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Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 12/8/2008 8:44 PM (GMT -6)   
I've been looking at some older posts and wonder where some of you guys are.  Were you cured and decided, "I'm outta here!"  I really hope so.  There were a lot of names I didn't recognize and hadn't seen any recent postings. Swimmom,Bless your heart, has been here since the beginning and I don't think we can thank you and Tony and Jim and Dale and everyone else for all you've taught us. Thank you.
 
Sept.21st I lost my good friend to a heart attack. Sept. 28th I lost my Mom to kidney failure and a host of other problems.  We buried her on Wednesday of the following week and on Friday we got a call from N. Mexico that my wife's brother was found dead.
 
This is not a pity party on my part.  I have no illusions about my mortality.  I'm glad to be around for my wife, kids and grandchildren, and plan on fighting this doggone thing that has me so preoccupied that I tend to lose focus on the more complicated things. But that's okay.  Like someone told me a long time ago, "No one gets out of here alive. "
 
Surgery in Jan., and we'll go from there.  My wife is with me throughout this and has been quite informed and supportive.  She's a good girl. 
 
If some of you earlier posters read this , let everyone know how you're doing.
 
Thanks,
 
Bob
 
 
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/8/2008 10:51 PM (GMT -6)   
Bob,
I think I can answer part of this. I have seen people come and go from here. We have lost some to this disease, but that is only occasionally. May they rest in peace. Most leave the way we would all like ~ healed from their treatments and with much hope ahead. Some have left and come back to say hi. Some have come back for other reasons. The beauty of this site is you are always welcomed in peace. We have all been blessed with a place to go to talk about what you might think no one else would want to talk about. No matter where we are in our fight against this disease ~ we have each other.

I am very sorry to hear about your friend, family member, and your mother. I too recently lost my mother in 2008 to cancer. It's bad enough to get into a brawl with cancer but then to have to mourn the loss of someone close.

I wish you the very best results with your surgery. Be patient and get well. I sure was nice for me to have my Ruthie beside me every step of the way. Some of the guys don't have a wife or were forced to go it alone, and I feel for them from my heart. Again this site helps us through so much...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/8/2008 11:45 PM (GMT -6)   
Awww, thanks Bob!

These days I haven't so much to add. There are so many other equally informed folks who can add to the mix.

I've seen this forum grow for going on 4 years now I think. It holds a wealth of good information. What a treasure it is to have such support for incoming visitors/members and for the folks like myself, who can't seem to let a good thing go! If I'm still here at 5 years, please kick me out! lol

Swim



Swim
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 12/8/2008 11:49 PM (GMT -6)   
Hey Gang,
 
Swim didn't really mean it!!!
 
Jim

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/9/2008 12:01 AM (GMT -6)   
Vicky,
That is out of the question. I'll let someone else do it. I'm too afraid to...LOL...(Psst...Jim, are we covering for Vicky or protecting the masses?)
 
turn

Tony


GreenAcres
Regular Member


Date Joined Jul 2006
Total Posts : 474
   Posted 12/9/2008 8:00 AM (GMT -6)   
Hey, Swim, Biker & Tony! Ralph-Alf - We're among the semi-oldies (July '06) and check in here every morning. Gotta keep our eyes on noobs in our neck of the woods (Texas). Like Swim - we still care very much about folks just starting down this path, but for our part we're not tracking the latest stats and news as much - and those things change constantly. Others here are so knowledgeable about that.

We just passed the 2 year mark on PSAs, which following a bad path report now puts us in line with the folks who received an all clear to start with (for the most part). Our doc did not recommend further treatment at the time and our "watch and wait" paid off for us, based on personal parameters and stats following surgery.

You've had a tougher time along the way than many, but everyone here is ready to continue this entire journey with you from here to beyond.
Husband: Age 67
PSA had doubled in 14 mos to 4.3/Gleason 6
da Vinci 8/06 in Austin with Dr. Randy Fagin
Post surgical path shows encapsular penetration; possible bladder neck involvement.
PSAs remain undetectable; no further treatment at this time.
Next PSA: April 08


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 12/9/2008 11:27 AM (GMT -6)   

Just checking in....

