Best or worst memories of 2008

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livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/20/2008 2:57 PM (GMT -6)   
This has been a life altering year for me as I am sure it has for many people on this forum. Even though I was diagnosed in June 2007 I really started to hit home this year. I suppose getting involved in HW and getting involved with other people battling cancer has made me realize the beauty of the life we are given and it has also taught me to never take family or friends for granted. We all have choices in this battle and for the most part I would say even when facing tough obstacles we all stay pretty positive. I would prefer to be fighting a different battle but if I did I would not have met the wonderful people here at HW. In summary, 2008 was my first full year with cancer and I can almost say I made it. I hope to make 2009 an even better year.
I hope everyone will share there thoughts on 2008.
 
peace and love to everyone
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
cancer in 4 of 6 cores
92%
80%
37%
28%
 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 764
   Posted 12/20/2008 5:50 PM (GMT -6)   
Dale,

I see a lot of folks have read your post, but no one has replied yet. Maybe it's because we're all thinking the same thing you said: The worst memory is that phone call from the doctor. But the best is discovering this forum and all the great people here. Well, that and getting good medical care.

I barely recall how I found HW. Guess I was searching around for help anywhere, and here was this interesting discussion by people who are going through the same thing.

For 2009, I look forward to easing back into work. Sounds like another topic for discussion, that people here can help out with.

Merry Christmas and Happy New Year!

DJ
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day
pT2c
lymph nodes negative
"microscopic margins"


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/20/2008 6:17 PM (GMT -6)   
Dale, I liked your post, had to stop and think before I replied.

For me, the worse for 2008, is when I had my yearly exam in July, family dr. said I was in great shape for 56, but by the way, your psa went up from 5.8 to 12.3 in a year, going to refer you to Dr. Smith the Urologist.
2 biopsies 6 weeks apart told me the dx. that I was shocked to hear.

Best for 2008, having a good family dr. that knew what was going on, sending me to a top notch urologist, having surgery in the best hospital in the state, having a wonderful loving and caring wife, and the providence that lead me to this web site. The kinship and care I feel here is an important part of each day in my own personal battle and struggle. I care about each of you here, when you hurt, I hurt, when you have a victory, I get excited for you too.

David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerving sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/20/2008 7:26 PM (GMT -6)   
One more positive. No more DRE's!
Just came back from my 6 wk check and I was fearful the doc was going take that little consolation prize away.
50 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
6 Wk PSA - 0 
So far, so good.  Next PSA in another 6 Wks
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/20/2008 8:27 PM (GMT -6)   
Thanks for the replies. I hope however good or bad 2008 was 2009 will be much better. Life is great and we all deserve to live it to the fullest.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 12/20/2008 9:01 PM (GMT -6)   

Hi Dale,

2008 was a year full of things for me, too.

My signature says some of it.

I'm still new with Dx and a bit of info overload, but this site has helped a lot...

I went on a major get "re-fit" program about 12 months ago...working out with weights and other stuff...in the midst of the early pain...only to get floored a few weeks ago with Dx.

And, I found out I'm going to be a grandfather in March (any day now)...so...go figure confused

I agree...life is a very, very precious thing. Living it the best is important.

Merry Christmas and all the best in the upcoming year.

 

Mike


 
Lower left groin hernia; mesh and large scar: surgery early 2006
Nov/Dec 07 and March 08 and now Dec 08: Severe perineal pain (between scrotum and rectum). Septra/Bactrim for 8 months (Nov 07-Jun 08) for diagnosed prostatitis.
PSA start of 2008: 5.3
PSA June of 2008: 7.3
6 DRE all benign or nothing felt
TRUS Biopsy Nov 08: Got copy of pathology recently (see below).
General Health: pretty good, 5' 10", 180 lbs, slim.
Bone scan Dec 08: Negative
 
Biopsy Pathology: 5 of 8 cores positive, adenocarinoma in both lobes
1) 30%, GS 3+3, perineural invasion identified
2) 40%, GS 3+3
3) 60%, GS 3+3
4) 65%, GS 3+3
5) 30%, GS 3+3
 
Open RP recommended. Looking at nerve sparing da Vinci in London, Ontario.
Wonderful wife...and 1st grandchild on the way.
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/20/2008 9:39 PM (GMT -6)   
The worst memory of the year was having my "leaking" return to the rate it was after I had the Sling done. The best memory is how the AUS keep giving my life back every day.
For those of you out there that are fighting the incontinance, just keep at it. There can be light at the end of the tunnel.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 12/21/2008 9:24 AM (GMT -6)   

Dale, sorry for not responding, but I thought you was just sharing, not asking for participation. :-)

My best has been continued zero's, I really don't have a worse, as I am alive,, cancer-free (so far) and continuing to live. 

