biofeedback testing

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jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 12/21/2008 3:23 PM (GMT -6)   
I have a appointment on 1/9 to have this done to make sure I am doing my kegels correctly. Can someone explain what to expect. Is anything inserted or is it all done on the outside by electronic devices?

 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 
Rich man in a poor mans shirt.


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/21/2008 7:26 PM (GMT -6)   

    From what I have seen is that there are different ways each therapist works.  Mine had me attack a sticky pad electrode in the perneal area.  They she attached one to my lower abdomen in the room.  Those were hooked to the machine for the sessions.  I have heard that some people had a probe inserted in the anus!  I guess you may want to call and ask if this bothers you. As far as myself,  at the point I was I would have let almost anyone stick almost anything anywhere if it would help control the leaking.  I would suggest shaving your perneal area before you go.  That will make removing the Stickey Pad much easier!!!!!

Good Luck,  KW


    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Sam Benton
Regular Member


Date Joined Dec 2008
Total Posts : 35
   Posted 12/21/2008 7:30 PM (GMT -6)   
I am going for physical therapy soon and I too was wondering what to expect. Inserting a probe! I think I've had enough stuff stuck inside me lately! But if it helps this leaking......well.....maybe just once more.

Sam

Berb
Regular Member


Date Joined Mar 2007
Total Posts : 93
   Posted 12/22/2008 12:59 AM (GMT -6)   
I did 8 weeks with the probe in the anus every night, 30 minutes with a small electrical pulse. Uncomfortable but tolerable. Didn't do an ounce of good for me though, and ultimately had the Artificial Sphincter fitted to solve the incontinence problem.

Berb
59 when diagnosed, now 60 years old
Da Vinci surgery Jan 10, 2007, nerves spared, no cancer detected outside prostate
Pre surgery PSA 8, Gleeson 3+4=7, T1C, 3 out of 12 biopsies had cancer
Complication 1: urine favoured drain tube over catheter, extra time in hospital, catheter in for 2 weeks
Complication 2 - urinary tract infection - Citrobacter (hospital bug), 6 weeks antibiotics cleared up
Complication 3 - fungal growth on genitals (candida albicans) probably from antibiotics
Aug'07 Urodynamic study for continuing incontinence 8 pads per day; diagnosed bladder neck stenosis
Oct'07 CT scan indicated nothing abnormal; cystoscopy showed narrowing at anastimosis - dialated
Dec'07 averaging 9 pads a day, started acupuncture (no benefit after 10 treatments)
Jun'08 AUS fitted
Aug'08 AUS activated - highly effective
Post surgery PSA tests: all undetectable


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 12/23/2008 7:37 PM (GMT -6)   
The rectal probe is inserted during each office visit. 
 
My therapy was about 8 weeks long and it was very effective in the proper gradual strengthening of the pelvic floor.  The doctors instructions just don't hack it.  I would have hit a plateau and never progressed unless I took the additional therapy. 
 
I finished in July and I am doing much better now.
 
Please let me know if you have further questions.
 
Kind regards,

Barry ~ (a.k.a. "Idaho")

 

Da Vinci Surgery July 31, 2007… 54 on surgery day
PSA 4.3  Gleason 3+3=6  T2a  Confined to Prostate

1st PSA  09/11/2007  <0.04 (undetectable)

2nd PSA 12/10/2007  <0.04

3rd PSA  03/17/2008  <0.04

4th PSA  06/17/2008  <0.04

My web site: http://pca-info.blogspot.com


kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 12/29/2008 1:05 PM (GMT -6)   
Just now seeing this. I had 3 biofeedback sessions with a physical therapist who I thought was fabulous. I also had the sticky pads, and it was really not a big issue. She did a mini-DRE with me to make sure I was firing the correct muscles. She only used the machine on the first visit, and the follow-up visits were more for checking progress and expanding the number of exercises.

I am about 98% continent. I still leak a little bit once or twice a day - but I have been very bad about my exercises. I still wear a pad (one a day) because I can't stand damp undies. I guess if the pad bothered me more I'd work on the exercises, right?

This was back in August (you can probably find my posts about this) and I REALLY did not want to go - primarily because I had heard the "electrodes up your rear end" stories, too. I was REALLY PO'd that my wife set it up (she's a physical therapist too). But it turned out to be an excellent - actually enjoyable - educational experience. If you are anywhere close, I highly recommend Joanne Gryski at Centreville Physical Therapy in Centreville, VA. She does a lot of PCa incontinent patients and is very knowledgable.

Good luck,
kcragman
Age: 52

March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
              Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb '08: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
              cancerous and the 6th was suspect.  
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/29/2008 1:36 PM (GMT -6)   
Kcragman hopefully people herein noticed your pathology post op: gleason 9 (4+5) 15%
this shows you how inaccurate your original pathology biopsies samples could be. Prior to major modalities like surgery, brachy seeds, etc. it would be important to have experts review pathology. The nomograms and partin tables could be significantly different with Gleason 9 or other parameters found. Looks very good 6 months out for you, a real plus considering, hope you are in the zero club. You may be super fortunate considering those findings, hope so for you and yours.

Bob

kcragman
Regular Member


Date Joined May 2008
Total Posts : 240
   Posted 1/6/2009 3:37 PM (GMT -6)   
zufus:

Just now seeing this. Yeah, the patho reports are much more accurate, and I was under the impression that a 2 point Gleason jump from the original biopsy was not unusual.

My wife is a physical therapist with a PhD in anatomy, and she teaches pathophysiology so she can quote medical stats like baseball box scores. She was worried sick until I got my 6-month zero. I had looked up some charts and tables on the internet and scared myself half to death (HALF to death? Wasn't I already there? bwa-ha-ha!) but a) I have a life to live and I'm too busy (or too stupid) to worry about cancer, and b) my doctor told me "negative margins and zero PSA is all you care about" and that's all I'm going to care about until something changes. I don't feel like I'm super fortunate. I feel like we picked a highly skilled surgeon who did a really good job. But the more I allow myself to understand what my results mean, I think I was extremely blessed to have had it caught in time (no thanks to me), and to have had such a surgeon. AND to have a wife who takes such good care of me - because I am apparently incapable of taking care of myself.

But your basic point is correct - they don't know EXACTLY what is going on in there until they cut it out and cut it up. Surgery is not the answer for everybody - nor should it be - but I am convinced that had I chosen another path, I would not be experiencing as successful an outcome as I have enjoyed to date. I don't know, maybe I AM super fortunate.

Live on!
kcragman
Age: 52

March 2006: PSA 2.5
Dec 2007: PSA taken for insurance application. I did not see the results until late
              Jan '08 - after I was rejected. Their lab said PSA 4.5.
Feb '08: PSA 3.7.
March 2008: Biopsy. Gleason 7 (4+3) 12 cores taken. 5 on the left side were
              cancerous and the 6th was suspect.  
May 5, 2008: Da Vinci robotic laparoscopy at GW Hospital, Washington DC.

Post op: Gleason 9 (4+5). 15% of prostate involved. Stage: pT3a. Negative margins. Lymph node and nerve samples taken, and appeared to be cancer free.

July 2008: PSA at 7 weeks was undetectable.
August 2008: PSA at 14 weeks (3 months) was undetectable.
Nov 2008: PSA at 6 months was undetectable.

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