Low Testosterone

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JonH
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/5/2009 7:03 PM (GMT -6)   
I had my testosterone level checked by my rehab doctor and it was very low. 100 when 300 is normal . He said it could involve something pushing on my pituitary gland or other things. Anybody have any experience with this?

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/5/2009 7:37 PM (GMT -6)   

Hi Jon,

There are some members here who will be able to talk to you about this.  Biker 90, and Swimom are two of them, but there are more.  
I understanding is that there is a condition ~ hypogonadism that affects testosterone production and is pituitary gland related.  The link below is from the Cleveland Clinic and discusses this condition.

http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/endocrinology/mhypogonadism/mhypogonadism.htm

I hope this helps some, but I know the other posters will tell you their stories...As for me, I have to live with my testosterone levels of less than 50.  We are trying to starve my advanced cancer.  I may get to feel the T levels rise once again but not for a few more months.

Tony


Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 

Post Edited (TC-LasVegas) : 1/5/2009 11:25:30 PM (GMT-7)


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/5/2009 8:27 PM (GMT -6)   
Hi Jon,
Welcome to the PC & Low T club. I'm sorry your here but you came to the RIGHT place, please stick around!
I am one of the guys who was diognosed with hypogonadizm. I read your 4 other posts and it looks like you were diognosed w/ PC but did not have any treatment yet. It would be helpful if you wrote more info about yourself such as your PSA & Gleason score. Like your Doc explained, there can be many causes for having low T and they may or may not find the cause. Through research and talking to lots of guys who had or have PC and low T online, I have come to the concusion that my radical prostatectomy caused such a trama to my testicles that now they do not produce T anymore. I'm not a Doctor and may be totally wrong but I didn't have a problem untill after my surgery and I have met others who have exactly the same history and problems as me. There are several means of  testosterone replacement theropy such as gels or shots but most doctors don't like prescribing it for anyone with a history of prostate cancer. Opinions are starting to change but most still thing giving you T replacement is like thowing gasoline on fire. You can see by my history below, I've been on TRT for over 2 years and my PSA is still zero but I went to many urologists, endocronologists and regular family doctors who said NO before I finally found one who said its your life and if you want to take the chance of getting the PC back vs quality of life issues then it was my choice. Swimom is our "T" mentor here on this site. She helped me and others tremendously "back when" and I'm sure she will chime in soon but it would greatly help if you gave us more info.  Good luck brother. I'll help you w/ any questions if I can.
Your Friend,
Pete      
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on a ship in the Atlantic and the other on a ship in the Pacific!!! I am one proud PaPa!!!!! 


Gerbe
Regular Member


Date Joined Sep 2008
Total Posts : 42
   Posted 1/5/2009 9:42 PM (GMT -6)   
I am a low 'T' guy too. Can anybody point to anything authoritative for or against the 'gasoline on a fire' assumption?

This moment, here and now, is nothing less than the totality of existence.
I can't control my life, but I can influence this moment.


Age 59
PSAs 1.6, 1.8, 2.0 at yearly intervals
Mild DRE finding (hindsight unrelated) lead to biopsy
3/08 1st biopsy, 18 core. Pathologist 1, HPIN and ASAP, 0.5mm 1 core. Pathologist 2, carcinoma
7/08 2nd biopsy, 16 core. Pathologist 1, 1 core carcinoma. Pathologist 3, 3 cores carcinoma
Urologist retired. Referred to another Dr in same practice, not experienced enough.
Robotic da Vinci performed 12/22/08, Univ of Washington Med Center, Dr. William Ellis. 6 hr procedure. Both nerves spared.
Catheter out 12/31/08. 
Final path report:
79 g prostate gland
1.5 cm^3 cancerous (<5%), bilateral, T2c, Gleason 3+4
Margins clear, seminal vessels clear, 14 lymph nodes negative
Aftermath notes:
Dry immediately after catheter out.
ED - some nocturnal erections even with catheter.
1st orgasm at two week mark. 50% erect, BJ w/o the mustard.
Needs more stimulation, orgasm ok, but my 'card deck' went into 52 card pickup mode, need to reprogram what this is for. 
 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 1/5/2009 11:55 PM (GMT -6)   
Hey Jon,

