Day 45: Emergency Room - Catheter #3 Just Put In

New Topic Post Reply Printable Version
40 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 12/29/2008 7:52 PM (GMT -7)   
As you know from my other thread, this morning catheter #2 was taken out by my regular doctor.  Never had much flow or out put today, but still thought I was ok.  By 330 this afternoon, I was completely stopped and pressure and fluid backing up.  What an insane nightmare.  It was too late by the time my wife got my message to see regular doctor, so they had us go to local ER at hospital, 2 minutes away.  Took 3 hours and 2 nurse plus one doctor and two different catheters before they got it right and relieved me of much agony.  Apperently, they don't do it as often or as well as they do at the urologist office.  So I am back home, tired wore out wife, on pain med, as my poor "winky" feels chewed up from their attempts.  I feel defeated, almost in a surreal way.  I have to call my dr. tommorow, to see what, when, and how they are going to handle this set back.  Tommorow will make day 46 and catheter #3.  Thanks for the encouraging remarks from earlier today, don't know why my recovery is getting hung up on the easy part.  Geez.
 
David, sadly in SC tonight
Age 56, 56 at DX
 
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
 
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
 
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08, hoping for the best after 45 days.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 12/29/2008 7:57 PM (GMT -7)   
Dang it!

Hang in there buddy...just hang in there...My prayers are for you tonight.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


glabers
Regular Member


Date Joined Nov 2008
Total Posts : 31
   Posted 12/29/2008 8:19 PM (GMT -7)   
SUMNA BICH BASTAGE!!! I really didn't want to read this from you. I'm very sorry to hear it. Keep the faith, man. I'm really pulling for you. Press your DR for answers. Maybe something's not so perfect with the urethra re-attachment, perhaps the stitch job needs a looking at. Good luck!
Diagnosed:  8/24/08, age-47
Father died of prostate cancer at age 72
PSA 1.5 early 2007, 4.5 mid 2008, all remedies tried & reduced to only 3.2, uh oh.
Biop - 2 positives of 20 samples
Gleason - 3+3
RRP - 11/13/08 via Da Vinci by Dr. David Samadi, Mt. Sinai Hosp. NY
Post op biopsy - 75% of samples positive for cancer, Post op Gleason 3+4
some lymph Nodes tested, all negative
all nerves spared - I'm told
Catheter in for 1 week, using 1 pad a day. 
 
 
 
 
 


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 12/29/2008 8:22 PM (GMT -7)   
So disappointing to read tonight. Thinking of you and looking forward to things getting a little easier for you.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


dsmc
Regular Member


Date Joined Jul 2008
Total Posts : 149
   Posted 12/29/2008 8:31 PM (GMT -7)   
Hi David,
Like Tony I too will be praying for you. Try to keep your chin up!

David
Age 53
Pre-op PSA 4.3
Surgery Feb. 17 2005
Post-op Path : Gleason 3+3=6
Right pelvic lymph nodes: negative for metastatic carcinoma
Left pelvic lymph nodes: negative for metastatic carcinoma
extent: right lobe 40% left lobe 10%
capsular penetration: Absent
Seminal vesicles and vasa differentia: Uninvolved
Prostate: 26 grams
Post-op PSA's <0.04 for 3 years
Feb. 08: 0.07, March 08: 0.08, June 08: 0.09 and Sept. 08: 0.1
IGRT scheduled.....November 17th....


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 12/29/2008 8:58 PM (GMT -7)   
Thanks one and all, sorry I am so bummed out, I am very patient by nature, but even I have a breaking point. The going answer so far, and my dr/surgeon has said this all along, is that there is/was severe scarring at the juncture of the bladder/urethra. The catheter tube can easily fit in, but when its out of there, the urine must cause it to swell shut in the matter of a few hours. I was so afraid this would happen today, never convinced it was open enough to drain fast enough. I wonder if my dr. can look up it with some kind of scope i hear about. I also have heard tell of some "roter rooter" job, but geez, if it's not healed up after 45 days enough to let me pee right, don't see how "drilling" it out would ever heal. Mostly don't know what I am talking about at this point, will have to see what the dr. says when I call tommorow. Very discouraged right now, but I know some of you have it much worse then this, so I will shut up for now.

David in SC
Age 56, 56 at DX
 
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
 
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
 
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08, hoping for the best after 45 days.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 12/29/2008 9:30 PM (GMT -7)   
Hi David,

I feel your pain and your frustration. Hopefully this time your Uro will do a more detailed examination of the cause of the problem and will come up with an answer to fix it this time. Twice is not cool; 3X is just to much. The fun must be long gone by now.
Hoping for the best to you for tomorrow.

