How long before the big "O"

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down not out
Regular Member


Date Joined Jan 2009
Total Posts : 25
   Posted 1/4/2009 10:19 AM (GMT -6)   
Age 54
Retropubic prostatectomy 12-15-2008
Cath out 12-30-2008
No pads after first week
As a new member to the pc club, hello to all.
I would like to check out orgasm as soon as it is safe to do so. I have been going through the threads in this forum and I am as confused as ever as to a timeline to try for orgasm. I have read where doctors have said 3 weeks post-op, and others 8 weeks. The last appointment I had with my urologist was to remove my cath, the joy of having that "leash" removed over shadowed any questions I should of asked at that point. I am just curious as to what forum members have been told by their doctors. Thanks.
 

CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 1/4/2009 11:50 AM (GMT -6)   

Greetings and welcome to this board.  I think you will find it helpful and I know you will find people who have been in your shoes.

My doctor advised me to take Cialis/Levitra once or twice a week as soon as I got my catheter removed.  He also told me it would take some time for it to become effective.  Before I could take my first pill, I got a fairly firm (I'd say about 80%) erection so I called the office and was told I didn't need to take the pills if I didn't need them.  In hindsight, this was probably a mistake.  I found that I never got more than about 80% until I started taking the pills. Now I take one a couple of times a week (generic Levitra) and it seems to work almost 100% to what I was before surgery whenever I want it to.  By the way, I get the pills from AllDayChemist much cheaper than you can get them at a USA pharmacy.

My doc said even if I could get erections I shouldn't use them for 6 weeks - he wanted everything to heal in there and that was what he recommended.  I have heard others on this board say their doc said sooner was fine but my doc said 6 weeks. He has been great to me and I have complete trust in him so I continue to do what he says.

Trust things will go well with you and your recovery.  David


Age 55
Diagnosed Dec 2007 during annual routine physical
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 positive with 2 marginal
Gleason 3 + 3 = 6
RRP 4 Feb 08
Both nerves spared
Good pathology - no margins - all encapsulated - Gleason 4 + 3 = 7
Catheter out Feb 13 - wore pad for couple of days - pad free Feb 16
Great wife and family who take very good care of me


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/4/2009 12:19 PM (GMT -6)   
Welcome to the club DNO, I am sure folks will be jumping in real soon to share their journey and opinion. As you hear from different people battling PCa you will quickly learn how different we all are. Hang around and join the fun. We do not like new members that have cancer, because we do not like cancer. Thanks for joining and I look forward to hearing from you.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 761
   Posted 1/4/2009 12:26 PM (GMT -6)   
Hey Down Not Out,

Thanks for raising this topic. My surgery was on Dec 8, and I'm interested in the same question.

Does PCa affect one's brain? I was sure I read your post, or one just like it, 2 days ago. Anyway, my doc has prescribed 2.5 mg Cialis nightly. When I do have an erection, it can look about like before, but feels a bit odd inside. Like some tissues are being stretched, which they probably are. This is at about 3.5 weeks, so waiting until 6 weeks sounds reasonable to me.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day, removed again 14th day following negative cystogram
pT2c
lymph nodes negative
microscopic margins
next PSA 1/22/08


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/4/2009 12:47 PM (GMT -6)   
If you haven't discussed it yet, the best course is to call or visit your doctor and ask him/her when you can do it. Ask when you can have an orgasm and when you can have sex, the answer may be different. What we are told here by our docs doesn't necessarily apply to you and your surgery.

Welcome to the club, sorry you are here, and welcome to the other side. It's great to be on this side, isn't it?
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/19/07 PSA 7.6, referred to Urologist, recheck 6.7
7/11/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/17/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/24/07 Nerve sparing open Retropubic Radical Prostatectomy
9/26/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/4/2009 2:09 PM (GMT -6)   
I agree that you should talk to your Dr. He is the one that did the work and saw inside your body. I would just say that you had major trauma to the area and a few weeks of healing may go a lot further in your healing than a "Quick" pleasure experience. Just take your time and let your body heal.
Wish you well with your recovery.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 1/4/2009 3:55 PM (GMT -6)   
My doctor gave no specific guidelines -- so I had my first orgasm soon after the catheter came out, about 7-10 days after surgery. A new experience -- my first ever without an erection.
 
