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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/26/2008 2:40 PM (GMT -6)   
Hi Bob,
As you can see we can wear out a keyboard with our convictions about prostate cancer.  You have brought a couple ideas out that are not mainstream, but they are legit alternative options to treating PCa.  You already know my thoughts about it, but your points are valid.  HealingWell has been a blessing to me and my friends here.  There is a great commitment to helping others here that just absolutely make my heart warm.  I think when the members know you better they will show you the same things. If you can, summerize your story in your signature like mine below.  This way people wil understand you better as a member.  Thank you for the Email and you have my contact information if you want to chat.
 
Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 12/27/2008 7:58 AM (GMT -6)   

Thank you Tony for a very nice reception and understanding of my rather up front blunt and pent up expressions/opinions on PCa issues.  I did not have an easy journey especially in the beginning nobody should have to fire doctors and seek many others in order to find out what they are dealing with and/or be told the factual truths on PCa. That is one thing I vent on and hope others do not have to travel that same road, a sharp stick in the eye might have been more tolerable.

I did finally find the truthful answers and very decent doctors after months of looking and 8 opinions, which they were not all the same opinoins and some were direct opposites (fyi). On the humor-ass side of it I got proded everytime I saw a doc, even female docs were checking me out with the DRE (as my wife had to leave the room) I would have been less embarrassed if she did it, but probably that is for docs sake. Needlessly  I say was not looking forward to the next second opinions as it usually needs confirmation with the DRE. There is a very funny video out with a doc getting ready to perform the DRE and in the background Lou Rawls is singing "your never gonna miss my love". As the doc parades around the office with a gloved hand. Dennis Miller approach to the dreaded DRE,  if you told me some doc had to prod around in that area to detect cancer I would say which episode of the Twilight Zone did you see. (lol)

Oh heres a great experience with DRE's, my radiation onco-doc has me on the table and his students come in the room during my DRE session (kids that are interns), one of them is a girl and she says "nice meeting you", I had to do the eye rolls with a yeah as the doc proceeded with the DRE. I never expected that scenario, welcome to the world of PCa it is stranger than fiction at many levels. I can laugh about it now, that day was embarrassing. Be prepared for special experiences during your journey, it can happen.

Bob Parsons-  Phd.-Graduate in drug therapies (lol)-lupron, zoladex, flomax, casodex, proscar, DES, coumadin, herbals, vitamins,  etc.. Serious side: bpsa  46.7  12 biopsies all cancerous with high percentages in all of them 75-95% ranges, 3 different Gleason scores found  7,8,9's, somehow pathologist gave me an 8 overall. Diag. 2002 with total urinary blockage, knew -0- about PCa at age 52 then, proceeded with ADT3 combo followed 4-5 months later by radiations via unique process using 2 machines-2 different rays (neutron & photon)(Cyclotron & IMRT machines), then ADT1-2, then ADT3 for short time, ADT4 shorter time added DES, then DES only, then nothing taken for 2+ years with stabilized psa's. Finally psa rose to 1.47 range then (now) going back on DES and checking results, soon. Don't know if I was refractive yet or not as my testosterone levels have been normal for a few years and no drugs taken. cool

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