I was on testosterone replacement therapy (shots) for 10 years prior to getting prostate cancer. My urologist/surgeon is one of the "gas on the fire" guys and refused to let me us TRT after surgery. My T level dropped to 48 and I had lots of problems so I found a urologist who prescribed T shots for me again. I am two years out from an open prostatectomy and all my PSA tests have been 0.00.

Hypogonadism (ugly word) is devastating to some men. I had the usual hot flashes, muscle weakness and loss of libido plus I had a deep depression that nearly cost me my life. As soon as I took a T shot, all the symptoms disappeared.

Like Pete said, you have to weigh the risks against the quality of life you are experiencing and decide if the risk is worth the reward. We all react differently and urologists need to understand that Their "one size fits all" approach didn't work for me. Find a urologist who will listen to you. They are hard to find but its your life that's on the line so keep looking.

Good luck,

Jim
Age 74. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06.  Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + 1000 mg L-Arginine + .03 cc Trimix = Excellent Results
PSAs from  1/3/07 - 7/17/08 0.00. 
Next PSA test on 1/28/09
Lung cancer dxed on 5/16/08.  Surgery on 6/25/08  T1N1M0 - Stage IIA  Finished 4 cycles of chemo on 11/7/08.
CT scan on 12/2/08 - in remission!!!
Next scan on 2/26/09.
"Patience is essential, attitude is everything."


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/6/2009 5:34 AM (GMT -6)   
This is quite a coincedence guys! There is a good article written in the Boston Globe on this very subject written by Judy Foreman titled "I feel like a man again" on Monday 1/5/09. Google Boston Globe and on their home page put Testosterone in the search space and it will bring it right up. This article tells it like it is!
Your T friend,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on a ship in the Atlantic and the other on a ship in the Pacific!!! I am one proud PaPa!!!!! 


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3208
   Posted 1/6/2009 11:56 AM (GMT -6)   
Man! What I wouldnt give to feel a testosterone rush. My wife would like it too I'm sure. Someone needs to design a testosreone replacement therapy that is non Pca flammable
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!


keepingon
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 1/10/2009 1:35 AM (GMT -6)   
Are you on Zoladex? I think it trys to stop testrone at the putiuray gland
Found out Jan. 07
g\6
psa 116
Started Lupron to shrink it before surgery, did not work.
Radical prostentechomy Sept. 5.
Couldn't get it all, it was outside the sack and into lower lymph nodes.
Cathader removed about 3 months.
Incontinont for about 3 months
Peranial rectal absesses w/ drains for about 4 months <MRSA>
Continued Lupron until Oct. 08 <psa.04 to .06>.
Started losing weight. <194 to 170>
Now trying Zoladex, next shot in Dec. 18, then we will see what the PSA is, before deciding on future treatments.
Now in the T4 stage
Side effects:
Lupron=memory, tired all the time, joints and muscle aches, hot flashes.
Zoladex=memory, tired after doing something, left back rib cage is tender when inhaling, all joints and muscles below the waist ache, the worst is the left hip.
Went to the doc's today 12-18-08, stopped Zoladex today waitin on blood work to come back.
Blood work came back .07. now back on Zoladex for three months then we will see what happens.


Lance1949
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/19/2009 10:10 PM (GMT -6)   
I had a t-level problem but solved it by the application of a topical testosterone cream. This cream is formulated to apply to the scrotum which, apparently, increases takeup of the hormone.

I used to use AndroGel but it was very expensive, I ended up with a skin rash and had real problems spreading it on my back (as you would), didn't want the wife to do it for me because of the fear of her getting a dose as well and I stunk like a distillery.

These days I can get very good t-levels for $100 every 2 months and I don't need a prescription. The cream is imported from Australia and I have not had any problems getting it.

