leakage, any tips?

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jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 12/4/2008 8:08 AM (GMT -6)   
I am 9 weeks out from surgery and just joined the zero club. All margins ckear. Problem is leakage. Going through 4-5 pads a day . Are there any techniques that can hold off flow when getting up from sitting or any other activity that always rsults in some leakage. I do kegels 3 times a day. I feel I will be one of the unlucky ones that have to put up with this issue longer than the average. 9 weeks is early but it is really hard to deal with 24 hours a day. Just found this site from a tip on Web MD chat room, really a great forum.
Rich man in a poor man's shirt


egor
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 12/4/2008 8:37 AM (GMT -6)   
9 weeks is still very, very early.
Are you sure you're doing your Kegels correctly. Your doc can give you a referral to a biofeedback therapist who will train you to do kegels correctly.
In addition, avoid alcohol, it always caused me significant additional leakage. Same with citrus fruits and juices.
For short term help, original sudafed (psuedoephedrine) slowed the leakage.Doc also had me on Imiprimine which didn't help much, but apparently works for some.
I'm sorry to say this, but you're in for a long, frustrating slog, but don't declare yourself unlucky until at least a year has gone by. By then 98% of men are dry.
Good Luck!
I know how tough it is. Believe it or not, you get used to it!
Ed
Ed from Rochester, NY 66 years old
PSA 6/06 1.9
4/06 Biopsy 1 core cancerous Gleason 3 + 3 = 6
8/06 Da Vinci Dr. Joseph, Strong Memorial, Rochester, NY
Gleason 3 + 4 = 7, negative margins
3 month PSA .01
6 month PSA .01
9 month PSA .02
1 yr PSA .01
1 1/2 yr PSA .02
2 yr PSA .03
1st collagen 12/07
2nd collagen 3/08
Imiprimine 7/08
still leaking about 120 ml/day 2 - 4 pad
AdVance Male sling procedure 9-05-08
Unable to void, catheter in for 11 days, then self-catheterization
Dry after Catheter removed, no exercise for six weeks from procedure date


egor
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 12/4/2008 8:42 AM (GMT -6)   
PS
If you're dry overnight, it's usually an indicator that you'll be dry sooner or later.
Ed
Ed from Rochester, NY 66 years old
PSA 6/06 1.9
4/06 Biopsy 1 core cancerous Gleason 3 + 3 = 6
8/06 Da Vinci Dr. Joseph, Strong Memorial, Rochester, NY
Gleason 3 + 4 = 7, negative margins
3 month PSA .01
6 month PSA .01
9 month PSA .02
1 yr PSA .01
1 1/2 yr PSA .02
2 yr PSA .03
1st collagen 12/07
2nd collagen 3/08
Imiprimine 7/08
still leaking about 120 ml/day 2 - 4 pad
AdVance Male sling procedure 9-05-08
Unable to void, catheter in for 11 days, then self-catheterization
Dry after Catheter removed, no exercise for six weeks from procedure date


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 12/4/2008 9:01 AM (GMT -6)   
I am 6 months out and still have minimal leaking. Usually it is a sneeze (I have allergies), or something that catches me off-guard. At least now I don't think about it as much. It is nice to be able to get up and walk around without having to fight it every minute. Regardless, I still wear a pad - use one a day. Admittedly, I have not done my kegels as some on here have. I will suggest this to you. When you take a leak stop your stream and hold it. Do this 3 or so times during urination. I have found that my so-called exercise routine. The reason I like it is that by doing it that way I know exactly what I am doing.

For some of us the process of healing takes longer than others - hang in there it will most likely gradually improve. I was still using several pads at 9 weeks out. Blessings.

RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 12/4/2008 3:16 PM (GMT -6)   
Jerseycity: My path:

Surgery in May.
7 pads a day until the end of August.
From late August - early September went from 7 to 5 to 3 very quickly.
Mostly 3 a day in October.
Down to 2 a day in November.
Now using one pad a day - considering going with no pads, but I do squirt once or twice a day and I can't stand damp undies. I've been very bad with my kegels, but I believe they can help - as well as general exercise.

RBinCountry: I am almost EXACTLY on the same path as you.

kcragman
Age: 52
March 2006: PSA 2.5

Dec 2007: PSA taken for insurance application. I did not see the results until late Jan '08 - after I was rejected. Their lab said PSA 4.5. PSA again in Feb '08: 3.7.

March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were cancerous and the 6th was suspect.  

May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph nodes and associated glands all appear to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/4/2008 11:38 PM (GMT -6)   
Jersey, give your body a chance to heal and do not worry about it too soon. I know how you feel, but you can manage with incontenance. Try to relax and be thankful that it has been caught early.

Good Luck, KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     

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