Merry Christmas to you and yours


James C.         Age 61
Co-Moderator- Prostate Cancer Forum
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 (open) Retropubic Radical Prostatectomy performed
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- Viagra, pump continues, no response- Trimix ..35ml x 2 weekly continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


GBINAB
Regular Member


Date Joined Apr 2008
Total Posts : 206
   Posted 12/21/2008 11:00 AM (GMT -6)   

Hi Dale ,

My 2008 was an up hill battale with ED which was improvong gradually since about march this year and getting btter as time pass by , i am at my 18 months mark and hoping for the best yet to come in 2009 , can not complaint much ,  i am in good  shape, feeling good , fully continent , and able to have sex again this year with a little help from MY BLUE FREIND  (LOL)

hope al is wel with everyone else .. Hapy New Year an Great HOLIDAYS!!! smilewinkgrin wink


April 2007 PSA 8.4 for last 6 months biopsy shows PC 3+3=6
June 13 2007 Nerve Sparing open RP / Dr. Christopher Johnson at St. Francis Hospital NY.
4 days later home for Fathers Day, and Catheter.
Removal of catheter 10 days later , incontinence not an issue, no pads used from the get go.
1 month PSA next to not detected

ED is a longer battle:
1 month out start using occasionally Cialis and 50MG Viagra to promote blood flow with no response.
3 months and 6 months PSA not detected
ED 6 months mark starting with VED therapy and being more aggressive with meds , in addition taking Folgard supplement daily.
April 2008 : 10 month out and start seeing some serious improvements with ED while using Meds and VED , can achieve erections, Mid nights erections almost on a regular basis , and uncontrolled 90 % erections spontaneously.
1 year visit on June 13 2008 woohoooo!!!

UPDATE 1 YAER FOLLOW UP
ED: With Viagra Usable erection for intercourse , AND AT 80% without any medications !!
Fully continent since removal of catheter.
PSA one year : 0.0 as of 6/13/ 2008 BIG Wooohoooooooooo!!!!

Post Edited (GBINAB) : 12/21/2008 9:15:08 AM (GMT-7)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/21/2008 5:01 PM (GMT -6)   
thanks again for all the responses.
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 12/21/2008 5:30 PM (GMT -6)   
2008 is the year my metastases started growing and I began chemo. During this time my wife was diagnosed with breast cancer, had a lumpectomy and radiation. Not a good year.

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.
9/2008 Interim bone and CT scans show progress vs. scans done before beginning trial. I'm cautiously optimistic. Next scans 10/30/08.
10/2008Bone and CT scans continue to show improvement. Med onc attributes mostly to Taxotere/Prednisone while I believe majority of progress attributable to investigational drug, Sprycel.
12/2008 Latest scans show no change. Bah Humbug!


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/21/2008 6:52 PM (GMT -6)   
Hi Dale,
I am sorry I missed your calls the weekend. I have been busy with the Christmas stuff. I had to think what I would post here. I even thought about not posting here and just read the stories.

In 2008, my mother was diagnosed with terminal cancer on New Years Day and died on March 6th. It was a terrible time, but it's not all I want to bring out of the year. My family is closer than it has been in as far as I can remember. We lived, loved, and cried together in 2008. And of course our faith carries us well through what's left of this year. In addition, I went through 2008 without a relapse. From the day I was diagnosed, after surgery, HT and RT, we didn't know what to expect but we are very lucky to be here with hope in the future ahead. I know after all I have studied and learned that we still have work to do. I accept that I may never be free of worry about my turn with prostate cancer. But while we decorate another tree, there is yet so much good in the love in this family. The same with my friends here and elsewhere in my life. And besides, 2008 is only a number.

May you all feel the joy we do this Christmas and have a great holiday.

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 

Post Edited (TC-LasVegas) : 12/21/2008 5:00:27 PM (GMT-7)


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/21/2008 7:56 PM (GMT -6)   

Les,

Here's to a much improved 2009 for you both.  You and your wife will be in our thoughts.