[Edit: I now remember I asked the nurse at the time he removed the catheter, and he said I could have sex whenever I felt like it. ]


Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week and 7-month PSAs: 0
Bimix injections working well 

Post Edited (Piano) : 1/4/2009 2:28:56 PM (GMT-7)


John Bonneville
New Member


Date Joined Sep 2008
Total Posts : 15
   Posted 1/4/2009 5:03 PM (GMT -6)   
Down Not Out, The question of wether or not you achieve orgasm at such an early post op stage, is in my view, somewhat of a non issue. However having said that, the importance of regaining erections as soon as possible post op, cannot be overstated in restoring penile health. I guess it is a bit like focusing on playing the game, rather than trying to score points.
Diagnosed March 2007, Age 57
Positive DRE, 12 Core Biopsy, 6 cores positive PCa,
Gleason 7 (4+3), Stage T2B
Rx 9 months LHRH ADT Lucrin, Neo Adjuvant,
Gold Seed implants 2 weeks prior to EBRT
70gy 3D Conformal EBRT

PSA: Nov 2006 = 6.0 ng/ml
May 2007 = 5.6 ng/ml * 1st Lucrin IMI
Aug 2007 = 0.85 ng/ml* 2nd Lucrin IMI
Nov 2007 = 0.45 ng/ml * 3rd Lucrin IMI
Jan 2008 = 0.29 ng/ml * 8 weeks EBRT and TURP in May
June 2008 = 0.12 ng/ml
Sept 2008 = 0.14 ng/ml
Dec 2008 = 0.1 ng/ml

* No incontinence, mild ED, which resoponds well to generic viagra.


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 761
   Posted 1/4/2009 6:08 PM (GMT -6)   
Good point, John. It's like exercise, and getting back into shape, so to speak.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day, removed again 14th day following negative cystogram
pT2c
lymph nodes negative
microscopic margins
next PSA 1/22/08


njw1108
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/4/2009 6:25 PM (GMT -6)   
hi all, new member here also. found out this forum after my surgery. 53 years old, had my robotic surgery 12/15/2008 and catheter removed 12/26/2008. was told both nerves spared. Have been taking viagra or cialis every other day since then but haven't really seen any result. I was able to achieve orgasm with a lot of stimulation although my surgeon told me not supposed to. He said i should wait for everything to heal better. I don't feel or feel very little hurt though as he described might happen. Wonder if it is ok for me to continue doing that despite his suggestion. also what is the dose of viagra or cialis for your guys? I had tried 50mg Viagra or 10mg cialis with no effect. Wonder if I should go the the whole pill, which is 100mg viagra or 20mg cialis. also the pump you guys talking about, are they the kind you see in adult store? or has to be the one prescribed by the surgeon? thank you very much in advance for all the suggestions! Happy 2009!

Post Edited (njw1108) : 1/4/2009 4:35:47 PM (GMT-7)


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 1/4/2009 8:26 PM (GMT -6)   
If you have already had an orgasm without ill effects, you may as well continue :-)

I don't use Viagra or Cialis, so can't comment on those -- but I do know that it can be a period of months before you see any effects.

Re the pump. Yes a cheapie from the adult store will work, but may not last very long. I broke mine after three months -- squeeze bulb split -- clearly not designed to last. However, while it lasts, the pump will be fine for exercise. For constriction, I used office rubber bands, surprisingly effective.

Although a lot more expensive, the medically approved pumps are better. They will last longer, and should have a better method of applying constriction rings. Also, if your surgeon prescribes it, it may be covered by your insurance.
Age 63. Other than cancer, in good health; BMI 20
Pre-op: No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores
7 March 2008, RRP, non nerve sparing
Two nights in hospital; catheter and staples out after 7 days
Continent, no pads needed from the get-go
Post Op: Stage pT2 M- N-; clear margins and lymph nodes; Gleason 4+4=8; prostate weight: 37gm
6-week and 7-month PSAs: 0
Bimix injections working well 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 1/4/2009 9:16 PM (GMT -6)   
Welcome njw1108,
The pump you're asking about is a VED(vacuum erection device). Some doctors will prescibe them and insurance will take care of most of the cost. There are battery operated devices as well as manual ones. I'm in a test group for the manual one with my urologist and I got it free. No returns. No one wants to have a used one. Go to Osbon.com for a demonstration and explanation. If necessary, ask your doc. The idea is to promote blood flow to the area to stimulate blood circulation and improve healing with continence and sexual function. Kind of like fighting atrophy from a broken leg with the cast removed and no rehab.

Sorry you had to come to the site but I think you'll find it the best place for feedback and experience.
Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


njw1108
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/4/2009 10:49 PM (GMT -6)   
Thank you guys! Those responses are very helpful!
Age 53
Diagnosed August 2008.
Biopsy: 3 of 12 cores positive
Gleason 3+3 = 6
robotic surgery at Providence St. Vincent Portland Oregon December 15, 2008
Catheter removed on December 26, 2008
lymph nodes negative
next PSA 1/20/09

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