My heart goes out to you all! ~ Happy Holidays!

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/8/2008 1:34 PM (GMT -7)   

I've known about living with cancer for two years officially.  I still continue the fight but I am not alone!  As I was getting my calls out to the volunteers I have rounded up for the next couple days, it occurred to me that this stupid disease is responsible for the good fortune of meeting some of the best people I have ever met.  It started right here at HealingWell after my bone scan in December 2006.  The blessings for me are many, I have had great doctors, nurses, staff, and most importantly I have had the support of the members here.  You new guys and gals will feel the same way eventually, if you don't already.  I remember coming here, scared and believing i had received a bum deal at an early age.  Well I know now that I am a very lucky man.  Even as I fight advanced prostate cancer, I believe more today than ever ~ I can win this!  And if this cancer comes back, I will stick to my beliefs that I can win in other ways.  That stated, I confess that I needed you guys and you were there for me!  In return all I can do is thank you.  My God, thank you all so much! 

 

I am posting an early seasons greeting to you all.  May the season bring you love and peace! 

 

And for those this won't offend, may Faith, Love, and Hope reign in your hearts!

 

Sincerely,

 

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2268
   Posted 12/8/2008 1:40 PM (GMT -7)   
And thank you, Tony, for supporting, encouraging and befriending me and others here as we share a friendship and a bond rooted in the common ground of prostate cancer. 
 
May the Christmas season be a joy to you and your family! 
 
Tim

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 12/8/2008 1:50 PM (GMT -7)   
Here's a tip of the glass of Eggnog to you Tony...while we haven't met, your journey shows what a Positive attitude in dealing with cancer can do for the heart, soul and mind. Keep it up!! I know you will follow your signiture line forever.

Cheers to you and yours...Merry Christmas
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 08 <.05


War-eagle
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 12/8/2008 1:56 PM (GMT -7)   

Tony, Tony, Tony,

You have given so much to all of us. But that is what this site is all about. Giving. I too want to wish everyone many blessings for the upcoming holiday's. Hopefully this will not offend anyone..............may the gift from the cradle and the promise from the cross bring blessings to all.

Peace, love, and a big huge WAR EAGLE,

Walt


Age: 55 ( still alive at 55)
PSA 43 7/2005
Biopsy 12/14 Gleason 7 & 9
Divinci 9/2005 - spread to bladder
HT - 10/2005 (Eligard every 6 months)
RT - 10/2005 (38 treatments)
PSA 0.12 to 1.9 2/2007
Bone Scan and CT 4/2007 Bone mets
Casodex 4/2007
Zometa infusions 4/2007
PSA 4.8 8/2007
PSA 6.34 12/2007
Radiation (15 treatments) started on bone mets 12/2007
PSA 6.72 1/2008
PSA 8.23 2/2008 - Starting prednisone for 30 days
PSA 14 2-29-2008 - start chemo on 3/12
PSA 12.82 3/1/2008 round one chemo
PSA 12.24 4/2/2008 round two chemo 
PSA 10.86 4/24/2008 round three chemo
PSA 10.4 5/15/2008 round four chemo - increase dosage next month
PSA 12.98 6/5/2008 round five chemo
PSA 13.63 6/26/2008 round six chemo
PSA 10.46 7/17/2008 no chemo
PSA 4.56 8/28/2008 no chemo, Zometa and 6 month Eligard shot
PSA 9.25 12/1/2008 start clinical trial
 
"I will persist without exception - I will find a way where there is no way"


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/8/2008 5:37 PM (GMT -7)   
Dear Tony,
You have been a constant here. Thank you for all of your work..We all, who come here, have troubles, and problems, and sadness, and yet it is so helpful to read about all of us who are fighting this battle...with ED, incontinence, fistulas, catheters, pads, anger, despair, worry, sadness, hemorroids, bedwetting, pain, viagra, cialis, the shot, worry some more, ...This is prostate cancer...I don't think anyone who has not gone through it themselves or a wife, can possibly understand the frustration and despair and anger that is involved...We have a special place here to talk about what we are going through. I am a wife, but I post for my husband. I wish everyone a very Merry Christmas, A Happy Hanukka, and whatever else you may desire! We are all here, and that is the important thing. Every moment is enormous, and it is all we have... Our life is a path of learning to wake up. Diane
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 12/8/2008 6:01 PM (GMT -7)   
Hi Tony,

Thank you for being here with us. Many of us draw from your strength, your encouragement, wisdom and your knowledge.
This site would be less without your presence.
Wishing you and yours a happy and healthy Holiday season.

