Big Set Back - Day 33 - New Catheter Back In

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/16/2008 2:39 PM (GMT -6)   
Sorry guys,
 
My elation of having my cath out after 32 days didn't last for long.  Sometime in the middle of the night, the flow stopped.  By 0730 this AM, I was already in severe pain.  Wife took me to dr. office as an emergency at 1030.  They did a scan of the bladder, and in the end, one of the other surgeons put in a brand new catheter.  They are not sure what went wrong in less then 24 hours, they will be consulting with my surgeon this afternoon and then calling me later today.  I am sure I will have the new catheter at least a full week, if not more.  I won't lie, by 1100 today, I was at pain level 10 with no let up, not even for a second, as my bladder was full and no way to go.  The doctor wasn't certain he could get a new catheter up there, but thankfully, it worked on the first time with little pain (they put some kind of pain killer jel on my winky first), a lot of pressure, but not really any pain.  Within 30 seconds of it being put in place, already dumped out 550 ml of urine and almost immediate relief. Backhome, took some meds, and resting.  My thanks for my wonderful wife for being there all the way, as usual.  I am learning fellow sufferers, there's no such thing as normal in the wonderful world of PC that we share.
 
David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4183
   Posted 12/16/2008 2:44 PM (GMT -6)   

Hello David:

So sorry to hear about your setback.  I've followed your posts over the past several weeks and was elated when hearing about getting that darn catheter out after 32 days.  I'm sure you must be discouraged with the new problems but hang in there.  As you have seen from so many others on this forum, eventually it works out great for most people and I know it will for you.


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
27cc
Brachytheraply volume study done on 11/14/08
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort. 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/16/2008 2:47 PM (GMT -6)   
Yes, won't lie, was a big and totally unexpected set back, but right now, this cat bag is a friend and relief from the horrific pain I was in this morning. I am hoping one day. all of this will make some sense to me, and to think, before September, I didn't even know I had cancer. Thanks for your concern and care.

David
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/16/2008 2:50 PM (GMT -6)   
Hi David,
I am very sorry to hear you have had such a time with your post op healing. You are a very rare case. I know that doesn't help much but it's true. It was a great move on your wifes part to not delay bringing you in. The girls tend to have better instincts on these things.

You are very right about how this disease affects all of us differently. I have been watching here for two years now and so many different cases.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 12/16/2008 2:56 PM (GMT -6)   

David,

I too have been following your post and was looking forward to reading good news today.  Sorry about the temporary setback.  I hope that soon the cath will be gone for good.  Hang in there, it really does get better.


Age 54 at Dx.   Currently 58
Jly 05- PSA 8.1
Sept 05- PSA 10.7
Sept 05- Biopsy revealed 9 of 12 cancerous, Gleason 3+3=6, T2 stage
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- Surgery for bone biopsy.  Pathology showed benign growth, no cancer in bones. Who ever thought I would be happy to only have PCa?
Nov 05- PSA 15.4
Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, SLC, UT by Dr. Robert Stevenson. 
Home after 3 days.Cath out at 2 wks.
Incontinence gradually improved for about 3 months to 100% continence.
ED- Tried the big 3 pills with no results
Feb 06- PSA undetectable, Started VED which worked but caused discomfort with constriction rings.
May 06- PSA undetectable, Dr. gave me an Rx for Trimx injections. They work great.  Still use VED on off days without constriction for therapy.
Aug 06- PSA undetectable 
Nov 06, May 07, Nov 07, May 08, Nov 08 - PSA undetectable
ED appears to be perminant but doing great with Trimix.


DoingFine
Regular Member


Date Joined Sep 2008
Total Posts : 46
   Posted 12/16/2008 2:57 PM (GMT -6)   
David

I'm sorry to hear of your trouble.

The same thing happened to me . . . only it was just a couple of hours after the first removal. Although I try to forget, I remember the pain quite well. As it happened, during the emergency procedure, in the room was the male doctor and a male and female nurse.

