Waiting on results from scan, PSA tests and such

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dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 1/3/2009 9:07 AM (GMT -7)   
I've been following how long some of us have had to wait on bone scan results, PSA tests and such.  It doesn't have to be that way.  Anytime I have anything done I request a copy of the results a day or two after the test has been conducted not from my doctor but from the place doing the test who will be sending the results to my doctor.  I also request a cd of the test if it's a scan or such, I have yet to be turned down on any of the requests.
 
There is another side to getting the results before seeing the doctor and it is that you may not completely understand what the results say but I have yet to run into that situation. 
 
I hate to see any of us being put through the waiting two weeks or so.  It's ridiculous.
 
David
 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 PSA-5.5
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 4/24/08 -Started on Lupron and Casodex preparing for HBRT and IMRT in late July.  This treatment will not preclude me from surgery if I change my mind.
Decide to have DaVinci surgery after another consult with surgeon.
6/19/08- DaVinci surgery at University of Washington.
6/25/08- Path report, clear margins, no noted extension
9/12/08- PSA <0.02 
12/05/08-PSA <0.02 Six months after surgery 


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 1/3/2009 9:49 AM (GMT -7)   
Waiting for test results...I don't know why it takes some doctors so long to report back on the results. Our urologist calls within 2 days with hubbie's follow-up PSA tests. Two weeks after diagnosis, doctor ordered a CAT scan followed immediately with an appointment to see him to discuss staging, treatment options, etc. We had the CAT at 4:00 pm and the doctor's appointment at 4:45. By the time we got in to see the doctor, he had the CAT results on his computer and showed us the results and explained what we were looking at. In our case, everything was done through one medical group so the lab gets everything back to the doctor electronically that same day. (BTW: CAT scan was clean, thank God!)

Surgery was on a Tuesday and hubbie was released on Thursday. Friday afternoon the surgeon called us with the pathology report. We are very lucky that we have never had to wait for anything from our doctor, including return phone calls. We are blessed to have such a humane and response man taking care of things for us.

And yes I agree that everyone should ask for a copy of all tests - we do. The only test we don't get copies of (because we haven't asked) are the PSA tests ... I don't want to know if the PSA is 0.02 or 0.03 - hearing the doctor say his PSA is 0.0 is good enough for me!

divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 1/3/2009 6:33 PM (GMT -7)   
Everyone has to make his own decisions.. I wish we had made the decision to change also. D
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
Waiting to see if AUS gets better results
Complete hip replacement surgery coming up Jan 9, 2009

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