Post Prosthesis Dissappointment

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texdoc48
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 1/12/2009 1:30 AM (GMT -7)   
I had the high-dollar 3-part penile prosthesis installed 6 weeks ago and began testing it while on vacation about a week ago. To say that I am disappointed, is an understatement. When I got a look at my new equipment, I darn near lost it...absolutely broke down. This was the one (last) thing that I was depending on to restore some semblance of a once normal life and marriage.

My once formidable dick is now 4" long and 4.75" in circumference. It may as well be my thumb. I made it very clear to the doctor on several occasions that I was originally 7" in length and 6.75 " in circumference. What I have now seems like a cruel joke - I am at best, only 1/3 of what I used to be. When fully erect at 4 inches, I can pinch up a significant amount of loose skin on the shaft indicating that there is still plenty of room for expansion but the cylinders seem incapable of expanding to any significant degree....only lengthening.

I had prostatic cryosurgery two years ago followed by one year of Lupron (Eligard) and I expected to lose some length perhaps up to 2 inches but not 3" and most certainly, not 2" of circumference.

I would sincerely appreciate any comments on this disaster. Am I getting upset over nothing? Will this device eventually work it's way back to normal size or am I permanently screwed? This surgery cost $48K and I cannot afford a correction to replace the smaller diameter cylinders with ones that will bring me up to my original size.

Any comments, suggestions or pointers will be sincerely appreciated. Thank you for your kind assistance in this matter.

Texdoc48@yahoo.com

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/12/2009 5:26 PM (GMT -7)   

    Hey TX,  There are a few guys here that have had the IPP.  I'm sure one of them will reply soon.  I do have a queston.  Is your device the AMS model or another manufacturer?  Hope you get some answers soon.

    Good Luck, KW


    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 1/12/2009 9:25 PM (GMT -7)   
texdoc48 said...
I had the high-dollar 3-part penile prosthesis installed 6 weeks ago and began testing it while on vacation about a week ago. To say that I am disappointed, is an understatement. When I got a look at my new equipment, I darn near lost it...absolutely broke down. This was the one (last) thing that I was depending on to restore some semblance of a once normal life and marriage.

My once formidable dick is now 4" long and 4.75" in circumference. It may as well be my thumb. I made it very clear to the doctor on several occasions that I was originally 7" in length and 6.75 " in circumference. What I have now seems like a cruel joke - I am at best, only 1/3 of what I used to be. When fully erect at 4 inches, I can pinch up a significant amount of loose skin on the shaft indicating that there is still plenty of room for expansion but the cylinders seem incapable of expanding to any significant degree....only lengthening.

I had prostatic cryosurgery two years ago followed by one year of Lupron (Eligard) and I expected to lose some length perhaps up to 2 inches but not 3" and most certainly, not 2" of circumference.

I would sincerely appreciate any comments on this disaster. Am I getting upset over nothing? Will this device eventually work it's way back to normal size or am I permanently screwed? This surgery cost $48K and I cannot afford a correction to replace the smaller diameter cylinders with ones that will bring me up to my original size.

Any comments, suggestions or pointers will be sincerely appreciated. Thank you for your kind assistance in this matter.

Texdoc48@yahoo.com

Hey Texdoc48 -

Sorry to hear about the problems. I know the issues that the implant can cause. There can be a variety of reasons for the problems. And I have learned the hard way that the most highly rated and expensive doc are not necessarily the best. You can see that in my signature. You may gain some length over time, depending on the model implanted. The one problem with some patients is scarring that results in length loss, but usually that is on a reimplantation procedure, not initial implant. Sizing is critical in the implant, so it is important to find out what size & type of implant cylinders were used. If it is an AMX model, you could have three different types. Once you know that, you can go forward. I have lots of experience in this—so we can talk further.

Art

1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 1/14/2009 8:03 AM (GMT -7)   

Texdoc,

Sorry I missed your post until now.  Art is the most experienced on this forum and maybe anywhere else.  He mentioned the AMX but he may have meant the AMS... not sure about that.  I know the AMS people have two different 3-piece devices:  The LGX and the CX.  The CX seems to be better with regidity of erection and girth and the LGX seems to do better on the length.  At least that is what I have deducted through my months of expeience with the implant.  So find out which device you have.

One indication that there is a mis-size is a floppiness with the head of the penis when pumped up.  It sounds as if you may...may have been mis-sized.  The LGX actually expands up into the head of the penis whereas the CX does not. 

Most guys receiving the implant notice some shortening of length and girth.  I did not expeience shortening of the girth but did experience a shortening of the length...anywhere from 3/4 of an inch to an inch. 

As to the cost of a re-do, you may... may have a case for a re-do.  But I would not know for sure about that.

Since you are "Texdoc48" I suspect you live somewhere in Texas.  I live in Dallas.  If you want to talk, email me (available at side-bar) and I'll email you my contact information.  

Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 


Art662
Regular Member


Date Joined Sep 2008
Total Posts : 54
   Posted 1/14/2009 3:38 PM (GMT -7)   
Hey Gene—You’re right - I meant AMS. From my experience they will not own up to a redo. Gene is also right on the models available. Sizing is most important. One consideration is your body architecture. For instance, they may place the implant cylinders further back from the head if the tissues are not dense. Erosion can occur to those who have this condition. In my case I have weakened tunica, which allows the cylinders to bulge outward. I have had two surgeries to try and correct this. To many patients, this is never a problem. If Texas is like me, there is no insurance coverage available– even when you are covered under a conventional medical policy, most exclude this condition. (In Indiana, all private policies exclude anything related to ed.) , so I assume this was an out of pocket expense. In Texas, the partner of the late F. Brantly Scott is still practicing. Irving Fishman in Houston. Texas will need to find out the model type and that will give him a place to start.
1979: Organic impotence at age 25 from drug reaction to coumadin.
1979 Half shunt & vena cava clip emergency surgery - 4 weeks in Ohio State Medical Center
1981 IPP implanted - 3 1/2 weeks Baylor U. Houston by F. Brantley Scott
1981 IPP replaced - 10 days Baylor U. Houston by F. Brantley Scott
1985 IPP replaced IPP due to implant shift - 1 week Mayo Clinic by William Furlow
1985 IPP replaced, penile degloving to correct scarring, shortening and cylinder contracture. Suspensatory Ligament procedure - 2 1/2 weeks Mayo Clinic by William Furlow
1989 IPP replaced, repair of Tunica albuginea around corpora cavernosa . Degloving to relive penile shortening - 10 days Baylor U. Houston by F. Brantley Scott.
2000 IPP removed due to fluid loss and possible infection - 6 days Cleveland Clinic by Dr. Karl Montague
2000 IPP replaced - 4 days Cleveland Clinic by Dr. Karl Montague.
2002 IPP replaced, penile degloving to correct penile shortening due to IPP removal for 2 months. Repair of Tunica albuginea around corpora cavernosa - 3 days U of Washington, Seattle Dr. Richard Berger.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 1/15/2009 8:24 PM (GMT -7)   
Texdoc,
Anothler thought.  You did not mention the doctor activating your device.  That's what normally hapens and the patient is advised not to touch anything until he does so.  Did you just start pumping without the doctor's instructions?  If so, you should contact him for an appointment.
 
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Removal of stricture 6-07, incontinence continues
Scheduled for AUS & IPP 05-08
Surgeon cancelled one day pre-surgery, due to cardiac concerns
Nuclear stress 5/13/08
3 stents 5/27
AUS, IPP implanted 07-16-08
AUS, IPP was activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices are working very good and surgeon was very pleased that I am very pleased.
 

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