A very worthy Newsletter for PCa patients~current articles on incontinence & more

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Veteran Member

Date Joined Dec 2008
Total Posts : 3149
   Posted 12/29/2008 6:36 AM (GMT -6)   
I have been getting Paact newsletter for years and it is also found sometimes at even your hospitals or other places. The board of members (doctors) whom contribute their articles and information are practically all names that you might recognize for PCa.
Current issue talks about AUS (atrifical Urinary Sphincter) a choice some folks might have to look into.
Another article by Dr. G. Onik on  Non-thermal irreversible electroporation (NTIRE) of prostate cancer.
Another article by Dr. Barken on mens sexual health.
Another on Chronic pain.
Another on identical twins showing different treatment plans and different results, i.e. different survival.
It is probably a patients best source for a newsletter and they take contributions, get one free and check it out.
1143 Parmelee NW
P.O. box  141695
Grand Rapids, Mi.  49514
Also, you can call them and discuss PCa, especially uselful for high risk, high stats patients.

Veteran Member

Date Joined Jul 2008
Total Posts : 637
   Posted 12/29/2008 8:12 AM (GMT -6)   
Thank you Bob, We will look for this.... My husband just had an AUS installed in Aug 2008 and activated in Sept.....Unfortunately, even though the AUS is an awesome invention for incontinence and works for most incontinent patients, it is not working for him.... The scar tissue from the prior radiation damage and seeding is not allowing the AUS to work properly, and he probably will have to have it removed after his hip operation next week. It has been an ongoing saga of immense proportions for Pete. You can see by the signature that he has been a real trooper, and we try not to second guess his initial treatment. Di
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
Waiting to see if AUS gets better results
Complete hip replacement surgery coming up Jan 9, 2009

Veteran Member

Date Joined Dec 2008
Total Posts : 3149
   Posted 12/29/2008 9:11 AM (GMT -6)   
I can understand that nothing for PCa is 100%, seems that way for anything about it.  We all can relate to the journey issues even if we have not encountered such trials. Hope you improve with this and all PCa issues.
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