Hi'ya all - Just wanted to take this opportunity to thank you all again. This is a great forum. I haven't posted for a little while but I have been lurking here a lot.

So far everything's going great. I'm a bit anxious about my 3 month post LRP PSA test coming up end of Dec. but I'm hopeful for the big 0.

Just wanted to add my voice of appreciation.

Hangin


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 12 core 4 Positive 15%,15%,8%,3%
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report stage T2c organ confined with positive apical margin Gleason 3+3 = 6 (with tertiary grade 4)
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems from the get-go.
First post op PSA 10/2/08 < 0.05


Roger G
Regular Member


Date Joined Apr 2008
Total Posts : 150
   Posted 12/9/2008 1:42 PM (GMT -6)   
Hiding in the woodwork smilewinkgrin
 
Curred?? I'll concider using that work somewhere around the ten year mark.
 
After awhile life goes on.  I'm currently involved volunteering for a minor hockey association.  Would anyone like to sponsor a team btw idea
 
Roger
Age: 43 (2008)
DRE Small Ridge on prostate, PSA 1.5
07/2007: Diagnosed cancer, T2c, Gleason 3+4=7
08/2007: Bone Scan found something on my skull. PCa surgery on hold
             Had piece of skull removed to test for PCa.
09/2007: Laparoscopic prostectomy @ Hamilton General, 4 hrs.
             Both nerve bundles spared
             Pathology Report: Tumour confined w/in prostate
             T2c, Gleason is 3+3=6
             Went home with JP drain
10/2007: Made return trip to hospital.  All urine was coming out JP drain.
10/2007: Catheter removed. Next to no leakage
11/2007: 1st PSA <.003.  Started Viagra for ED, no response yet.
             Having some issue with Vertigo from skull operation.
12/2007: Had confidence to go padless!!!!!
12/2007: ED:  Stopped Viagra as it's causing hemroid problems.
01/2008: 2nd PSA <.003 :) ED: next to no response.
             Vertigo is subsiding.
04/2008: 3nd PSA <.003 :) ED: Changed the Viagra prescription.
07/2008: 4nd PSA <.003 :) ED: Still NADA.  Changing to Cialis.
             Dizzy spells are occurring more often
09/2008: Trying Levitra
11/2008: One year mark and PSA <0.03.  Hemriod/Bleeding problem has been solved.  ED is comming around.


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 12/9/2008 4:21 PM (GMT -6)   

I'm glad all that are here...are here. And I agree that those who have moved on successfully or have had problems, please post and let us know. I'm new here and my days now start and end with...simply being scared. Being informed is vital. I'm not yet informed enough.

Mikey 


 
Lower left groin hernia; mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum), brought me to my knees, severe, chills, sudden oncome, 4-6 Tylenol Extra Strength at once to even make a dent in pain. Septra/Bactrim for 8 months for diagnosed prostatitis previously.
PSA start of 08: 5.3
PSA June of 08: 7.3
TRUS Biopsy Nov 08: Got copy of pathology recently (see below)
 
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes
1) 30%, GS 3+3, perineural invasion identified
2) 40%, GS 3+3
3) 60%, GS 3+3
4) 65%, GS 3+3
5) 30%, GS 3+3
 
Open RP recommeded. Looking at nerve sparing da Vinci in London, Ontario.
Married to girl of my dreams. Been together almost 36 years. Married since '77. Very much still in love...what a wonderful woman. Beautiful physically and spiritually...
I'm 5'10" about 180 pounds. 44 chest 32 waist...still wearing pants from over 10 years ago.
In pretty good shape for what is now called an old fart.
1st Grandchild due any day. Wife is out of town with daughter of 1st grandchild.
Anxiety still high as of Dec 8/08
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 12/9/2008 6:03 PM (GMT -6)   
Greetings everyone.  I am indeed alive and well and continue to read posts from time to time.  I typically leave the posting to others since I am now at the one year mark post diagnosis and coming up on one year post surgery.  This forum has been a great help to me in providing information and also in giving great encouragement.  For that I will always be very grateful.  I'll post occasionally when I have something to add but for the most part it seems the forum is in great hands with the new folks who are doing a great job in responding.  Blessings!  David

Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 12/9/2008 6:55 PM (GMT -6)   
Hey Bob, you old rascle you! It's good to hear from you and know your OK. As for me, I still pop up here once in a while but do more reading than writing. I passed 5 years this pass fall and thst felt pretty good but other than that I'm just trying to enjoy my second chance or is that my 99th?
Your old friend,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 12/9/2008 7:10 PM (GMT -6)   
Hi guys. Still here. I could never forget all of those who have helped me deal with the disease. I look at the forum every day I can get to the computer and sometimes add some comments. Good luck to all and I'll see you later down the forum.

Mika
age at dx 54 now 56
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
Tossed the pads this spring
ED still a problem
first year PSA less than zero
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/9/2008 8:47 PM (GMT -6)   
I consider myself "over the hump" with this disease and the side effects of my surgery. But I have found some great friends here. I plan to continue to be a regular poster mostly for the "Leakers" since that was my biggest issue.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


smilingoldcoot
Regular Member


Date Joined Jan 2008
Total Posts : 338
   Posted 12/9/2008 9:15 PM (GMT -6)   
I have not been around a lot the last few months. I finally started on a antidepressant and my mental state seems to be better.  I have returned to role playing for the Army at Fort Polk helping to train soldier for Iraq and Afghanistan.  Dealing with PCa has given me a new perspective of how the young folks I see in training might view what they face every day in their assignments to a war zone.
My first 3 month PSA was less than .1 and I just had my third Lupon shot today. I feel good except my legs have become  very weak. I have difficulty standing or walking for very long. Sometimes going up steps give me problems. My Docter thinks it is my back and degenerative disks and has scheduled me for an MRI on Thursday.  It is hard to get the thought that PCa might be causing my problems out of my mind.
My heart has started to go into A-Fib more often but continues to return to normal rhythm on it's own. A change in some medicines seems to be helping.  Time will tell.
We are off till middle of Jan so will spend Christmas with kids and grandkids in Texas.
I wish everyone a Merry Christmas and a Happy New Year. 
 

Retired USAF Richard & Debbie on The Shores of Toledo Bend Lake Louisiana
Biospy 1/10/08 Gleason 10, Stage T1C  8 of 12 samples positive all Less Than 5% 
Suspected lymph node involvement
Lupron & Casodek May 08 for 2 years
Completed 25 IMRT and 17 PBRT U of Florida Proton Therapy Institute 7/24/08
Latest CT showed no trace of tumor in lymph node area
7/24/2008 PSA .21, free PSA .08, Percent free PSA 38.1, testosterone 14.6
8/1/2008 2nd Lupon Shot
10/27/2008 PSA <.1
12/9/2008 3rd Lupon Shot
Turn Stumbling Blocks into Steping Stones and Keep Smiling
Our Journey is on WWW.GLEASONSCORE10.COM
 


nathon
New Member


Date Joined Dec 2008
Total Posts : 10
   Posted 12/10/2008 5:47 AM (GMT -6)   
Good journey.

maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 784
   Posted 12/10/2008 5:00 PM (GMT -6)   

Hi everyone, I don't post much nowadays,as at the moment I am stable, feeling well and enjoying life, nothing much to report until next PSA,  I keep up with all the posts on this site, I always will, as I have recieved the best advice and help from you all.

Merry Christmas. Mal. tongue tongue


age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7  right side tumour adenocarcinoma stage T2a
RP on 30th July,
Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck, free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.
 
Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)

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