50 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
6 Wk PSA - 0 
So far, so good.  Next PSA in another 6 Wks
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/21/2008 8:22 PM (GMT -6)   
I second you Rolerbe,
Les, my very best to you and Carol through this next year.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3218
   Posted 12/22/2008 5:49 PM (GMT -6)   

Hey Dale,

   I hadn't been on here for a few days and I almost missed your post. 2008 was a weird year for me. My best memory Pca wise was having my psa go to .09. Other best memorys were meeting everybody here, slaying 3 king salmon on the same day, getting my elk, and getting my sons first deer with him. Every day is a best or worst memory. No matter what happens be it good or be it bad it is very vivid. I would have to say my worst memory is a culmination of many days wasted. Oh sure, being told I have 36-40 months left was a crappy memory but rising above that and calling it what it is ( its BU--SH-- )was a good memory. I have come to realize that none of us knows the number of our days. Some  dont even realize yet that that they are terminal. The truth that we all need to find is that life is not measured by the breaths we take but by the moments that take our breath away. Merry Christmas Dale and all my other brothers and sisters here at H.W. Todd


dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 12/22/2008 6:12 PM (GMT -6)   
Thank you Tony and Rolerbe.

Carol and I wish all of you Happy Holidays and a healthy New Year.
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.
9/2008 Interim bone and CT scans show progress vs. scans done before beginning trial. I'm cautiously optimistic. Next scans 10/30/08.
10/2008Bone and CT scans continue to show improvement. Med onc attributes mostly to Taxotere/Prednisone while I believe majority of progress attributable to investigational drug, Sprycel.
12/2008 Latest scans show no change. Bah Humbug!


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 12/23/2008 10:10 AM (GMT -6)   
The worst part of 2008 for me was - I started a new job in January, and battled a nearly insane boss for 10 months before we reached an "I quit/You're fired" resolution.

The best part of 2008 for me was - my Charlie Brown girls soccer team this fall (0-7-1) played in the bottom bracket of the end-of-season tournament, tied 3 games over 2 days, won them all on thrilling penalty kick shoot-outs, and won the bracket championship and associated trophy! What a great way to finish a tough season.

And, oh yeah, I had cancer.

God bless us, every one.
kcragman
Age: 52

March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
              Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb '08: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
              cancerous and the 6th was suspect.  
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 12/23/2008 12:27 PM (GMT -6)   

The worst of 2008 for me was finding out that I had PCa but the best part was also finding out that I had Pca. I am very grateful that I find out early and was able to get the surgery done. It is much better than not finding out.

I will always remember the moment I hit upon this forum. Thanks for all your informative posts.


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 12 core 4 Positive 15%,15%,8%,3%
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report stage T2c organ confined with positive apical margin Gleason 3+3 = 6 (with tertiary grade 4)
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems from the get-go.
First post op PSA 10/2/08 < 0.05


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 12/23/2008 5:34 PM (GMT -6)   
Thanks everyone for taking the time to post to this thread. May everyone have a blessed Christmas and many days, months, or years of Joy, and I agree with Todd lets all remember the moments that take our breath away.

peace to all
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/23/2008 9:34 PM (GMT -6)   
Dear Dale, I always love to see "livinadream" posts.....You are kind and sweet and must be a terrific husband and father.... I really love your idea of this thread. We all have lots to be thankful for, even though there are some difficult times....Pete and I just visited our daughter and went to the baptism of our little new granddaughter....That was wonderful...Our dear dog, Donnie, aka, Don Juan, is also a great blessing to Pete. We rescued him last year. The cancer has been part of our lives for almost seven years now. We have been dealing with lots of different treatments and doctors....Pete has gone through depression and now has a hip replacement coming up Jan 9....but we are thankful for that, because he can hardly walk ten feet now....That is the worst......The best of 2009 was our trip across the US with our dog.... We even forgot about cancer....!!! Love and Merry Christmas to all. Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
Waiting to see if AUS gets better results
Complete hip replacement surgery coming up Jan 9, 2009


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 12/23/2008 9:45 PM (GMT -6)   
When I first read your post my thoughts went to me and my best/worst....
funny how the mind works. Usually I don't think before I talk, or write, I just start writing what ever I'm thinking.

So I paused, and gave this a little thought.

Worst of 2008? All the good people (PCa people) we lost. The worst for me was being on Spring Break in Floriday and checking my email only to find an email from the wife of Wes W. A man who lived about an hour east of here, a man I never met in person....a man young like me but who only survived about 18 months after diagnosis.

