Uncomfortable/Painful Orgasm

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califlostnspace
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/11/2009 12:46 PM (GMT -7)   
Hi All,
my Dr. told me to start taking Viagra a week or so after the surgery.  I did not want anything to happen while I was using a catheter so I waited until a few days after the catheter was pulled.  I had the catheter for 15 days.  took Viagra on 18th day.  did not get an erection, just slightly longer.  had an orgasm that was slightly painful and uncomfortable, don't really know how to describe it.  will this go away after more healing time?  Dr. wants me to take 50mg twice weekly of the Viagra. 
6'3"
205 lbs.
age at diagnosis:  51
diagnosed summer of 08
no symptoms
PSA  4.4
Radical Robotic Prostatectomy done with Da Vinci at UCSF on 12/23/08
catheter removed 1/7/09
my local urologist referred me to a urologist at UCSF for the Da Vanci operation mainly because I had two
mesh panels in lower abdomen due to 2 hernia repairs 12 and 16 years ago
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/11/2009 1:12 PM (GMT -7)   
Yep, the first time can be uncomfortable, but things do settle down and continue improving as time and practice goes on... tongue ED rehab can be a long and frustrating process, here's hopping you are one of the lucky ones,....
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
Post Surgery PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 1 Year-.02.


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/11/2009 3:21 PM (GMT -7)   
Agree with James C. I distinctly remember the early days while not being painful, could well be described as uncomfortable and different. This passed after a short time I guess with healing.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 1/12/2009 12:12 PM (GMT -7)   
So soon after the catheter was removed, maybe you should have (and should) wait some additional period of time before doing this again.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0

 


DoingFine
Regular Member


Date Joined Sep 2008
Total Posts : 46
   Posted 1/12/2009 12:18 PM (GMT -7)   
Hi

I had / have the same thing . . . almost as if the catheter bruised the inside of the penis. The frequency and severity of the pain seems to be diminishing.

Since I too am quite new at this . . . I take everyone (including the docs) at their word; all will heal in time.

Cheers,
Rich
Age at dx: 51 Age now: 52
Great health: Riding bike 200+ miles weekly; no symptoms
First PSA: 4.7 March 2008 (bummer)
Second PSA: 4.97 June 2008
Biopsy June 2008
Positive 5 of 12 cores (real bummer) T1c
Gleason 3+3
Bone scan: 7 July negative
RRP surgery 3 Sept 2008 at the Mayo Clinic: Rochester, MN
All clear
Catheter out 22 Sept 8:30 AM, catheter back in at 11:30 (not happy)
Catheter out 30 Sept (this time for good!)
Total continence, no erectile difficulties from day one (Cialis 10mg daily)
Back on bike 15 Oct. (42 days . . . with doc's approval)
Dec. 2 2008 psa Undetectable!


califlostnspace
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/12/2009 1:44 PM (GMT -7)   
Mavica said...
So soon after the catheter was removed, maybe you should have (and should) wait some additional period of time before doing this again.

Thanks, those were my exact thoughts! 
6'3"
205 lbs.
age at diagnosis:  51
diagnosed summer of 08
no symptoms
PSA  4.4
Radical Robotic Prostatectomy done with Da Vinci at UCSF on 12/23/08
catheter removed 1/7/09
my local urologist referred me to a urologist at UCSF for the Da Vanci operation mainly because I had two
mesh panels in lower abdomen due to 2 hernia repairs 12 and 16 years ago
 
 


Matthewsti
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 1/13/2009 1:36 PM (GMT -7)   
Good luck.  Unfortunately for me and unbeknownst to me prior to surgery, I had not insurance coverage for ED even if it was cancer surgery related.  Lost the appeal even with the dr's support.  Therefore, I could not afford Viagra and still suffer with ED.  At 51 I have resigned myself to give up sex and sometimes on life.  I feel I've been neutered.

califlostnspace
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/14/2009 1:35 PM (GMT -7)   
Matthewsti said...
Good luck.  Unfortunately for me and unbeknownst to me prior to surgery, I had not insurance coverage for ED even if it was cancer surgery related.  Lost the appeal even with the dr's support.  Therefore, I could not afford Viagra and still suffer with ED.  At 51 I have resigned myself to give up sex and sometimes on life.  I feel I've been neutered.

I am truly sorry to hear that.  my dr. said I might have problems getting the insurance companies to pay for the Viagra so he added to the script that the Viagra was for "vasodilation".  my insurance paid for 10 pills which would be 20 doses.  it will be interesting to see what happens when I try to get a refill. 
6'3"
205 lbs.
age at diagnosis:  51
diagnosed summer of 08
no symptoms
PSA  4.4
bone scan was normal
Radical Robotic Prostatectomy done with Da Vinci at UCSF on 12/23/08 by Dr. Peter Carroll
catheter removed 1/7/09
my local urologist referred me to a urologist at UCSF for the Da Vanci operation mainly because I had two
mesh panels in lower abdomen due to 2 hernia repairs 12 and 16 years ago
3 weeks post op I get a path report:   
 Your pathology results looked great.  Your final tumor grade was a Gleason 3+3, which was the same as your biospy grade.  The tumor did not extend outside of the prostate and all surgical resecetion margins were negative (meaning no tumor left behind).  The tumor did not involve the seminal vesicles.
Basically, the pathology is about as good as we could have hoped for.


Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 201
   Posted 1/14/2009 2:08 PM (GMT -7)   

You can order generic viagra from alldaychemist.com for about 58 cents per pill.  I've been using these generic pills for about 2 years now.  In my opinion, they work as well as the real thing.


Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.

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