2 year anniversary

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norskie
Regular Member


Date Joined Jan 2007
Total Posts : 376
   Posted 1/9/2009 9:36 AM (GMT -6)   
It was two years ago today that I started what I hope turns out to be the rest of my life. It's hard to believe it's been 2 years since I underwent surgery for prostate cancer and started the journey. It's been one that has taken me from highs of thinking the surgery had taken care of the problem to the lows of having reacurrance readings of PSA about 10 months later and undergoing salvage radiation and the good results at least to date of that treatment. One will never know for sure what tomorrow holds so I choose to live today to the most it can bring. It's changed me both physically and mentally and I know how lucky I am to have this chance. Enjoy life and meet and love family, friends and people in general. I don't get here as much as I used to or would like to but I will still try as best I can. This site was a great help to me as I went through my trials and I can't say enough about the support this site gave me.
So I hope all can have great tests and reports and treatments and never lose the faith and hope and enjoy people and have fun for we are all here today for each other.
 
Norskie
norskie
Current age 50, Age at Dx-48 PSA 6.22 on 9-26-06
Biopsy 11-01-06, 2 of 13 cores 10% cancer, 2 other cores abnormal Up-dated 20% prostate cancerous
Gleason score 3+3=6 After Surgery Pathology report 4+3=7 a couple agressive Grade 5 cells found
Da Vinci surgery 01-09-07 UW Madison
Pathology Report- cancer 100 % capsual contained 1-18-07
1st & 2nd Post PSA Blood Test .1 and less - Undetectable
3nd Post PSA Blood Test 01-17-07 .3
March 27th PSA .422 Begin Salvage Radiation April, 14 2008
Radiation Complete June 4, 2008 36 treatments
August 5, 2008 PSA .09 or < .1 again
October 9, 2008 PSA <.06 or as low as my clinic can read.
Incontenence-Pad free since end of May 07 4 1/2 months post surgery 
ED back to 95% prior to surgery - no medication required.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 1/9/2009 10:09 AM (GMT -6)   
Norskie, your signature tells the path you have been on, and I am happy to hear that you have been putting up the big fight all the way. You sound good, and I hope it stays that way for you. Two years is such an important milestone in our world. Only the best for you and your family.

David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, further tests/treatments 1/9/8.
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/9/2009 10:37 AM (GMT -6)   
norskie, thanks for sharing that. It's good to hear from the seasoned veterans and to see the impact of this wonderful site on their lives. I hope you are still posting here 20 years from now, but only to share how things were back in the old days at the turn of the century.. wink
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 1/9/2009 11:27 AM (GMT -6)   
Congrats on the anniversary! May you have a lifetime of cancer free anniversarys. All the best!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


aqha
New Member


Date Joined Jan 2009
Total Posts : 19
   Posted 1/9/2009 1:20 PM (GMT -6)   
My husband had his first PSA and it has come back 87.61 !!!! I am an RN but have not dealt with ca. I am sure that this is probably a very aggressive condition. He will see the urologist on Monday. I am terrified. Anyone had anywhere near this high?

Thanks,

strawberry man
Regular Member


Date Joined Dec 2008
Total Posts : 23
   Posted 1/9/2009 1:28 PM (GMT -6)   
Dx 4/21/08 psa 9.7 58 years old
Biopsy results 3 areas of 3+3=6 gleason
Di Vinci surgery 6/3/08
Post op 3 months and 6 months - all clear
0 psa

I have never heard of that high of a psa. I was terrified too when I thought I had prostate cancer, and even more when got the results. But now 6 months later I am fine, the post op problems that I have are nothing compared to having cancer.
Will pray for your family, trust in God!

Frank1205
Regular Member


Date Joined Feb 2008
Total Posts : 308
   Posted 1/9/2009 5:13 PM (GMT -6)   

Norskie,

Glad to hear of your progress and current condition.  I too have to watch my PSA often for a rise because of the bad margin I had.  Just did my 9 month at .01.  I hope the salvage radiation does the job for you.  The way I figure you have had two not one recognized procedures to beat this cancer.  Just increased you chances for a cure by 100%.

All the best,

Frank


Age 54
DRE normal , 2004 Biospy negative - 2008 Biopsy positive (01-08-08)
10 cores, 1 positive and at 1% of that one core
PSA @ surgery 6 
Bone and Ct scans negative
clinicaly Staged at T1C - Gleason 3+3 = 6
Robotic Da Vinci performed March 27th, 2008, University of Chicago.
Catheter out in 7 days normaly expected leakage
Post Pathology T2C, Gleason 7, (3+4) 10 % of both portions of prostate
Seminal vessels clear, fat tissue clear, single positve margin at apex measuring less than 1/2mm. 
PSA Six week < 0.1 4 month PSA <.05 6 month PSA<0.01,9 month<0.01
Watching PSA @ 3 months for 2 years,  will do salvage radiation if necessary.
Fair to Good results with Viagra,  side effects are bothersome at times. 
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/9/2009 6:06 PM (GMT -6)   
Doesn't time fly when your having fun. Seriously though, that is great news following the radiation treatment and your subsequent recovery and may it continue always.
Bill

PS......Norski, that "3rd post PSA Blood Test" in your signature says '07. Should it say '08, just prior to your salvage therapy?
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 1/9/2009 6:42 PM (GMT -6)   
Hi Norski,

A wonderful account of your experience. We are not at 2 years exactly yet, as we waited long to decide on the decision options for treatment, but my husband IS at 2 years in terms of diagnosis, so we understand your elation at recovery and reflection on the 2 years journey just past. Good luck and here's to a future of health and living. Thanks for update and words of great wisdom! All the very best on your milestone anniversary Norski. cheers and stay well, Lana & CJ.
Creed_three
Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03: November, 2008 (repeat PSA with instructions to lab to calibrate carefully) = 0.02.
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 1/9/2009 6:54 PM (GMT -6)   
Dear Norski, Great news....and how we wish we could have had your outcome. We did the opposite. Radiation first,,,then the surgery....Not so great...You will be good now....Fight on, eat sensibly, drink green tea, pomegranite juice, vitamin D3, and enjoy your life and your wife! Di and keep coming back here. We want to know what you are doing... xx
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
Waiting to see if AUS gets better results
Complete hip replacement surgery coming up Jan 9, 2009


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 1/10/2009 1:08 AM (GMT -6)   
Congradulations Norskie

It is so good to hear good news also. I not only need to pray for those with the bad news but praise the good news also.
Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/10/2009 1:37 AM (GMT -6)   
Hi Norskie,
Perfect!!! I remember the day of your surgery well. I was still new to this but I had your experience to watch, the other guy in his 40's, and you did so well. It gave me such hope. I was blown away when you had a PSA rise after "full containment". It shows why we always have to stay diligent. And you showed such grace and courage when you went into round 2. You'll always be my buddy here!

One more time for old times sake: Cheers!

Bless you my friend!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/10/2009 10:53 PM (GMT -6)   
Always great to hear from you Norskie. You are an inspiration to many my friend. Hang in there and I look forward to hearing from you soon.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 

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