Posted 12/29/2008 3:41 PM (GMT -7)

David,I went through the worry part of this cancer and still do at times. The thing that works for me is the fact that this cancer is getting the attention it deserves and that there are some very good things happening for all of us. Tratments are getting better and men like you I and others are living longer with this cancer. This site has given me a lot of information about people who are surviving longer and able to live out there lives. That's good to hear. When I hear some tell of someon else who is surviving, I feel better. This disease, even at an advanced stage is treatable. As far as I'm concerned the medicine chest is full of therapies for all of us. Picking the right Urologist is the key to getting to the medicine chest.

Keep the faith, I am.

Posted 12/29/2008 4:34 PM (GMT -7)

David, As a spouse, this is only the second time I've posted on this site, but I read it a lot and am certainly familiar with you and everyone else who posted a response to your question.  I feel like I know you all.  I think your question is right on the mark, at least in my experience.  Survival is something that I worry about every single day, particularly with a gleason 9.  I want to grow old with my husband, plan a future, retire, travel, enjoy grandchildren, and now everything is in turmoil because we simply just don't know where this thing is going, and the statistics aren't so great for us.  I feel sometimes like we're playing with dynamite, so I don't look at statistics any more.  They're all over the board anyway and drive me crazy.  As members of this site advised me before, the worrying does ease with time, but never goes away.   My husband's internist told him he didn't think this was a death sentence.  I'm holding onto that, and any other positives.  Since the statistics aren't great, I ignore them.  My husband and I were talking today, however, and even in spite of everything that has happened since last summer, we both agree -- we've had a pretty good year, considering what might have been.  Hang in there -- you certainly have a right to be down after living for 32 days with a catheter.  I hope your appointment on Monday goes well and you and every member has a very happy, healthy and safe New Year.


Diagnosed Gleason 8, July 2008. Tumor left side only.

open RRP, Johns Hopkins, September 2008.  One nerve spared on right side.  Home the next day.  Back to work in 3 weeks.  Exercising after 5 weeks. 

Pathology:  Nodes, vesicles clear.  Upgraded to Gleason 9.  Negative margins.  Some extraprostatic extension. No further treatment for now. 

First PSA .1 -- after 5 weeks.  Dr. says this is undetectable based on the assay used, but I wish it was zero or "less than."  Whatever.  We will look at the trends, just like everyone else.  Next PSA will be early March. 

Dry from the day cathether was removed on day 9.  No problems at all except if he drinks coffee.  ED is an issue, but we are starting to see some slow and rather inconsistent progress with meds.  Surgeon says based on progress to date, he is "confident" that after a year, he will have full function restored.  I really love that word "confident" --- it's the first time he's used it in connection with our case, that's for sure.  Amazing how one hangs onto a hopeful word or two.



Posted 12/29/2008 4:55 PM (GMT -7)
Amazing how one hangs onto a hopeful word or two.
I agree. It is amazing how all of us can hang onto a few simple words.
Keep the faith
Posted 12/29/2008 5:31 PM (GMT -7)

David--Based on your pathology statistics, you have an excellent prognosis!  "Organ-Confined"  has the best odds for long-term survival. 


PSA quadrupled in 1 yr (0.6 to 2.5)  
DRE neg  1 of 12 biopsies pos (< 5%) 
Open surgery June 06 at age 57
Organ confined to one small area Gleason 5   
PSA's undetectable  < 0.1  

Posted 12/29/2008 5:56 PM (GMT -7)

By looking at your stats it is reasonable to say, the size of your prostate may be a God send, lending to what appears to be very promising pathology report. Here's to hoping these things add up to be to be one of 2008"s luckiest ducks. A smaller prostate would not have faired up as well......Cheers! :>)


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