Day 55: New Operation Scheduled

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/8/2009 1:53 PM (GMT -7)   
Well, my dr. office called this afternoon, instead of scheduling another procedure at the dr. office on Friday as I had been told Monday, they have scheduled a surgery at St. Francis Hospital in Greenille at Noon, Tuesday the 13th.  Was told to report there 2 hours a head of time.  I am suppose to go to pre-op tommorow afternoon at 2:30 and was told to expect two hours.  I asked the nurse exactly what my dr. was calling this operation and what was the game plan.  She claimed she didn't exactly know, and didn't want to give me the wrong information.  That did a lot f or my confidence.
 
This day surgery will be almost 2 months to the day of my open RP.  Today makes 8 weeks since tha surgery, and as most know here, will be day 56 on the catheter.  I am wondering what they are going to do, was told will be all explained at pre-op.  I can only imagine another week or two on what will be cath #5 at that point to heal from this mystery operation.
 
If I don't get a satisfactory and clear answer at pre-op, you can be assured I will be calling my dr. at all costs.
 
Like my poor wife said upon hearing this development, there's no end to this.
 
David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, further tests/treatments 1/9/8.
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/8/2009 2:03 PM (GMT -7)   
I can only guess that they are gonna remove that flap that is obstructing the flow. Maybe they are wanting to do it under heavier anestesia (sp) or use some special technique, and or equipment. Tomorrow will give you plenty of time to investigate and decide, I would think.
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/8/2009 2:25 PM (GMT -7)   
Thats what I am thinking and hoping, the dr. might feel he's got one good shot to correct this, and wants to do it under the best of conditions. Him I trust, the rest of his staff has been flaky at best.

David
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, further tests/treatments 1/9/8.
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 201
   Posted 1/8/2009 2:31 PM (GMT -7)   

I think you're right.

Your doctor wants to give you the best chance he can that you'll be rid of that bag for good.

Dave


Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 1/8/2009 4:01 PM (GMT -7)   
Good luck David...I know that this has been a very long and difficult situation. I am confident that your doctor is wanting to give this the best possible shot at correcting this catheter issue once and for all. I believe what will take place is what James said. Hang in there...
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base)
Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1,2008
Gleason 7 (4+3) Staged pT2c NO MX
Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 08 <.05


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 1/8/2009 4:40 PM (GMT -7)   
That's right David, Pete had something like that. They go in to remove scar tissue....You will be helped. We really know what you are going through..Pete had a catheter in for a year before they did this operation. And I want to thank you for all your kind and wonderfully funny and nice remarks in your posts. You are a special person....You will be fine... I will be thinking of you and your wife and family........by the way, Pete goes in for surgery tomorrow also....the hip....His UTI cleared up......!! We are happy tonight......Best wishes, Diane and Pete....xxx
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
Waiting to see if AUS gets better results
Complete hip replacement surgery coming up Jan 9, 2009


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 1/8/2009 5:12 PM (GMT -7)   

I hope this surgery is successful and you can finally get on the road to recovery.  Best of luck to you.  I hope your Dr. brings his A game.

Allan


Age 54 at Dx.   Currently 58
Jly 05- PSA 8.1
Sept 05- PSA 10.7
Sept 05- Biopsy revealed 9 of 12 cancerous, Gleason 3+3=6, T2 stage
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- Surgery for bone biopsy.  Pathology showed benign growth, no cancer in bones. Who ever thought I would be happy to only have PCa?
Nov 05- PSA 15.4
Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, SLC, UT by Dr. Robert Stevenson. 
Home after 3 days.Cath out at 2 wks.
Incontinence gradually improved for about 3 months to 100% continence.
ED- Tried the big 3 pills with no results
Feb 06- PSA undetectable, Started VED which worked but caused discomfort with constriction rings.
May 06- PSA undetectable, Dr. gave me an Rx for Trimx injections. They work great.  Still use VED on off days without constriction for therapy.
Aug 06- PSA undetectable 
Nov 06, May 07, Nov 07, May 08, Nov 08 - PSA undetectable
ED appears to be perminant but doing great with Trimix.


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 1/8/2009 5:32 PM (GMT -7)   
Best wishes Dave. When you get this behind you you will no longer be the star attraction of the site ,to your pleasure. As always Carry On!!!

 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 
Rich man in a poor mans shirt.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/8/2009 6:56 PM (GMT -7)   
gee jersey, i have no desire to be a star here *blush*, in real life, i am a very private person, don't' like to seek the lime light, hate to be photoed. Writing is my thing, so perhaps I am being too descriptive here. I don't consider my case to be any more special or interesting then anyone elses.

I feel for the other men and their wives and families as much as my own, we are in a unique club, one we hate to be in, but it is what it is, and we are here to help each other through the tough times.

diane: my thoughts will be on you and pete as he has his surgery tommorow, glad his uti cleared up in time, as i am sure you two want to get this behind you too, and oh boy, more healing.

thanks to everyone else, as they read my never ending saga. i guess one day i will have nothing to say and will simply shut up :)

david in sc
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, further tests/treatments 1/9/8.
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/8/2009 7:18 PM (GMT -7)   
Thanks Mikey,

The care and compassion level and patient involvement of my dr/surgeon is among the best i've ever had in my life through many medical crisises. I know he really cares what he is doing, and I believe he's thinking of my best interest.

