13 weeks today... update

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jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 1/1/2009 5:02 PM (GMT -7)   
I had open surgery 13 weeks ago . My progress has been pretty by the numbers I feel. I gauge this by checking our site each day. Incontinence is still a problem.I load up 3 -4 pads a day but am dry during night. At night I no longer use a pad, just pull ups. It's not much but it is some bulk relief. For the record I use prevail underwear and pads. I use the ultra pad. I have a active job as a service tech so this works against me. I also work out regularly which increases leakage. I hope to see some  slow relief in the next couple months. I hope to be close to dry by summer. I would expect having to wear this stuff when it's warmer lends to all sorts of negative possibillities. I call our condition the curse and I hope to find the wizard with the magic to lift it. I know I will be fine in time. Joined zero club in December and hope to build on that in March. Good luck to all, and as always Carry On!!

 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 
Rich man in a poor mans shirt.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/1/2009 5:44 PM (GMT -7)   
Thanks for the update jersy sounds like things are going well for you. Stay dry my friend and please keep us updated.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 1/2/2009 7:38 AM (GMT -7)   
Congratulations on the start of a good New Year!

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0

 

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