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Sam Benton
Regular Member


Date Joined Dec 2008
Total Posts : 35
   Posted 12/12/2008 4:46 PM (GMT -6)   
I had DaVinci on Nov 3rd. and today was the first day that I tried the pump and a full dose of Cialis, with very disappointing results. I hate that pump, it's pretty uncomfortable.  With Cialis and considerable stimulation I was not able to get an erection.  I did have some elongation of my penis but nothing I could work with. I know we all react differently to different stimulus, but somehow you just hope you'll take the pill and bingo you'll be hard. Like I said rough day!

Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 12/12/2008 5:02 PM (GMT -6)   

Hi Sam.  Sorry to hear you had a rough day.

I know a few guys say they were able to get erections when the catheter was removed, but for the  majority of us I think it takes several months.  It took me about 11 months, and I've seen that time frame referenced by others.

I thought I'd be able to rally the little guy by sheer willpower, but that was not to be.  It can be frustrating.  I feel your agony.

Dave


Age:54
PSA 5/22/06: 5.6
Divinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/12/2008 5:03 PM (GMT -6)   
Sam, sounds like my first time.  Yes, not everyone has success the first or even 100th time. It is disheartening to want it and have it not happen.  Time and practice will help.  Yes, the pump is uncomfortable, I still hate mine, after 16 months.  It is a task to use it daily, but I make myself do it, hoping it will help eventually.  What you must remember is to keep up a regular schedule of pumps, pills and pull (manual stimulation), maybe even injections later on.  turn If the cost of the Cialis is prohibitive, there is the generic Levetra and Viagra available for the long term use.  In the meantime, don't give up, or crash into the dumps.  You are very early in the process and have lots of time to get it back...
James C.
Co-Moderator- Prostate Cancer Forum
Age 61
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
Present- 1 year: ED- Viagra, pump continues, no response- Trimix ..35ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/12/2008 5:04 PM (GMT -6)   
Sam,

Sorry for the disapointment and rough day with the ED. With a non-sparing operation like mine 4 weeks ago today, I have no expectations in that dept anytime soon. Hope things improve for you soon.

David
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 12/12/2008 5:21 PM (GMT -6)   
There is a learning curve with the pump, and it takes you and your anatomy some time to get used to it. If you use constriction bands, it takes a while to find the right amount of constriction -- enough to keep it up, but at the same time to not hurt. The pump will work without Cialis.

So I suggest at this early stage, no constriction, and just pump up enough until it starts to feel uncomfortable, then ease back. You should find you can go a little further each day -- but don't go much beyond your old length.
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week and 7-month PSAs: 0
Bimix injections working well 


Sam Benton
Regular Member


Date Joined Dec 2008
Total Posts : 35
   Posted 12/12/2008 5:59 PM (GMT -6)   
Thanks for the encouragement, sometimes it just a good feeling to know your not alone out here.
Sam

Age 57
PSA 4.6
Gleason 3+3
Davinci Nov 3, 2008
Confined to organ
Margins clear

apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 12/12/2008 6:08 PM (GMT -6)   
I hope you don't too discouraged too soon.  As you have read some of us get natural erections very soon and some of us never get them back.  The important thing is all of the choices you have in the event you end up in the latter category or somewhere in between.  I am a happy user of Trimix.  It took awhile to get it right but now I do great.  I still use VED for therapy 2 or 3 times a week just to keep the blood flowing.
 
It takes a while to get past the scared phase, then comes the pissed off phase, but hopefully you will get back to the life is good stage soon.  Best of luck to you.
 
 
Age 54 at Dx.   Currently 58
Jly 05- PSA 8.1
Sept 05- PSA 10.7
Sept 05- Biopsy revealed 9 of 12 cancerous, Gleason 3+3=6, T2 stage
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- Surgery for bone biopsy.  Pathology showed benign growth, no cancer in bones. Who ever thought I would be happy to only have PCa?
Nov 05- PSA 15.4
Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, SLC, UT by Dr. Robert Stevenson. 
Home after 3 days.Cath out at 2 wks.
Incontinence gradually improved for about 3 months to 100% continence.
ED- Tried the big 3 pills with no results
Feb 06- PSA undetectable, Started VED which worked but caused discomfort with constriction rings.
May 06- PSA undetectable, Dr. gave me an Rx for Trimx injections. They work great.  Still use VED on off days without constriction for therapy.
Aug 06- PSA undetectable 
Nov 06, May 07, Nov 07, May 08, Nov 08 - PSA undetectable
ED appears to be perminant but doing great with Trimix.


lifeguyd
Veteran Member


Date Joined Jul 2006
Total Posts : 681
   Posted 12/12/2008 7:42 PM (GMT -6)   

I have been around this site for over two years now.  I am constanly reenergized by the outreach and help from people here... both old timer and recent. I stay around because I benefit from the positive information that , just like new members, just keeps on coming.

and Sam...We know how you feel.  Things will probably get better and you can then tell your story to someone else a few weeks or months from now. 


PSA up to 4.7 July 2006 , bump noted during DRE
Biopsy 10/16/06
stage T2A  -  Psa 4.7
Gleason  4+4=8  right side
DaVinci Surgery  January 2007
Post op confirms gleason 4+4=8
No extension or invasion found
No continence problems
PSA 90 day (-.01)  , (6 month -.01) , (9 month +.02) , (1 year +.02) ( 18 months +.02)
ED still a problem, minor succces with bi-mix
plaque buildup due to injections 
 
 
 


Bob D
Regular Member


Date Joined Mar 2008
Total Posts : 199
   Posted 12/13/2008 1:00 AM (GMT -6)   
It is still early in the game Sam.
I know it is easier said than done but try not to be discouraged.
There was a lot of trauma down there.
After it heals with luck you will be just fine.
 
 
    1. Age 59, psa 4.7 in Jan. 08. Biopsy: one positive sample out of 13. 1% of one sample cancer. Prostate removed on 3/5/08. Open Surgery. Northeast Georgia Medical Center, Gainesville Ga. Nerves spared. Cath out 12 days later. Continence good. No pads needed since 6/10/08. First PSA: Less than 0.1 on 6/17/08. First erection five days post op and have been improving well since then. Full erection now possible (less than four months post op) with the assistance of Cialis.  Post Op Biopsy : No malignant cells in lymph node. Gleason 3=4=7. Tumor on both lobes. Urethral margins/apex free of neoplasia. Right and left seminal vesicles free of neoplasia. No invasion of prostatic capsule of the resection margins are noted by the tumor. Tumor occupies 10 to15% of the prostate gland. Path staging T2c, NO, MX- Group staging II.  Focal areas of perineural invasion by tumor are noted. 80% natural erections and full erections with 10mg Cialis. 9/22/08-Took 10mg Cialis on Monday night, had very usable full hard erection at night, the next morning, and the following Thursday morning, 60 hours after original dose !! Orgasm quality Excellent.!!!!! I am pleased with the progress so far. Married to same wonderful woman for 39 years. She is still beautiful and sexy as ever. A great help in my recovery !!:

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