0.1 and a stupid question

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 1/12/2009 5:35 PM (GMT -7)   
Hi:
I know I don't post all that often, but I am still lurking.
 
January update.  My PSA post surgery and radiation remains 0.1.
 
So I am still in PSA limbo or purgatory or whatever.  Wish it was 0.0 but thankful it has not risen.
 
So I still have a silly question that I don't have an answer to.
 
Given someone with my metrics and staging..stage T3A (positive margins), surgery and
then salvage radiation, is it possible for my PSA to stay 0.1..forever..or at least until
I die in my sleep at age 94.
 
Or will it eventually either (1) go down to 0, (2) start to rise.
 
Do any of you know any cases where it has stayed 0.1 forever?
 
I asked this question to both my urologist and radiologist and got two different
answers.  My radiologist said he knew of no cases where this happened, that it
eventually rises or goes to 0.  My urologist said he had plenty of cases where the
PSA stayed at 0.1..forever.
 
So I dunno what the answer to my stupid question here is.
52 Year Old DBA by profession; amateur pianist by passion.
 
June and Aug 2006:  PSA 4.6.  DRE prostate enlarged.  Second opinion
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb, May  2007:  PSA 0.0 (under 0.1)
Aug, Nov  2007 and Feb 2008:  PSA 0.1
Mar-May  2008:  IMRT Radiation..completed May 1, 2008 
 
Trying my hand at blogging.


mozart250
Regular Member


Date Joined Jan 2007
Total Posts : 102
   Posted 1/12/2009 5:49 PM (GMT -7)   
Hmm..I changed my signature and it is not showing up.  Trying again.
 
And the change did not show up again.  Hmm.


52 Year Old DBA by profession; amateur pianist by passion.
 
June and Aug 2006:  PSA 4.6.  DRE prostate enlarged.  Second opinion
Sep  2006:  Biopsy results positive one lobe.  Gleason 3+3.
Nov  2006:  RPA performed at Fletcher Allen in Burlington VT.
Nov  2006:  Pathology report: Stage T3a and Gleason 3+4.
Dec  2006:  PSA 0.1
Feb, May  2007:  PSA 0.0 (under 0.1)
Aug, Nov  2007 and Feb 2008:  PSA 0.1
Mar-May  2008:  IMRT Radiation..completed May 1, 2008 
 
Trying my hand at blogging.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/12/2009 5:52 PM (GMT -7)   
Hi Rick,
Not a bad question at all. A PSA as low as 0.1 can be PSA through other means such as adrenally secreted. It is unusual but it is possible. It is also possible that you do have residual disease that has become dormant. A third option is that the PSA ASSAY testing facility is not including a < symbol. I wouldn't worry about it unless it started to trend upward again. Stay diligent, but enjoy the remission...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 1/13/2009 8:40 AM (GMT -7)   
I doubt anyone here will have the answer you're looking for.  The Urologist is probably the better source than the Radiologist - because of their particular practice areas.  The Urologist can speak from his own practice experience, and from what he's learned through reading and research - but each of the specialists (Urologists) is different and their experiences are going to vary.
 
I'm about 4 months post-op and my last visit with the surgeon/Urologist was December 24th.  My second post-op PSA test is being reported as "0.0".  I asked the Urologist if he could tell me if the results were 0.01, 0.02, etc.  He said, "No."  The university (Northwestern in Chicago) reports only to the .0 (.1, .2, etc. levels, not further) because, he said, such differences were insignificant.  He also told me that I shouldn't be too concerned if my test results showed a 0.2 - but that above that level he'd want to do some more investigation.
 
I asked, too, about the liklihood of cancer spreading/appearing elsewhere in my body as the result of the prostate cancer - and he said, given my history, and based upon his practice experience . . . that the chances of such a thing happening are probably no more than 5%.  From his mouth to God's ears!
 
Each of us are different, so what looks good for you or me may look different for the next guy in line.  If you're comfortable with your primary care physician and Urologist, maybe they're the team to continue to listen to.  If you have some doubts about their abilities - maybe look around for others you have greater confidence in.

Age:  59 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (getting better, though)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0

 

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, February 23, 2018 2:10 AM (GMT -7)
There are a total of 2,932,309 posts in 321,725 threads.
View Active Threads


Who's Online
This forum has 160431 registered members. Please welcome our newest member, Murano.
239 Guest(s), 1 Registered Member(s) are currently online.  Details
AnthonyJenkins