12 of 12 cores positive. Is it a death sentence? Weeks? Months? I'm scared.

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mikee219
Regular Member


Date Joined Jan 2009
Total Posts : 53
   Posted 1/13/2009 2:55 PM (GMT -7)   
Here's the pathology report.

A. Prostate, left base: Prostatic Adenocarcinoma, Gleason grade 4+4=8, involving 2 of 2 cores and 80% of tissue

B. Prostate, left mid: Prostatic Adenocarcinoma, Gleason grade 4+5=9, involving 2 of 2 cores and 70% of tissue

C. Prostate, left apex: Prostatic Adenocarcinoma, Gleason grade 5+4=9, involving 2 of 2 cores and 80% of tissue with probable perineural invasion

D. Prostate, right base: Prostatic Adenocarcinoma, Gleason grade 5+4=9, involving 2 of 2 cores and 50% of tissue

E. Prostate, right mid: Prostatic Adenocarcinoma, Gleason grade 5+5=10, involving 2 of 2 cores and 80% of tissue with perineural invasion

F. Prostate, right apex: Prostatic Adenocarcinoma, Gleason grade 5+4=9, involving 2 of 2 cores and 80% of tissue

If I was scared before, I'm beyond scared now.

Mike

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/13/2009 3:00 PM (GMT -7)   
Dear Mike,

I feel for you, kind of shocked me reading your post, but despite that, there is hope, there's always hope. We are here for you all the way, please remember that. Only wish I could put a positive spin, but I know you need time to digest everything.

David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/9/9 - pre-op, 1/13/9 - corrective operation scheduled at St. Francis
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


mikee219
Regular Member


Date Joined Jan 2009
Total Posts : 53
   Posted 1/13/2009 3:02 PM (GMT -7)   
Thanks, David.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/13/2009 3:14 PM (GMT -7)   
Hang in there buddy,
Your Bonescan was clean. No this is not a death sentance. It just a larger tumor. You should next start looking at angiolymphatic invasion (Lymph system). And even then, you can do just great. Start to hang your hat on that bonescan a little. That is very good news. At this point you still have all of the options available. You biopsy is not the worst I am seen. You still have much to do, but you can do quite well. Stay Positive!

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (September 17 '08): <0.1 ~ Undetectable!
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 1/13/2009 3:14 PM (GMT -7)   
Mike, that is a tough biopsy report, but it's not over till it's over. Once the initial shock is past, you can make good decisions about your treatment. There are many options, the members here can provide you with many perspectives and knowledge. Please hang in there, better days are ahead.
Randy
46 you when diagnosed, now 48
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Occasional Success with Oral Meds
Success with BiMix


geon
Regular Member


Date Joined Oct 2007
Total Posts : 103
   Posted 1/13/2009 3:23 PM (GMT -7)   

Mike,

Be patient and courageous.  Let things work and take it one step at a time.  Put your trust in the Lord and all will be well.  We are with you.

Maintain HOPE and keep in touch.

Geon


64 years old 100307; healthy; active,
married 41 years, good strong erections before surgery.
DaVinci Prostate Removal February 5, 2007
2/12 samples malignant.
Catheter removal 2/13.
Viagra 25mg every other day from 2/14 to 5/12.
Incontinence almost gone after three months.
No pads, occasional  dribble.
Lavitra every other day 5/12 to 7/22.
Muse 1000mcg - no help (50% at best).
Cialis twice a week 7/25/07 to 11/6/08.
Vacuum pump - no help.
Trimix injections started.  0.09cc is great! 10/08/07.
First drug induced erection 10/8/07....Wow!
Natural erections - 0 as of 10/25/07.
PSA's, three to date undetectable.  Thank God!
Total ED...19 months.  URO took me off oral drugs 11/2008.
Geon


mikee219
Regular Member


Date Joined Jan 2009
Total Posts : 53
   Posted 1/13/2009 3:25 PM (GMT -7)   
Thanks, guys. I'll try.