All I can say is: When I went back the 2nd time to have the catheter removed I apologized to both nurses . . . I realized during the procedure I was firmly grabbing the "back-side" of one of them (I have no idea which one).

Fortunately they all laughed.

In my case there was a small "flap" that was blocking urine flow. The doc told me it is uncommon, but happens.

Since the catheter was removed the 2nd time, all has been well.

I should tell you, at least in my case . . . because of the way the 2nd catheter must be inserted, it is of a slightly different shape and made of different material.

The first was made of silicone, the second of latex. The 2nd catheter gave me quite a bit more trouble than the first.

I found that lubricating the catheter where it enters the penis was much more critical. (lots of KY jelly) I also found it very helpful to better secure the catheter to my leg.

Of more concern was the shape of the catheter actually inside the bladder. Whatever the new shape was it caused a bit more trouble and my bladder spasms were more frequent (even thought the balloon size was smaller). It was very very important that I kept up with the bladder spasm control meds (Detrol).

I wish you the best.

Cheers,
Rich
Age at dx: 51 Age now: 52
Great health: Riding bike 200+ miles weekly; no symptoms
First PSA: 4.7 March 2008 (bummer)
Second PSA: 4.97 June 2008
Biopsy June 2008
Positive 5 of 12 cores (real bummer) T1c
Gleason 3+3
Bone scan: 7 July negative
RRP surgery 3 Sept 2008 at the Mayo Clinic: Rochester, MN
All clear
Catheter out 22 Sept 8:30 AM, catheter back in at 11:30 (not happy)
Catheter out 30 Sept (this time for good!)
Total continence, no erectile difficulties from day one (Cialis 10mg daily)
Back on bike 15 Oct. (42 days . . . with doc's approval)
Dec. 2 2008 psa Undetectable!


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4835
   Posted 12/16/2008 3:04 PM (GMT -6)   
David - were you getting what's a ma call it -> cystograms done along the way? I had my cath in for five weeks but doc was certain I'd stopped leaking internally and it was safe to remove.

Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3218
   Posted 12/16/2008 3:04 PM (GMT -6)   
Greetings David. So sorry my friend to hear of the recath. As my wife wife tells me so often one day you will look back and laugh about it. I am pulling for you. Stay up!! Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 12/16/2008 3:07 PM (GMT -6)   

 

..daggonnit! Sorry to hear this Dale.  Hang tuff man...you'll get there..


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08, Bladder Sling installed, hernia repair 
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
 
           ..."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/16/2008 3:10 PM (GMT -6)   
Steve, I don't know what a cystogram is? My original cath was in for so long, because dr/surgeon was concerned about heavy scaring with the bladder neck/uretha connects, something like that.

Rich, the dr. today said not to take the spasm med I'd been on, unless it starts acting up, said it was better for bladder strength if you don't need it. I have a nice velcro leg strap for the cath this time, instead of all the endless tape and stuff I had on the first one for a month. Cost a little bit, but worth it.

David
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 12/16/2008 3:37 PM (GMT -6)   

Sorry for your troubles. I had a similar situation and I can remeber the pain very well. It was awful!! It was reinserted for several days and everything worked out ok after that. Now I look back at it as a little blimp in the road to recovery.

I wish you all the best!


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 12 core 4 Positive 15%,15%,8%,3%
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report stage T2c organ confined with positive apical margin Gleason 3+3 = 6 (with tertiary grade 4)
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems from the get-go.
First post op PSA 10/2/08 < 0.05


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 12/16/2008 3:41 PM (GMT -6)   
We all have sense of ownership with you in this as we have been following your journey. I too am irritated you are having this temporary setback. It is troubling but I am convinced you will soon get through this rough time. In doing so you will be a great source of information for others on their journey. Hang in there!

RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/16/2008 4:04 PM (GMT -6)   
David, really sorry to hear you having to go back for a while, but you still got lots of go-forward room ahead of you.  As much as we complain about the cahteter, it just takes one episode of your experience to make us realize just how much it helped us and made our recovery more pain-free and pleasant, huh?

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 12/16/2008 4:38 PM (GMT -6)   
Wow. So sorry to hear the news, but hope things start turning around soon. They will. Hang in there and keep us posted!! All the best to you and your lovely wife!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/16/2008 4:44 PM (GMT -6)   
James C. - how right you are, one has to be careful what one complains about, as much as I grew to hate the cath, I would have paid any price this morning to have it instantly back in. My wife thinks now I understand a little bit about pain i.e. childbirth 3x. I think I believe her too. When my doc. gets back to me, I am hoping that he tells me perhaps another week or two of healing with the cath. will do the trick. I don't think I could handle anything more serious at this point.

Mostly disapointed, I was going to be driving again this week, and wanted to run errands for my hard working wife to make things a little easier for her.

Thanks one and all, we have a great brotherhood here, and I will always appreciate that.

David
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4835
   Posted 12/16/2008 4:57 PM (GMT -6)   
A cystogram is the $800 xray where they fill the bladder and then scan it to see if it leaks....I'm guessing you're still leaking inside and thus the

abdomen cavity fills up and causes major pain.


Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 12/16/2008 5:17 PM (GMT -6)   
I hate to hear about the set back, David. I wouldn't know any of you guys if we passed on the street but feel like we are one big family. I read your post yesterday and coul'd not have been more happy.  I said to my wife yesterday, "hey David got his catheter out today is has been dry so far"! She said "who's David"?  I said, "you know, the guy on the forum".  She was happy too.  Then she asked about some of the other guys I tell her about.  It's funny that we can feel so good about the positive news and so sorry and sad when one of us has a set back. Hope this issue is short lived.


Age 50
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00

Post Edited (coxjajb) : 12/16/2008 5:12:20 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/16/2008 5:20 PM (GMT -6)   
Steve,

Thanks for the explanation, didn't know that. They mostly think that due to all the scarring between the bladder neck and the uretha, it wasn't open fully enough once the cat. came out, that was one reason why they left the original cat. in for so long. Still waiting to hear from my dr. to see what the new game plane is.

David
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/16/2008 6:08 PM (GMT -6)   
Oh, How Pete knows what this is like. We had to go to the emergency room on a Sunday with horrible pain and a blockage....at the ER with a new doctor, and because he had a sling in place, and the doctor didnt know what it was, he waited for an operating room. Pete yelled at him, and said Im going to yank the Blankey blank....thing out right now...Im in hell!!!!!!!!! It is just horrible what ER doctors don't know about catheters.....Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/16/2008 6:21 PM (GMT -6)   
I just read to Pete what I had written, and he suggested, because he has had a few blockages,.. that now:::..He always, now keeps a syringe (with no needle) so that he can draw out the still water in the catheter bulb and pull out the catheter himself. All of this occurred because of extensive radiation damage. That was with the Catheter... He does not have a catheter now....but: Now he has an AUS implanted, but he carries the instructions to deactivate that....because he doesn't trust any new medical person anymore. Di
Husband Pete
dx Jan 2001 age 67 gleason 4 + 3 PSA 16.5
seed implant and conformal radiation Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06
Fistula operation 2/07 MSK
Many cystoscopies and ER visits with strictures
catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/07
AUS Operation at MSK Sept 8. Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/16/2008 9:55 PM (GMT -6)   
Purg, I know exactly the pain you were in. The day after my surgery my cath was blocked by a blood clot. I have had a ruptured L 4/5 disc and that was no match for the bladder pain from a blocked cath.
I wish you well,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 12/16/2008 10:05 PM (GMT -6)   
Oh man, Dave! We all thought you were out of isolation, but this disease is one cruel mistress. Hope things go a lot better for you the next time it comes out. But as Tony said , it is rare. All sorts of setbacks occur here and I'm sure you will conquer this one. Go get 'em, Tiger.

Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/17/2008 8:25 AM (GMT -6)   
Well, I did get a good night sleep last night, after the pain and trauma of yesterday, I am thankful for that. Never did hear back from my doctor's office yesterday, nothing unusual about that. If I don't hear something by early afternoon, I will be calling them. I do need to know the new game plan with the cath. back in, what they think happened, what they want to do next and when. For now, though stuck at home alone again and not able to drive, I am trying to just chill and deal with it. I sure don't want them to take out this new cath without some kind of test in the office to make sure that I can evacuate fluids properly, not that little dribble at a time I was during my one day of freedom. Well best wishes to one and all. Hard to believe Christmas barely a week away.

David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4835
   Posted 12/17/2008 9:03 AM (GMT -6)   
Ask your doc about->
 
Cystogram
A cystogram is an x-ray study of the urinary bladder. The study places a catheter into the bladder, and is used to place an x-ray dye into the bladder. The dye allows the bladder to be viewed under x-ray fluoroscope. The radiologist will interpret the report and send the results to your doctor. Your doctor will discuss the results with you. If you are a woman of childbearing age and think you may pregnant, tell your doctor or the technologist prior to the test.
 
No special preparation or restriction for this exam.
The technologist will take a preliminary x-ray of the abdomen. A nurse in the radiology department places a catheter into the bladder. The radiologist supervises the flow of x-ray dye into the bladder under the x-ray fluoroscope. Once the bladder is full, x-rays are taken. You may be asked to move from side to side so all parts of the bladder may be seen.Catheter is removed. You may be asked to urinate on the table in a basin or urinal so the radiologist can see all the structures. If you are unable to urinate in a basin or urinal in the procedure room, you will empty your bladder in the bathroom. An x-ray is taken once the bladder is empty and the exam is done. Once the x-rays have been reviewed by the radiologist, you may leave.

Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 760
   Posted 12/17/2008 10:08 AM (GMT -6)   
Dave,

History repeats itself. cry

I had my catheter taken out yesterday. Like you, plumbing worked in the office. One nurse said 5% have to come back and have the catheter put back in. The other nurse, who took out the catheter, did a great job. I felt like I was on top of the world. Then I came home and read your post, so was on guard, anyway. Was peeing OK every few hours. But, like you, things stopped working during the night. Had a gradual increase in pain in the urethra, that got greater and greater. Wife drove me in. By this point it hurt to sit down, so I held myself off the car seat all the way to the hospital. Pain got up to 10, as you had. The nurse on duty was very good and understanding. We had called ahead, so she was pretty much ready for me. There was some discomfort putting the catheter back in, but it was nothing compared to the urethra and bladder pain, which was excruciating by that point. My wife and the nurse saw some clots come out that had probably been clogging things up. Put out about 400ml. In minutes I was relaxed. I told the nurse she saved my life. Later today I will call in to make an appointment and find out when the cath gets taken out again.

So Dave, I can really empathize with you. I don't know, maybe later I will feel depressed about having to have the catheter again. But right now, I'm in such relief from the pain, I don't mind it. Another week will be OK. Maybe I'll even try driving with the leg bag.

On another note, my pathology report came in. Lymph nodes negative, which is great. But I did have a "microscopic margin". I don't recall the exact words the doctor used. I gather that in one sample, it looks like the cancer may have reached the boundary of the prostate. So he said there is some controversy about what to do, but he recommends monitoring the PSA, and then consider radiation if necessary.


DJ

PS Sorry to hijack the topic. Maybe Jim can move this message if that seems appropriate.
Age 53
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day
pT2c
"microscopic margins"

Post Edited (DJBear) : 12/17/2008 8:26:10 AM (GMT-7)

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