Best of 2008? Spending another 365 days with my wife and son.
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (12-12-08)
PSA: 38.99
Taxotere + Prednisone + Atrasentan
[10th Treatment on December 15th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


M. Kat
Veteran Member


Date Joined Jul 2006
Total Posts : 715
   Posted 12/23/2008 9:58 PM (GMT -6)   
hi everyone! I know---long time since I've been here. 2008 brought us another year of Jeff being cancer free and erections with no help! LOL I'm wishing everyone here a new year filled with good health, good friends and strong faith. Merry Christmas! kat
Husband Jeff 56 years old diagnosed July 27, 2006
PSA 6.5, 2 positive areas in biopsy, Gleason 3+3=6
Radical Retropubic Prostatectomy August 30, 2006
pathology report - all clear - cancer gone
1st post-surgery PSA test <0.1, 2nd post-surgery PSA test <0.1, 3rd PSA <0.1
no more pads Oct 12, 2006
first "real" erection with use of pump 12/16/06
3/07 - occasional dribbles and erections with Cialis and pump
8/07 - 1 yr PSA <0.1
9/1/07 - achieved erection with Viagra - no pump!
3/08 - 18 mo PSA <0.1
switched to Levitra - works much better than Viagra & Cialis - fewer side affects
summer of 2008 - have had a few erections with no drugs! yeah!!
8/08 - 2 yr PSA <0.1


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 12/26/2008 12:36 AM (GMT -6)   
I have been lurking a while and just recently signed up.  I wanted to be able to thank all of the members who have helped me so much without even knowing.  I can get here what the medical community will not provide.
 
Worst memories - Learning my MIL had terminal breast cancer
                         Finding out I had PCa and having to tell her
                         Losing my MIL on 12/10/08 and FIL on 12/23/08
 
Best memories - Finding HW and support without attending meetings
                      An improved marriage because of PCa                      
                      Looking forward to 2009

Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c


Sam Benton
Regular Member


Date Joined Dec 2008
Total Posts : 35
   Posted 12/26/2008 4:10 AM (GMT -6)   
Worst memory of 2008 was hearing the sadness in my wifes voice when I told her!, Just about killed me, the second was this ED thing, still haven't come to grips with it, even though it's early in the game for me (DaVinci Nov 3rd 2008). Best was beginning to get this leaking under control and having a semi-erection a few days ago (still not enough to work with, but a sign of life and I'll take all the hope I can get right now.

Happy Holidays to all of you, glad to have connected wtih you on this site. It helps!
Larry

Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 12/26/2008 12:44 PM (GMT -6)   
Being diagnosed late in 2007 made 2008 my year of dealing with Pca. I found hope just before the year began with a local TV newsmans report on his battle with Pca. Through that I learned the local university had one of the more advanced Urologic Oncology departments in the country. I also learned of a new clinical research study called Targeted Focal Treatment which like a breast cancer lumpectomy just destroys in theory just the cancerous part of the gland by cryosurgery. A low point was in Feb 08 when my insurance initially turned down the required 3d saturation mapping biopsy(45 cores). My urologist who is also the director of research had that over turned on a peer to peer appeal, thus my TFT was only delayed a month. I had it in April 08 the worst part being the catheter for 4 days. I know that's nothing compared to what many here have had to do. Since then absolutely no incontinence and far as ED goes there was as my doctor said a little shock experienced by the nerve bundles but also as he said has been kick started with an occasional little blue pill. I lay claim as to being the only one here with still wet orgasms after a PCa treatment, for what it's worth. Thus what started as deep depression for the year wound up with better results than I could have ever hoped for back in the dark days of November 07. Just lucky timing and as they say location, location. location. That being just lucky living in the area where Dr E David Crawford heads the University of Colorado's Urologic Oncology Dept.
Diagnosed 11/08/07
Age: 58
3 of 12 @5%
Psa: 2.3
3+3=6
Size: 34g
T-2-A
 
2/22/08
3D Mapping Saturation Biopsy
1 of 45 @2%
Psa:2.1
3+3=6
28g after taking Avodart
Catheter for 1 day
Good Candidate for TFT
(Targeted Focal Therapy)
Cryosurgery(Ice Balls)
Clinical Research Study
 
4/22/08
TFT performed at University of Colorado
Medical Center at Denver Fitzsimons Campus
Catheter for 4 days
Slight soreness for 2 weeks but afterward
life returns as normal
 
7/30/08
Psa: .32
 
11/10/08
Psa.62
Not unexpected bounce after
the 80% drop the quarter earlier.
Along with urine flow readings, and
acceptable amount left in bladder measured
by sonic. Results  warrant skipping third
quarter tests, and to return 
April, 2009 for
final biopsy scheduled to
complete clinical research study 
 
 
 

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