Magaboo
Born Sept 1936
PSA 7.9
Stage T1C
-ve DRE
Gleason's Score 3+4=7
2 of 8 positive
open RP 28 Nov 06
Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06
Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.

Post Edited (Magaboo) : 12/29/2008 9:33:04 PM (GMT-7)


Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 12/29/2008 9:52 PM (GMT -7)   
Hang tight. They'll get to the bottom of the problem. We can't do much but wait it out with you. We do have strong shoulders and good ears in here. You can come rant whenever you feel the need.

Swim
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 12/29/2008 9:57 PM (GMT -7)   
Boy that's tough. It was only a couple of hours ago we were all rejoicing in the successful removal of the dreaded bag. Well, we're all rooting for you and soon this aggravation will be a distant memory.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 688
   Posted 12/29/2008 10:19 PM (GMT -7)   
David,

Geez, what more can be said. I admit I was worried when you described the flow in your previous post. Nobody deserves to have that much pain, again..maybe what my nurse practioner said last time is relevant: If I were to stop up again and need a 3rd catheter, he would expect it would be because of either a flap of tissue hanging down, or just scar tissue in general closing up the opening. (Also, he gave me prescription strength levels of Motrin were to reduce swelling. ) So if that happened, that a 3rd catheter had to be put in, the next step would be for the doc to go in through the urethra with a fiber optic scope and look at the problem. Then they would schedule another surgery under general anesthesia to go in and cut away the problem. This all would be done carefully and not too hastily. I had the impression that the scope work and the followup operation would be several days apart. So basically, what he told me sounds a lot like what you are expecting.

I was re-reading Walsh last night, and the connection of the bladder to the urethra does look very tricky (figures 8.7 and 8.8, pages 279-280). On page 282 he describes how the bladder neck has to be narrowed down by the surgeon to match the size of the urethra. Here I'll go way out on a limb and hypothesize that if the bladder neck had to be narrowed down, maybe what some men need is to have it widened back up a bit. This is just speculation on my part, but it seems plausible.

As you can tell, we're still all pulling for you. Sorry to be away off and on today, but I'll check in more often tomorrow.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day, removed again 14th day following negative cystogram
pT2c
lymph nodes negative
"microscopic margins"


DoingFine
Regular Member


Date Joined Sep 2008
Total Posts : 46
   Posted 12/30/2008 5:54 AM (GMT -7)   
David

I am very sorry for you. I'm sure the doc will get to the bottom (or top) of the problem. I know I'll be checking this post often today to see how this works out.

I wish you the very best.

Keep your chin up.
Age at dx: 51 Age now: 52
Great health: Riding bike 200+ miles weekly; no symptoms
First PSA: 4.7 March 2008 (bummer)
Second PSA: 4.97 June 2008
Biopsy June 2008
Positive 5 of 12 cores (real bummer) T1c
Gleason 3+3
Bone scan: 7 July negative
RRP surgery 3 Sept 2008 at the Mayo Clinic: Rochester, MN
All clear
Catheter out 22 Sept 8:30 AM, catheter back in at 11:30 (not happy)
Catheter out 30 Sept (this time for good!)
Total continence, no erectile difficulties from day one (Cialis 10mg daily)
Back on bike 15 Oct. (42 days . . . with doc's approval)
Dec. 2 2008 psa Undetectable!


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 12/30/2008 6:42 AM (GMT -7)   
Dear David, Peter and I know what you are going through. Peter had many constrictions, and was in the ER about five times. The last time, we were out of town and had to go to the ER. The ER intern did not want to take the catheter out because he didnt know what a sling was....Pete laid in the hallwlay in excruiating pain until a urologist came. I was on the telephone to Sloan Kettering to try and get the surgeon to talk to this ER doctor.. It was Sunday and the Fellow at MSK was not the same one we knew... He didnt know the history. ..Pete was in agony, and finally was going to pull out the catheter himself......The intern took it out finally and put in a new one in the wrong place and made a fistula.

More surgery to repair the fistula and catheter in for a year....After that, self catheterization, which sounds difficult, but he learned to do it about three times a day to keep the urethra open so he could have the AUS installed. AUS didnt work, and now he is getting ready to have a hip replacement..still wet as can be.... and in horrible pain from the hip..

