Posted 1/6/2009 9:24 PM (GMT -6)
Brother warrior on PCa you have done decent with the numbers and stats you started with, better than some others with stats ,that would be comparable to yours. I presume the doc gave you casodex prior to Lupron, which is the proper protocol for patients especially higher risk ones, like yourself and even myself to prevent "flare" (in Dr. Strums-book, et al). Of course my brilliant uro-doc missed that and never informed me, I trusted his complete wisdom on PCa(like most people do). Not that I noticed any ill effects, but it still was not wise with high stats patients, and it might have made PCa worse for me.
Is your doc an oncologist or urologist? If he is a urologists, so far looks like all good, but considering your stats you should be treated by a PCa-oncologist for many reasons(if not now, the somewhere down the road is advised), just like surgeons should not do radiations, different ball park and game although looks similar, played differently (analogy here). The uro-doc does not specialize in oncology issues, i.e. systemic cancers and markers, prognostic variables, and alot more biology related stuff, basically. But, people can believe they do, if they wish.
My advice to you is keep studying up on all potential drugs in the PCa fight (again like Dr. Strums book mentions alot of them). Be forward looking in case you have to choose something else, perhaps way down the road (nobody knows time frames). It has been found that drugs sometimes can be revisted and work a second time either separately or in combo treatments, sometimes you have to consider switching to another for a better response or remission (per se). Lots of ways to fight this beast. All of us are fighting it in one form or another. Go to www.yananow.net and see what other protocols and people have done in their journey.
Be vigilant - (group herein would try to be helpful in various ways)
zufus- 7 yr. survivor of PCa, Dx-2002, bpsa 46.7 12/12 pos.bio. 75-95%, gleasons found 7,8,9's
(newest psa down to .65)-off drugs 2yrs., resumed recently just one particular drug