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iefbr14
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 12/17/2008 1:45 PM (GMT -6)   
For those who’ve tried MUSE, but didn’t respond, how many times did you use it before deciding that it wasn’t effective for you? The overall effectiveness rate seem pretty low. For those who’ve used MUSE, I’d be interested in whether you knew right away whether it did or didn’t work for you, or if there are any tricks or techniques to improve the success rate.

I had nerve sparing da Vinci surgery on 10/21/08. After my catheter was removed on 10/28/08, I started taking 5 mg of Cialis, every other day. I’ve noticed some enlargement, but nothing to get excited about. I was given a 250 mg dose of MUSE at the doctor’s office, and had some limited response. I was sent home with 500 mg doses, and have tried it, after taking 10 mg of Cialis, and then 20 mg of Cialis. I don’t want to be hasty, but I don’t think it’s working for me. I also understand it’s only been eight weeks since my surgery, so I need to be patient.

But how many times should you try MUSE, before deciding if it works?

I’ve found this site to be incredibly helpful, both before and after my surgery. One of the principal reasons I’ve recovered so quickly, is that almost everything that I experienced, I had read about, before hand. There were no surprises. Thank you all, for being so generous with your first person accounts, practical advice, sympathy and support. This forum has been a blessing.

thanks
david
iefbr14 - David, NH
Age 59, at Dx 59.
Type 1 diabetic since age 31
PSA: 6/26/05, 1.92
PSA: 6/21/06, 2.98
PSA: 9/24/07, 2.89
Biopsy:10/31/2007, prompted by DRE, results normal
PSA: 5/20/08, 4.71
Biopsy:06/03/2008, positive: Gleason 3+3=6; stage T1c; either 10% of 1 core (out of 19), or 5% of 2 cores, or 25% of 1 core, depending on which pathologist you believe.

da Vinci surgery: 10/21/08, Dr. John J. Munoz, Catholic Medical Center, Manchester NH
Post Op pathology: Stage pT2c NX MX, Gleason 3+3=6, Margins negative, 44 grams
catheter out: 10/28/08, dry from day 1; 5 mg Cialis, every other day
PSA: 12/4/08, 0.01

Father died of prostate cancer in 1980 (age 59)
Brother had successful da Vinci surgery in 2006 (age 53)


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 12/17/2008 1:55 PM (GMT -6)   
David, thanks for sharing your story with us, and hang around to update us as your Journey goes along. Welcome.

James C.         Age 61
Co-Moderator- Prostate Cancer Forum
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- Viagra, pump continues, no response- Trimix ..35ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 12/17/2008 3:07 PM (GMT -6)   
I tried Muse with limited success but it was painful.  Trimix is much more effective for me and causes little or no pain.  Some guys use Bimix with very good results.  Good luck.
 
Allan
Age 54 at Dx.   Currently 58
Jly 05- PSA 8.1
Sept 05- PSA 10.7
Sept 05- Biopsy revealed 9 of 12 cancerous, Gleason 3+3=6, T2 stage
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- Surgery for bone biopsy.  Pathology showed benign growth, no cancer in bones. Who ever thought I would be happy to only have PCa?
Nov 05- PSA 15.4
Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, SLC, UT by Dr. Robert Stevenson. 
Home after 3 days.Cath out at 2 wks.
Incontinence gradually improved for about 3 months to 100% continence.
ED- Tried the big 3 pills with no results
Feb 06- PSA undetectable, Started VED which worked but caused discomfort with constriction rings.
May 06- PSA undetectable, Dr. gave me an Rx for Trimx injections. They work great.  Still use VED on off days without constriction for therapy.
Aug 06- PSA undetectable 
Nov 06, May 07, Nov 07, May 08, Nov 08 - PSA undetectable
ED appears to be perminant but doing great with Trimix.


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 12/18/2008 12:11 AM (GMT -6)   

I haven't used Muse, but based on my experience with Bimix, I suggest this:

Before inserting the Muse, put some constriction around the base of your penis -- the ring that comes with a VED or a few rubber bands doubled over. Then do the insertion and whatever massage you need. After a few minutes, remove the constriction -- I now use two minutes with Bimix.

My theory is that this stops the drugs escaping too quickly and forces them to hang around to do some good. I'm not completely convinced, but whatever the reason, it makes a big difference to me. I don't know whether it will help you with the Muse, but it's maybe worth a try.


Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week and 7-month PSAs: 0
Bimix injections working well 

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