The good news for you is...You did not have radiation damage or scar tissue from radiation. So you will eventually be OK. You may need to learn to self catherize to help keep the urethra and bladder neck open until the scarring stops. ....Good luck and keep up hope. You are a strong wonderful man... xxDiane.
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
Waiting to see if AUS gets better results
Complete hip replacement surgery coming up Jan 9, 2009


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 12/30/2008 7:02 AM (GMT -7)   

 

..MAN!.....that's just not right! Hang tuff brother....hope today is a better day for you....you're on  my mind today. Good luck Dave..


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      PSA  spiked once about 8yrs ago to 5.0 three months later
      back to 2.9...then into the 1.2 range until my re-scheduled 
      "missed" appointment this past Feb.
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08,
       Bladder Sling installed, umbilical hernia repair  
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
         12.22.08 2nd post-op PSA-Zeros still...  
           .
         .."just tryin' to reason with hurricane season"..
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 12/30/2008 7:06 AM (GMT -7)   
DJ - I bet they will think along the lines you described, hopefully when I call my dr. office today they can come up with a game plan, I don't want this cath out until there is some concrete action plan in place, if you remember, I went through 6 days of bad blasm pains with cat 2 all through Christmas because they would let me take the med, and then to have the cat out for less then 12 hours and go through all that pain again, it was like this was all for nothing.

Diane - when I read what Pete has been through and what he still is facing, I feel guilty for writing about such petty things. Told my wife last night, wish I never, ever agreed to this surgery at this time, been nothing but trouble and pain. And the burden of my wife, who works so hard as a nurse to start with, having to deal with all my problems, my mother now that she had her stroke the day after Christmas, etc, etc, I feel overburdend with guilt because I am so limited right now in how much I can help her. Just doesnt seem fair sometimes. She's not comlaining, but I know her too well after almost 35 years, and its taking a toll on her well being.

David in SC
Age 56, 56 at DX
 
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
 
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
 
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 12/30/2008 7:35 AM (GMT -7)   
Update: my dr. office just called me, the ER talked to them already and told them what they did. I have an appointment next Monday at 0950 with my actual dr/surgeon (Dr. Smith) at the local office here in Easley where I live (2 min drive). I told the nurse that I don't want the cat out at that time, not unless there is a real plan in place, i.e. scans, tests, etc. And if I did have cath 3 out by him, that I would stay at their office all day with a stack of books to make sure I was alright, I don't want another ER room to put in a cath, that was way too painful and long last night and too stressful. So as much as you all know how much I hate these caths after all this time, it still beats the alternative of feeling like you are going to explode inside. The only thing that bothered me, was the nurse that called from the urology office didn't even know that I had surgery and didn't even have a prostate any more. Geez, doesn't anyone look at what they are reading?

David in SC
Age 56, 56 at DX
 
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
 
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
 
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4814
   Posted 12/30/2008 8:36 AM (GMT -7)   
Ask your doctor about a Cystogram to help determine if the cath is ready to come out shocked
 
Maybe if won't help in your case but it sure wouldn't hurt to ask.
Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Gleason - 6
(biopsy done March 4, 2008-> 2 of 12)
 
06/25/08 - Da Vinci robotic laparoscopy
10/03/08 - 1st Quarter PSA -> less then .01
 

Surgeon - Keith A. Waguespack, M.D.

Las Colinas and Plano Offices

 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 12/30/2008 8:46 AM (GMT -7)   
Good point, Steve, obvious the current plan isn't working. Thanks.
Age 56, 56 at DX
 
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
 
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
 
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. New appt. to see dr. on 1/5/9 as result.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 688
   Posted 12/30/2008 9:01 AM (GMT -7)   
I agree with Steve, as you might recall, my doc's office calls for a cystogram when the catheter has to be removed more than once.

It is really tough to have had to put up with those spasms, yet have no success yet. Hope your spasms are not so bad now, are you back on the dinitropan? And putting up with the nurse who hadn't checked your chart, that's frustrating. Your wife probably knows a lot of nurses who aren't so great.

I thought more about the "flap of tissue" scenario which is the first thing my nurse practitioner suggested. That is a plausible scenario that seems fairly fixable. The flap would be held open by the catheter, but would shut like a valve when the catheter is removed. I think you've mentioned that your anatomy was more challenging, so I'm not sure this would apply to you.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day, removed again 14th day following negative cystogram
pT2c
lymph nodes negative
"microscopic margins"


DoingFine
Regular Member


Date Joined Sep 2008
Total Posts : 46
   Posted 12/30/2008 9:07 AM (GMT -7)   
David

For what it is worth . . . my issue, requiring the 2nd catheter was indeed a "flap." In my case the doc was able to see it with the cystoscope, it resolved itself after one more week of catheterization.

DJ's description is exactly what happened to me. The flap acted as a valve, shutting off the flow.

