5 Week Update - Catheter Fight Continues

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25368
   Posted 12/20/2008 7:41 AM (GMT -6)   
Yesterday, was the 5 week mark since my open surgery.  As most know here, I have had a catheter in the entire time, minus the one day last Monday when it was out for 24 hours unsucesfully.  After leaving increasingly irate calls for 3 days, a nurse finally called me back Friday morning, and I have a real appt. with my real dr/surgeon this coming Monday at 0920.  For that I am thankful.  At first she said, let's make that Dec. 29, and I threw a fit over that, I said do you realize how long I have been on this cath?  She said, only since Tuesday.  I said, no dear, altogether, since November 14th.  Don't these people even read the charts?
 
She thinks taking it out didn't work because the bladder was so swollen after surgery and the surgeon had such a fight with scar tissue in joining the uretha to the bladder, she also said that believe it or not (and I dont) some people are really affected by the anetheisologist gases even that far out (5 weeks?).  She said that they have had a few men where they had to do the cath a 3rd time even.  Scary thought.  I don't feel I am ever going to get past this point in my recovery.  She said worse case, if they can't get a good natural flow, they sometimes, rarely, have to do additional surgery, I told her I didn't want to know or hear that, beyond my comprehension at this time.  A lovely week its been.
 
David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/20/2008 8:34 AM (GMT -6)   
David, hopefully your surgeon can straighten it out next Monday.  If there is a physical blockage-full or partial by tissue, then the rotor-rooter usually is done and will clear out the obstruction.  Not  as brutal as it sounds, really tongue
James C.         Age 61
Co-Moderator- Prostate Cancer Forum
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- Viagra, pump continues, no response- Trimix ..35ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 731
   Posted 12/20/2008 10:11 AM (GMT -6)   
David,

I was just about to ask you if you'd heard about your next appointment. Sorry it had to be a bad experience. Good luck on Monday (and Tuesday, and Wednesday,...). I don't buy that anesthesia argument either. If that were true, you would have had trouble in the office before you left. Do you still put out any blood clots? I had a rather big one this morning. Took a cameraphone picture in case I need to show it to the nurse. My own appointment is Tuesday. Let's not let the lightning strike twice.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day
pT2c
lymph nodes negative
"microscopic margins"


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 12/20/2008 5:45 PM (GMT 0)   
David-
Sorry to hear about your experience. Having frustrating nursing staff/dr's makes the experiences even more unbearable at times. Just wanted to let you know that I have been following your journey and wishing the best for you. Best of luck and your next appointment and stay on 'em!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


glabers
Regular Member


Date Joined Nov 2008
Total Posts : 31
   Posted 12/20/2008 12:47 PM (GMT -6)   
Man, I'm pulling for you. My wife and I update each other on your progress/setbacks, etc. Brother, I feel bad for you that that nightmare is back in you. I had mine in for 1 week and I was talking to myself after 5 days. I HATED IT! All your worries, pain and discomfort you're experiencing will subside and the many feel-better-dividends will soon come your way. It has to be. I look forward to reading those reports from you.
Diagnosed:  8/24/08, age-47
Father died of prostate cancer at age 72
PSA 1.5 early 2007, 4.5 mid 2008, all remedies tried & reduced to only 3.2, uh oh.
Biop - 2 positives of 20 samples
Gleason - 3+3
RRP - 11/13/08 via Da Vinci by Dr. David Samadi, Mt. Sinai Hosp. NY
Post op biopsy - 75% of samples positive for cancer, Post op Gleason 3+4
some lymph Nodes tested, all negative
all nerves spared - I'm told
Catheter in for 1 week, using 1 pad a day. 
 
 
 
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25368
   Posted 12/20/2008 3:28 PM (GMT -6)   
DJBear:

The whole time I've been on a cat, I think I've only seen the most minimal of blood and/or clot ever, and that was only during the first 2/3 weeks. For the most part, my output is very clear, like a very water downed lemonade.

JamesC: What do you mean rotor rooter thing? That's sounds frightening if you were being literal.

Thanks to all other replies. Wife and I just came back from my longest outing yet, 6 hours of christmas shopping, lunch out, and visiting grandchildren, with plenty of rests in between. By the time we go home, had enough of havent full length pants on rubbing against the cat. tubing and the leg bag. Just chilling now.

David
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/20/2008 6:44 PM (GMT -6)   
Purg,

Here's hoping you get a real Christmas present on Monday! Hang in there!
50 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
6 Wk PSA - 0 
So far, so good.  Next PSA in another 6 Wks
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25368
   Posted 12/20/2008 7:01 PM (GMT -6)   
Yeah Rolerbe,

Being off the cath for good, before Christmas, would be awesome. I have great faith in my dr, by still
a bit gun shy after the great pain event just Tuesday of this week. Best to you too.

David
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 12/20/2008 7:11 PM (GMT -6)   

Hi David,

I wish you the best. I hope you can get that catheter out for good...and before Christmas.

I'm early in my Dx and still sorting out info overload, to a great extent.

Thanks for your support to me and others and...

 

A heartfelt Merry Christmas.

 

Mike 


 
Lower left groin hernia; mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3
PSA June of 2008: 7.3
6 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology recently (see below).
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
 
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes
1) 30%, GS 3+3, perineural invasion identified
2) 40%, GS 3+3
3) 60%, GS 3+3
4) 65%, GS 3+3
5) 30%, GS 3+3
 
Open RP recommended. Looking at nerve sparing da Vinci in London, Ontario.
Wonderful wife...and 1st grandchild on the way.
 

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