Me shut up? I don't think I believed then when I typed it! lol.

David
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, further tests/treatments 1/9/8.
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Bluenose
Regular Member


Date Joined May 2008
Total Posts : 260
   Posted 1/8/2009 7:37 PM (GMT -7)   

 

...well, you are a trusting lad........Good luck brother!


 
   age: 53
   Pre-0p PSA  Feb. 08, 5.0
      4.22.08, 4.1
      Biopsy 5.1.08 
      Gleason-3+4=7
      T2a
      5 of 15 cores positive
      Da Vinci scheduled..7.29.08..as I read somewhere on this 
      site....."the first show of the day"
       DaVinci completed 7.29.08,
       Bladder Sling installed, umbilical hernia repair  
       completed during surgery.    
        Sent home 30hrs,  JP drain in place 7days,
       Path report "cancer fully contained"....Margins clear
        Cath removed 8.8.08(ten days)...one lightly used pad 24 hours
        ED therapy begins 8.9.08. 100mg viagra three times a week,
        pump everyday and hold for ten minutes.
        8.16.08 switched to Levitra 20mg.......whahoo, got lucky...
        immediate results..... 
        9.15.08 pad free at night, one thin (light) pad during the daytime
        hours. Just because I'm chicken..!
         9.18.08 1st post-0p-PSA-Undetectable...Zero's!  Yes!
         12.22.08 2nd post-op PSA-Zeros still...  
          Pads gone 1.3.09,finally found the strength..it's all good! 
          Thanks ya'all..
 
        
           .."just tryin' to reason with hurricane season"..
 
                                                                         
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
       


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 1/8/2009 8:11 PM (GMT -7)   
Hey David,
After reading my post it did not come out like it was in my head. We are all concerned with the rough road you have been on. You can be assured my thoughts are all positive for you. At times we all have taken a leap of faith. I know I would not be able to handle all that has come at you of late. Your positive attitude has helped all of us on both sides of surgery. Faith will be rewarded.
 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 
Rich man in a poor mans shirt.


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 688
   Posted 1/8/2009 10:07 PM (GMT -7)   
David,

Even though I've nearly turned back into a lurker, I think of you (and the rest of the gang) often. Tuesday it is, another milestone. Do you even know if you will stay overnight? Just wondering when we can hope to hear a report from you. If it's what many of us guess, it shouldn't be anywhere near as complicated as the previous surgery.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day, removed again 14th day following negative cystogram
pT2c
lymph nodes negative
microscopic margins
next PSA 1/22/08


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/9/2009 7:05 AM (GMT -7)   
jersey - no problem, i knew what you meant, and i am not that brave or positive, just human fraility like the rest of us here. i am a person that can deal with reality, good or bad, as long as i feel i have the facts in front of me, i can adjust quickly to a new reality.

dj- no one is expecting this to turn into a big thing, suppose to be a one hour slot for the OR room at the hospital. Like all ops or procedures, there's always a chance of complications, but I am not looking for that to happen. After I am released from the recovery room, hoping my wife simply drives me home. I am expecting my weiner and associated parts to be in an new level of hurt when the drugs wear off.

david in sc
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, further tests/treatments 1/9/8.
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 1/9/2009 7:20 AM (GMT -7)   

Hey, David

It's got to be to finally get you fixed up properly.  Good luck on that and I hope you can get this ordeal behind you so you can move on to getting the rest of your healing done.  Take your time, Brother, and know that we are thinking of you.  My best to your Mom.

Bob


 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/9/2009 7:44 AM (GMT -7)   
David

Good luck next week and may this be the answer for you to start to recover fully and back to your normal self.

My thoughts will be with you next Tuesday
Norskie
norskie
Current age 50, Age at Dx-48 PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .422 Begin Salvage Radiation April, 14 2008
Radiation Complete June 4, 2008 36 treatments
August 5, 2008 PSA .09 or < .1 again
October 9, 2008 PSA <.06 or as low as my clinic can read.
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/9/2009 8:06 AM (GMT -7)   
Thanks guys, that's what I am hoping for. My mom is back in her own house now, and we are hoping for the best. The stroke was fairly mild considering her age, and it only affected her speech and communications, which has improved remarkebly in just 2 weeks.

David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, further tests/treatments 1/9/8.
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


DoingFine
Regular Member


Date Joined Sep 2008
Total Posts : 46
   Posted 1/9/2009 8:24 AM (GMT -7)   
David

I wish you the best on your journey.

Cheers,
Rich
Age at dx: 51 Age now: 52
Great health: Riding bike 200+ miles weekly; no symptoms
First PSA: 4.7 March 2008 (bummer)
Second PSA: 4.97 June 2008
Biopsy June 2008
Positive 5 of 12 cores (real bummer) T1c
Gleason 3+3
Bone scan: 7 July negative
RRP surgery 3 Sept 2008 at the Mayo Clinic: Rochester, MN
All clear
Catheter out 22 Sept 8:30 AM, catheter back in at 11:30 (not happy)
Catheter out 30 Sept (this time for good!)
Total continence, no erectile difficulties from day one (Cialis 10mg daily)
Back on bike 15 Oct. (42 days . . . with doc's approval)
Dec. 2 2008 psa Undetectable!

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