Update: Doctor visit/Catheter

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/22/2008 10:37 AM (GMT -6)   
Hello one and all, let the saga continue:
 
Just got back from my dr/surgeon visit, first since my catheter was put back in last Tuesday.  Good visit, the bottom line, we mutally agreed to leave the cat in one more week, till 12/29, to give a little more time for any swelling to go down, and to make sure the affect of the ditropan (the bladder spasm) med is out of my system.  He said the other staff should have had me off it 2-3 days before they took out the first cath, but they never mentioned it. He mentioned that its a miracle that the urertha/bladder has healed as well as it has, said it was one of the most difficult surgeries in that area in all his many years of practice.  With the holidays here this week, we both agreed that one more week would be best for both sides, in case something went wrong.
 
I have had a cath in now 37 out of the last 38 days, but you know what, I am learning to adapt and the cath is less of a threat to me now then the pain I went through when they took it out and it stopped flowing.  Yesterday's enemy might be tommorow friend.
 
So I will live with my plastic bag friends another week, but I am ok with that. BTW, my wife calls the big bag the jelleyfish I tote around.
 
The dr. did say, I can legally drive now, even with the cat in, and after Friday of this week, he is lifting any weight limitations from me (within natural reason of course).  So I do feel a lot better about things.  First post surgery psa is still scheduled for Jan. 5, so I hope I earn the right to be in the zero club for the first time.
 
Thanks for your patience.
 
David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerve sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 760
   Posted 12/22/2008 12:57 PM (GMT -6)   
David,

Wow, you have a lot of patience! Good for you to have such a good attitude.

With your forewarning, I think I will forego asking for ditropan. No spasms today yet anyway.

You're right, you don't want anything going wrong on Christmas day, with hardly anyone around to help out. Hmm, that might apply to me too. I'll see what they say tomorrow.

Did he say why your surgery was so difficult?
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day
pT2c
lymph nodes negative
"microscopic margins"


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 760
   Posted 12/22/2008 1:11 PM (GMT -6)   
Was also wondering if the delay in removing the catheter has any impact on the first PSA date. Looks like no.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day
pT2c
lymph nodes negative
"microscopic margins"


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/22/2008 4:00 PM (GMT -6)   
DJ,

He didnt indicate it would delay that first PSA, but again, I have total faith in his game plan. If you need the med for the spasms, then by all means ask for it, I don't know how bad yours are, but at my worse, they came at least once or twice an hour, and at times, had me on the carpet on all fours, besides myself, and I must admit, crying. That one day, I had to call my wife at work, and she had to race home and get a hold of the dr. on call and work us through it. Those spasms were like pain level 8-10's, the one's I have now off the med, are like 2-5, they can hurt, but don't last as long or hurt as intense. I just got to make it one more week on the cath without resorting to the meds. Hope this helps.

David
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerve sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 


Rolerbe
Regular Member


Date Joined Dec 2008
Total Posts : 235
   Posted 12/22/2008 8:58 PM (GMT -6)   
Great attitude Purg.  Almost certainly a sound choice to give it one more week.  What's a week between you and your close personal plastic buddy?  Looking forward to a great new year's update from you.

50 YO
PSA at Dx: 8.2
DaVinci RALP: 10/31/08 -- Great MD in New Haven, CT
Negative margins, no extra-capsular involvement
One nerve spared
6 Wk PSA - 0 
So far, so good.  Next PSA in another 6 Wks
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 12/23/2008 8:21 AM (GMT -6)   
Yeah, its funny what you can learn to accept and adapt to, now driving around with a leg bag under my pants and having a plastic tube coming out of the head of my "fellow" seems normal. Even learned how to keep the pant bag empty outdoors in discrete ways, and how to gently touch my pants leg to make sure the connection between the cath and the bag is firmly in place. After that good meeting with my dr yesterday, it really lifted my confidence, and knowing that I can take another week of annoyance with a smile on my face, and that one day soon, I will be long over this part, and can feel like I can move on with my life instead of feeling like a victim and a patient. Just my take.

David in SC
Age 56, 56 at DX
 
PSA 2007 5.8
PSA 9-2008 14.9
 
3rd Biopsy 9-2008 Positive
7 of 7 cores positive, ranging from 40 - 90%
2 tumours noted, Gleason 4+3 and 3+4
 
Open RP surgery completed on Friday, November 14, 2008 at
St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon,
Non-nerve sparing, 4 days in hospital, staples removed 11/24/8,
Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08 - uncertain of what went wrong.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes. Left lobe: infiltrating tumor miscroscopically appears to extend to marked left posterior margin
 
First PSA Post Surgery  Scheduled for 1/5/9
 
 

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