Rob Smith
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 2/3/2009 8:00 AM (GMT -6)   

Lance,

Is the T cream you use called Andromen Forte® 5% Testosterone Cream 50g?  If so, how has it made you feel?

Thanks,

Rob


Rob Smith
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 2/3/2009 8:08 AM (GMT -6)   
Pete,
 
I thinking about starting T therapy but I'm concerned that I'll stop producing T naturally all together.  Is this a possible side effect?  Can you tell me how the T gels make you feel?
 
Thanks,
Rob

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 2/3/2009 8:52 AM (GMT -6)   
Rob, There is a good chance you will stop producing T by using this stuff. my testicles are 1/4 the size they used to be and are very soft. They probably don't make T at all anymore and I don't know if they would if I stopped after using the Gel for 2 1/2 years. I can tell you that I feel much better than I did at castration levels of T. No more hot flashes, I have a sex drive again although it's not what it used to be. I am not completely dog tired all the time. I still suffer bouts of depression but there may be other reasons for it, I'm not sure but not nearly as bad as I was w/ low T. Overall, I'd say I feel much much better using Androgell than not. Drawbacks are, rashes if I get it mixed w/ my underarms deodorant. Man that hurts! Also, it gets to be a real pain putting on a handfull of the stuff ever morning. I'm up to 6 pumps which is a palm full! My wife also HATES the stuff, she says it gets on everything, especially bedding and blames it for symtoms she gets. She is also going through metapause so I'm not sure since the symptoms are the same. I am trying with out luck yet in talking my Uro into letting me use injections once every two weeks like Biker does. I think it would be so much easier! Let me know if you have anymore questions, I'd be glad to try to help!
Your T friend,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. 55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on an aircraft carrier heading for Hong Kong and the other on a Gator Freighter stationed in Norfolk, Va. I am one proud PaPa! 


Rob Smith
Regular Member


Date Joined Jan 2008
Total Posts : 23
   Posted 2/4/2009 10:58 AM (GMT -6)   

Pete,

Thanks for your response...it was very informative.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 2/4/2009 6:36 PM (GMT -6)   
heck I just want to lower my T level.

peace to all
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Tkay
New Member


Date Joined Mar 2010
Total Posts : 1
   Posted 3/5/2010 5:40 PM (GMT -6)   
Hi guys,
I am in desperate need of help. I am 26, and a former pro athlete. I have gone through 5 years of rehabilitation to get back playing rugby league but the past year has been so tough, I am luck I am still here. I have constant dizziness, loss of balance, slurred speech, loss of vision, nausia, constantly catching illnesses, shrunk genitals, headrushes etc etc etc. These have been every day for a year and so bad that I am often in bed for days. They are there constanly 24 hours a day, and I am beside myself. The only reason I have kept going is the chance I may play again.
I have been treated by anxiety teams, phsychologists, doctors, everything! I've had brain scans, blood tests, and am in and out of the doctor's every day. One finding is that me testosterone leves are very, very low. I have had thins before, but none of the physical side effects I have explained. I used testogel a few years back, but was taken off it when my levels were normal again. Crazy, I know! Anyway I have had 2 jags and am to get them every 3 months, but have noticed no difference. If anything I'm worse.
Different people are blaming anxiety and depression, but I know my body and something is far from right. It may sound crazy, but the symptoms are so bad that I often feel I am dying. Could this be low testosterone still. My life has gone from being a pro athlete with many friends and a love for life to being trapped in my room unable to function at all and with noone giving me answers. Please can anybody help? Things have been so bad that I accidently tok an overdose of painkillers and nearly died. The only way I have been surviving is the opiate based painkillers. I need my life back, and pray someone can confirm it could be the testosterone. I don't know where to turn. I haven't spoken to friends in months, I can't see my girlfriend as I can't perform sexually and my health is deteriorating every day.
Anyone, I am desperate and any response would mean the world to me, and could give me some hope I really really need.
Thankyou,
Tom
 

