do you go to the hospital? Have you had any other opinions? How do you personally feel about your treatment so far and going forward?
if you don't mind email me so we can chat about this.
peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/4/2008 9:53 AM (GMT -7)   
Hi Todd,
It was great talking to you this morning. I can tell we have so much in common it's great to find friends in this journey, but the journey leaves much to do . Your doctors suggestion to stop the Casodex is not a bad one. When the disease has shown that it is refractory it can actually use the Casodex to grow faster, which you don't want. In addition, the Taxotere approach is also on the right timing, but as I said to you, the results can be tolerable and testing to see if the Tax works now is a good plan. If you can, now is the time to educate yourself on clinical trials and experimental drugs. You might consider looking at one for yourself. And your wife is scared, no doubt. But you have such big heart, I know you will set her mind at ease.

You have my biggest well wishes, and prayers, too.

May peace always be with you as well.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 

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