I am new to the list of members and have recently been compelled to post. I have been lurking since May 08 when I was first learned that my PSA was "elevated". GP was not worried but sent me to a uro and insisted on a biopsy. Uro told us he would not have done a biopsy (he did not schedule one originally but GP insisted) for a 48yo with a 2.96 PSA. I am thankful for a great GP.
I am encouraging other lurkers to join. I have been helped so much by the knowledge and info of the members here. I have also been encouraged by the compassion and understanding of the members and spouses. NO ONE who does not have this disease can fully understand what it is like. The doctors (even the good ones) seem to miss the full explanantion of the ramifications of this disease. I got so tired of hearing people say "It is only prostate cancer, they can treat that easily!" They do not understand the side effects and often completely miss the fact that it is still CANCER.
Here, people get it. I read almost daily, the posts of so many. It encourages me and helps me deal better with those who do not understand. I know many have greater concerns than I do but at least they understand where I am. My post surgical path report states that margins were clear and the GS was still 6 which is great. They think it is all gone but they never really know. I will always be awaiting the next PSA (next 1/7/09) to make sure it does not come back. At least those here understand the rejoicing that goes on when you remain in Club 0. So many celebrate with those who post.
Thank you to the members of this unwanted club for helping me daily. Those of reading this who are looking for info, consider joining and asking the questions that don't get asked elsewhere. There are people here who do understand.
Looking forward to 2009,