Almost a month since the Open RP bad pains ?

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Regular Member

Date Joined Dec 2008
Total Posts : 22
   Posted 12/14/2008 2:38 PM (GMT -6)   
 Well it has been almost a month now since my  open rp and well I must say I have felt a hell of alot better  before .
 I  know the doc said it will take time , this I know   but I am going nuts here  with the growing pains, I dubleup feeling like someone has Kicked me a few times , then the loss of controle , I have stock now in Depends lol I use 6-9 pads a day and 3-4 underwear this is nuts , when I walk I go  when I try to go nothing , I do the kegals but no good ?
 I use to have the growing pains before but when I would have a orgasm it would go away , now I can not have one and this hurts like hell .
 I have very bad back problems and take 4  40 mg Oxycontin and 6 5mg/325mg Percocet a day for my back and I still feel the pain in my growing , does  or has anyone gone through this ? if  so does it get better ?
 Please let me know
 Thanks for your time  and input
 I am 42 years  young
Psa 11.6
gleasen 4+3=7
Catscan-Neg but for a cyst on liver
Bone scane - Neg
11 out of 17 bio tests came back pos full rt side agressive cancer lft side  core  had 2 bios  pos
had the open RP on Tuesday November 18th of 2008 at 7:45  am , finished at 1:30 and took the 3 pts of blood I gave .
 At Kaiser Sunnyside  in Oregon
Performed by Dr Matthew Forsyth
 Came home on 11-21 , cath and staples out on 12-01
now the real work begins

Elite Member

Date Joined Oct 2008
Total Posts : 25393
   Posted 12/14/2008 4:14 PM (GMT -6)   
Hello Ron,

You had your open rp 4 days after m open rp. I experienced the pain you talked about for the first two weeks at home. I feel very little incision or internal pain at present. I see you cath came out in 3 days, that is amazingly fast. I am going to the dr. in the morning to have mine finally removed after 32 days. I can't hardly wait. Then I will have to see where I stand on the incontinence department. My dr. suggests that if you had real strong bladder control, which I always did, before hand, it shouldn't be much of a problem, but I will have to wait and see. I hope you feel better soon, and some of this pain will ease for you.

Age 56, 56 at DX
PSA 2007 5.8
PSA 9-2008 14.9
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin

Veteran Member

Date Joined Apr 2008
Total Posts : 1382
   Posted 12/15/2008 8:59 AM (GMT -6)   
Hey Ron sorry you are having so much difficulty. From all my readings and studies I do believe it gets better. I had an RP with a lymph node disection but for me it was failed because of the spread so I still have a prostate. I never went through the incontinence but I sure had some pain and bowel problems. The things we have to go through with this crazy disease.
Please keep me posted as to how you are feeling.
peace and love
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores

Regular Member

Date Joined Jul 2006
Total Posts : 202
   Posted 12/15/2008 2:32 PM (GMT -6)   



Sorry to hear you're experiencing so much pain.

Not sure if this applies to your situation, but I've had sciatic nerve pain for years as a result of either entrapment of the nerve by my butt muscles or imbalance of the muscles in my pelvis.

When I came out of surgery, my sciatic nerve pain was quite intense.  I think the intensity of the pain was a result of the way I was positioned during surgery.  It took a while to get back to my pre-surgery level of pain.

Your pain sounds different than mine though.  My pain is in my butt, literally.  But your back pain could have been aggravated by how you were positioned during surgery.


PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.

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