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Veteran Member

Date Joined Dec 2008
Total Posts : 673
   Posted 12/17/2008 1:08 PM (GMT -6)   
Hi Everyone,
Saw my Uro this morning. Bone scan negative. Asked him if I could be referred to 1 of 2 surgeons at the large teaching/university hospital in London...near me, for da Vinci. That's in progress.
Hopefully, I qualify for da Vinci (hernia groin mesh) and 1 of these will now be my Uro.
I asked him twice about the pain in perineum I get and he really couldn't offer much. I see my GP Friday and will push the matter with him.
I'm barely a few weeks post Dx for Pca and it's been a roller coaster. Grateful to those that helped me and this site.
On to the next step. 
Lower left groin hernia; mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months for diagnosed prostatitis previously.
PSA start of 08: 5.3
PSA June of 08: 7.3
6 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology recently (see below).
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: waiting for results
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes
1) 30%, GS 3+3, perineural invasion identified
2) 40%, GS 3+3
3) 60%, GS 3+3
4) 65%, GS 3+3
5) 30%, GS 3+3
Open RP recommeded. Looking at nerve sparing da Vinci in London, Ontario.
Wonderful wife...and 1st grandchild on the way.

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4462
   Posted 12/17/2008 1:16 PM (GMT -6)   
Glad to hear of your good news concerning the bone scans and your progress in getting some kind of plan of attack organized.  Keep up the fight.

James C.         Age 61
Co-Moderator- Prostate Cancer Forum
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- Viagra, pump continues, no response- Trimix ..35ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 12/17/2008 2:09 PM (GMT -6)   

Good job, Mikey,
I have a friend that may be able to lend an assist.  Mike Scott is a Brit living here in the US.  He one of the top prostate cancer advocates in the world and a great guy.  He is really up to speed both here in the US and in London on the who and what to do.  I have put his personal web page on a social network he manages.


If you do contact him, let him know that I will try the stilton this Christmas.  Only after I have hammered down the

Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
You can visit my Journey at:

Elite Member

Date Joined Oct 2008
Total Posts : 25380
   Posted 12/17/2008 3:57 PM (GMT -6)   

Great news on your bone scan, that's always a good thing to hear.
Age 56, 56 at DX
PSA 2007 5.8
PSA 9-2008 14.9
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
First PSA Post Surgery  Scheduled for 1/5/9

Regular Member

Date Joined Oct 2008
Total Posts : 26
   Posted 12/18/2008 6:04 PM (GMT -6)   

Congratulations on your negative bone scan. Best of luck also on solving your pain in perineum.

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