If it's feasible, I highly recommend Dr. John Araujo MD, PhD in the Genitourinary Clinic at M.D. Anderson Cancer Center in Houston. When I gave up on my local oncologist, I contacted MDA and asked them to recommend one of their doctors to me. As it turns out, one of our other posters here swears by him and the two of us have convinced a third to see him. His appointment is this Thursday.
M.D.Anderson has been rated the #1 cancer hospital in the U.S. for (I think) 7 years in a row by U.S. News and World Report.
Dx PSA 26.5 Gleason 7 (4+3) @Age 611/2005
Start Casodex and Zoladex
PSA drops to <0.01 7/2005-8/2005
5 weeks of IMRT and then HDR brachy1/2007
Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT1/2007
CT scan of pelvis picks up a nodule at bottom of left lung5/2007
CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.6/2007
Thoracic surgeon removes wedge of left lung for biopsy6/2007
Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.8/2007
2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 272/2008
Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.6/2008
Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.9/2008
Interim bone and CT scans show progress vs. scans done before beginning trial. I'm cautiously optimistic. Next scans 10/30/08.10/2008
Bone and CT scans continue to show improvement. Med onc attributes mostly to Taxotere/Prednisone while I believe majority of progress attributable to investigational drug, Sprycel.
Post Edited (Gordy) : 12/16/2008 9:45:42 AM (GMT-7)