Magaboo
Born Sept., 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT stated 3rd Nov., 08 (33 sessions). Total Grays=66


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 12/8/2008 6:28 PM (GMT -7)   
Thank you Tony. And the same to you.
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.
9/2008 Interim bone and CT scans show progress vs. scans done before beginning trial. I'm cautiously optimistic. Next scans 10/30/08.
10/2008Bone and CT scans continue to show improvement. Med onc attributes mostly to Taxotere/Prednisone while I believe majority of progress attributable to investigational drug, Sprycel.


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 12/8/2008 6:30 PM (GMT -7)   
Hi Tony. Thank you for all your hard work for the people here on this and other forums.

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 12/8/2008 6:48 PM (GMT -7)   
Ah man,Tony

You just brought my first tear of the day. Thanks for all the advice and encouragement you have given us during your good fight. Have the best of holidays.

Thanks, Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 12/9/2008 7:14 PM (GMT -7)   
Hi Tony,

Thanks for the well wishes and for spreading the spirit of the season. May you and your family enjoy the holiday season with love, cheer, and good fellowship.

Those sentiments are also meant for the others on this site as well for sharing and caring enough to share.

Happy Holidays,
Don
Diagnosed 04/10/08
Age 58
PSA 21.5 (first and only test resulted from follow up visit to emergency room for kidney stone. first time for kidney stone too)
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear
Chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
PSA test on July 14, 08 after 8 weeks hormone .82
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
Second Lupron shot 09/11/08
Next PSA test by oncologist 03/09
 
 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 12/9/2008 8:57 PM (GMT -7)   
Hi Tony,

You are tops, and seriously right side up in all the work you are doing for prostate cancer. Whenever we are tempted to forget, we get reminded of the fragility of life and appreciation for what we have. Thanks for everything you have done for us (mate!). Blessings to you and yours at Christmas and for the new year. Drop in down under one day if you can swim that far! love to you Tony and to your wife Ruth and family.
Creed_three
Husband 50 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03: November, 2008 (repeat PSA with instructions to lab to calibrate carefully) = 0.02.
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/18/2008 12:06 AM (GMT -7)   
I am reiterating my feelings for you guys and gals. My life was changed once I found out about my prostate cancer. But because of the good will of this site, and the beautiful people here, it has changed for the better. And we all respond together here with honesty, love and appreciation! It just makes it that much more special. Thank you for your responses!

The holiday season has responded as well for us here in Las Vegas. It has snowed steady all day here in Las Vegas where I live and we received a record snow fall. Las Vegas is not accustomed to a foot of snow, but it happened in some areas here. We had over 6 inches in my yard. I post pictures on my blog site and I will send some more tomorrow. On my blog site I have a picture of my family. Ruthie, my son Jeff, and that's me in the middle...lol.

Thank you all again. And please be safe!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 12/18/2008 6:17 AM (GMT -7)   
Tony,
Thank you, inspiration for all of us in determination, faith and hope!!!  I will tip my glass as well over the holidays for all of us, as well as say many prayers!!!
 
Merry Christmas, Happy Holidays to All!!!
 
LIVESTRONG!!!
Age Dx 37, 7/2008
First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008
Biopsy : 6 out 12 Postive all on right side, Gleason 7 (3+4).
Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008
Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008
PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
First PostOp PSA 9/2008: <0.01
2nd PSA 12/2008: <0.1 (Different Lab then 1st)
3rd PSA 3/2009
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25354
   Posted 12/18/2008 6:29 AM (GMT -7)   
Thanks Tony, for who you are, and all the best you represent, for being here for all of us, what a great attitude you prevail upon us. May the holiday be full of joy for you and your family, and thanks again, for just being you.

David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 12/18/2008 9:16 AM (GMT -7)   
Tony - Your the MAN!! Thanks for all you do.
Happy holidays to all!
Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 12 core 4 Positive 15%,15%,8%,3%
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report stage T2c organ confined with positive apical margin Gleason 3+3 = 6 (with tertiary grade 4)
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems from the get-go.
First post op PSA 10/2/08 < 0.05


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3196
   Posted 12/18/2008 11:55 AM (GMT -7)   
Merry CHRIST-mas to all of you. Tony, Walt, Diane, Both Davids, and so many more. Although I am new to the site I'm a vet in the fight. I wish I had met you all 2 years ago. I dont want to forget Pete or Dale. You all mean so much. May the peace of God bless you all this Christmas season and may your new year be filled with zeros. Love Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal

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