BOBKAT
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/24/2010 1:39 PM (GMT -6)   
I WAS DG IN MAY WITH A T TEST. LEVEL OF 241 AND WAS PUT ON ANDROGEL. IN THREE WEEKS MY LOW READING WAS UP TO 294 AND I WAS FEELING GREAT. THEN i GOT A TOOTH INFECTION AND DROPPED DOWN TO 194. NOW THE GEL IS NOT WORKING AND I FEEL LIKE CRAP. MY ONCOLOGIST IS INTERESTED IN MY CONDITION AND SHE IS DOING A PSA BLOOD TEST ON ME AS WELL AS SENDING ME IN FOR A BRAIN SCAN. I’m GLAD SHE HAS TAKEN AN INTEREST BECAUSE THIS CONDITION IS DRIVING ME CRAZY.

BOBKAT

Postop
Regular Member


Date Joined Feb 2010
Total Posts : 385
   Posted 7/24/2010 4:44 PM (GMT -6)   
If you google "Low T", you will find lots of advertising websites from pharmaceutical companies, such as Solvay Pharmaceuticals, who make Androgel. To my point of view, testosterone supplementation in order to have more engergy seems crazy. I guess it makes sense if you are a professional baseball player and want to set the major league home run record, or are a cyclist who's out to win the Tour de France and you are willing to pay any price and risk your health to acheive your goal.

Testosterone makes prostate tissue grow. Drugs like Avodart treat BPH by blocking the effects of testosterone by preventing its conversion to the active form, DHT. Testosterone makes most prostate cancer cells grow, and Lupron treats prostate cancer by lowering testosterone levels.

For decades women were put on hormone replacement therapy after menopause, until it was discovered that it was bad for them. When HRT fell out of favor, the number of new diagnoses of breast cancer fell within a year or two. See http://www.medicalnewstoday.com/articles/137915.php

Would testosterone replacement increase the risk of a younger man eventually developing prostate cancer or BPH? Would it increase the risk of recurrence in someone who's had treated prostate cancer and has a few lingering cells left behind? Would pharmaceutical companies actually promote the use of a treatment in order to create a new market for their products and make some money without adequate evidence that the treatment is really safe over the long term? Well, what do you think?

mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 370
   Posted 7/25/2010 12:49 PM (GMT -6)   
Post-op,
 
I dunno, I dunno what you say worries the heck out of me, and this is the reason I haven't done anything about my low testosterone level of 230. 18 months of 0 psas, no sign of reoccurrence since surgery. My surgeon said my chance of pca coming back is very low and he would give T to me if i wanted it. I am definately depressed, have no energy and low libido. But at this time I would rather take a standard antidepressant, get as much as exercise as I can and fight these symptoms this way. I don't want to risk salvage radiation therapy treatment followed by hormonal therapy than chemo by taking T, even though I'm sure I would feel a whole lot better with higher T than I do now.
my age=52 when all this happened,
DRE=negative
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 6 both cores,
Clinical Stage T1C
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery
No signs of spread, organ contained,
5 0's in a row now, 18 months out
Incontinence gone in early December '08,
ED still a problem, normal erections with manual effort but wife is now ill, not interested in sex anymore


AF_Aggie
New Member


Date Joined Nov 2010
Total Posts : 1
   Posted 11/2/2010 6:51 AM (GMT -6)   
yet another person in the Low-T club...

33 yrs old that is is pretty good shape with level of 105 and going through depression as well
What came first the Low T or depression? Chicken or the egg...??

Didn't think much of it initially, but fatigue was getting the best of me.. Not supposed to go to sleep at 6pm and wake up the next morning still tired.

Started out on androgel, but didn't seem to absorb well (also had a nice pink sunburn the summer)
I have been taking shots the last 3 months and stll not quite sure if I feel 100%

Wish I could find somebody in DFW area that was expert in the Low T and the depression.
Seems like one doc will knows about one but not the other.
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