Again, I wish you the very best . . . and a speedy resolution.

Cheers,
Rich
Age at dx: 51 Age now: 52
Great health: Riding bike 200+ miles weekly; no symptoms
First PSA: 4.7 March 2008 (bummer)
Second PSA: 4.97 June 2008
Biopsy June 2008
Positive 5 of 12 cores (real bummer) T1c
Gleason 3+3
Bone scan: 7 July negative
RRP surgery 3 Sept 2008 at the Mayo Clinic: Rochester, MN
All clear
Catheter out 22 Sept 8:30 AM, catheter back in at 11:30 (not happy)
Catheter out 30 Sept (this time for good!)
Total continence, no erectile difficulties from day one (Cialis 10mg daily)
Back on bike 15 Oct. (42 days . . . with doc's approval)
Dec. 2 2008 psa Undetectable!


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3196
   Posted 12/30/2008 9:34 AM (GMT -7)   
David, That bites. I am so glad I have never (knock on wood) had to be cathed. I had a test for S.T.D.s in my youth, (negative thank you) and having that swab shoved up Mr. winky was bad enough. I feel for you bro and it makes my stomach hurt. Hang in there we all be praying for you. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 12/30/2008 9:43 AM (GMT -7)   
DJ & Rich, thanks for the advice, will even mention that directly to the dr next Monday. It acts as if it were a flap, and yes, when they insert the cath, it pushes it and keeps it open. Makes sense to say it. I have permission to use the spasm med if/when needed, so that is good to know. Not taking it for those 13 days on cath 2 proved nothing, and I feel I suffered a lot of needless pain through Christmas for absolutely nothing! Yes, I know that sounds bitter.

Yeah Living, there was nothing fun about the ER cath job last night, I was scared for my life at times, they weren't smooth about like they are at the urologists office.

Hanging in there best I can. Never would have dreamed of all this cath problem when I was operated on in mid-November.

David
Age 56, 56 at DX
 
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
 
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
 
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. New appt. to see dr. on 1/5/9 as result.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


hangin-in
Regular Member


Date Joined Sep 2008
Total Posts : 78
   Posted 12/30/2008 10:12 AM (GMT -7)   

David,

I can't much add to what was said...just to let you know I'm following your story and rooting for you. Sorry you're having all this trouble. Don't lose your sense of humor and keep writing. (You write very well.) I hope this all works out for you real soon.


Rising PSA 12/06=1.6 12/07=2.1 5/08=2.6
Biopsy 6/4/08 12 core 4 Positive 15%,15%,8%,3%
Diagnose @ Age 51 Gleason 3+3=6
Bone & Cat Scans Normal
Lapro Surgery 8/18/08 at Memorial Sloan Kettering
Pathology report stage T2c organ confined with positive apical margin Gleason 3+3 = 6 (with tertiary grade 4)
Catheter removed 8/26 - reinserted 8/29 - removed 9/2
No continence or potency problems from the get-go.
First post op PSA 10/2/08 < 0.05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 12/30/2008 10:17 AM (GMT -7)   
hanging-in, thanks for the kind words. when i am not hurting, i fully realize these events are just temp set backs, doesn't mean the rest of my life will be that way. i still can see the beauty in things, the simplicity in other, and trust me, despite my pains and grumbling, i can still be the best of smart asses (excuse my french), love a good gag, giving or receiving. Last night, was just a long frustrating period, that I am sure will be behind me at some point with a logical medical solution. Thanks for your support.

david in sc
Age 56, 56 at DX
 
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
 
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
 
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. New appt. to see dr. on 1/5/9 as result.
 
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 12/30/2008 2:09 PM (GMT -7)   
David, I don't know what to think other than the "flap" theory sounds very plausible. If that's the case then ask the uro what to do to treat that problem. So sorry to hear about your mother, and hope her recovery goes well.

Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 688
   Posted 12/30/2008 3:05 PM (GMT -7)   
David,

So have you recovered, physically, from yesterday's debacle? Are you able to get around OK?
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day, removed again 14th day following negative cystogram
pT2c
lymph nodes negative
microscopic margins
next PSA 1/22/08

New Topic Post Reply Printable Version
40 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, February 21, 2018 6:42 AM (GMT -7)
There are a total of 2,931,565 posts in 321,660 threads.
View Active Threads


Who's Online
This forum has 160372 registered members. Please welcome our newest member, Todd1973.
339 Guest(s), 7 Registered Member(s) are currently online.  Details
Crispix, 1000Daisies, TxBart, Vin218, debsoap, straydog, Lanie G