I have been hanging around this forum for a couple of months now and wish I could have found it 3 years ago. I have really enjoyed seeing the comradery that is here. So many good men and women trying to help each other through a miserable situation that none of us wanted to be in. Even though I am somewhat of an oldtimer as far as the cancer goes, I have still learned a lot since finding this community.
I have been very fortunate with my recovery and life has pretty much gone back to normal for me except for the ED, which is the reason I went looking for a forum in the first place. I now realize that I am in pretty good shape compared to others and hope that all of you can recover as well as I have.
May you all have a Merry Christmas and a Happy New Year.
Age 54 at Dx. Currently 58
Jly 05- PSA 8.1
Sept 05- PSA 10.7
Sept 05- Biopsy revealed 9 of 12 cancerous, Gleason 3+3=6, T2 stage
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- Surgery for bone biopsy. Pathology showed benign growth, no cancer in bones. Who ever thought I would be happy to only have PCa?
Nov 05- PSA 15.4
Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, SLC, UT by Dr. Robert Stevenson.
Home after 3 days.Cath out at 2 wks.
Incontinence gradually improved for about 3 months to 100% continence.
ED- Tried the big 3 pills with no results
Feb 06- PSA undetectable, Started VED which worked but caused discomfort with constriction rings.
May 06- PSA undetectable, Dr. gave me an Rx for Trimx injections. They work great. Still use VED on off days without constriction for therapy.
Aug 06- PSA undetectable
Nov 06, May 07, Nov 07, May 08, Nov 08 - PSA undetectable
ED appears to be perminant but doing great with Trimix.