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 1/13/2009 3:30 PM (GMT -7)   
Mike...not such a good report, but I am sorry I don't remember what your PSA levels were. Could you add a signature so when you post we can follow whats going on. Also...what is the next step now...has your doctor discussed what's next yet?
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base) - Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (4+3) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA Oct 2008 <.05
      Jan 2009 .06


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/13/2009 3:34 PM (GMT -7)   
Mikee219,
The biopsy is saying that the tumour is extensive throughout the gland top to bottom both sides and comprises a high percentage of each core taken..............but I would hang on to the fact that they are cores, in other words plugs from within the prostate. You cannot be certain at this stage that the tumour has grown outside the prostate itself. Did it mention for example if the tumour went to the edges of the biopsy core (it mentioned 80% of the core). Adenocarcinoma is the usual type of cancer found in the prostate ....... perineural invasion is very common even with lower grade Gleasons and as such is not such a great concern. If I remember rightly your PSa was not particularly high and a bone scan had not shown any metastases so they are a plus. I am assuming further scans will be made in order to try and ascertain the extent , if any, outside of the prostate and then a treatment plan formulated. Don't despair, although the news is not that good there's plenty of life left in you yet. what was your docs next course of action?
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


mikee219
Regular Member


Date Joined Jan 2009
Total Posts : 53
   Posted 1/13/2009 3:40 PM (GMT -7)   
Thanks, Bill. I got the report on my own and don't see the doctor until Friday. If there is really some life left in me and some treatment options to prolong it, I want to be armed with as many questions for him as possible.

And thanks, all. I'm hanging on every post. I am totally alone here without you.

Mike

RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 1/13/2009 3:46 PM (GMT -7)   

Your biopsy is ugly.  But, there are some good treatments for those that ID their cancers and address it.  You need to find your best doctors and get a treatment moving.  You will find a lot of encouragement and good information from and through this site.  Most people even with the most severe biopsies can live for years - even indefinitely with the right treatment mix and a strong body.

The initial shock is the hardest part to overcome - all of us here feel for you.  Keep your chin up and focus on making the best decisions.  Blessings.


RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/13/2009 3:54 PM (GMT -7)   
Mikee219,
Reading those reports while not fully understanding the terms and what they mean can shock you to the core..........believe me I've been there and lack of understanding always leads your thoughts down the road of the worse possible scenario. This might help explain a couple of the terms:
www.stjohn.org/InnerPage.aspx?Pageid=1446
Please spend time reading and rereading
www.yananow.net/StrangePlace/index.html
it will give you a good handle on what's going on, what the terms mean and questions to ask your doc at the next consultation and you will understand more fully what he is saying.
Hey Mikee, you better believe it.......there's a lot of life left in you yet mate.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


mikee219
Regular Member


Date Joined Jan 2009
Total Posts : 53
   Posted 1/13/2009 4:01 PM (GMT -7)   
Thanks, Billy. I've got a little boy in Israel, turning 16 next month, whom I'm willing to fight this for. He would be devastated if I weren't here for him for the next few years.

sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 1/13/2009 4:42 PM (GMT -7)   
The world has not ended yet mikee,

That clear bone scan was a big plus factor and all your favor. I'm with TC-LasVegas, sounds like a larger tumor and more involvment of the prostate gland. Hang in there and just make up your mind to face it and fight it. Wishing you the best.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Time to heal now.


Gordy
Veteran Member


Date Joined Jun 2005
Total Posts : 528
   Posted 1/13/2009 5:45 PM (GMT -7)   
Mike-

Please write to me at ariz750@yahoo.com

-Les
1/2005 Dx PSA 26.5 Gleason 7 (4+3) @Age 61
1/2005 Start Casodex and Zoladex
PSA drops to <0.01
7/2005-8/2005 5 weeks of IMRT and then HDR brachy
1/2007 Rad Oncologist orders CT scan of pelvis
because of complaints of pain in both thighs
MRI confirms pain not caused by cancer BUT
1/2007 CT scan of pelvis picks up a nodule at bottom of left lung
5/2007 CT scan of lungs shows 1/2007 nodule has grown and
there are numerous nodules on both lungs.
6/2007 Thoracic surgeon removes wedge of left lung for biopsy
6/2007 Path report says 95% chance of metastatic PCa, but she's
never seen cells like this before.
8/2007 2nd opinion at M.D. Anderson in Houston.
They confirm: mutated PCa, very rare, but seen there 2 or
3 times. Recommendation: have CT scans every 6 weeks
and watch for change. At that point start chemo and will
survive for 22 - 24 months thereafter.
PSA still undetectable, but get Lupron shot to bring T down from 27
2/2008 Trip to Houston – PSA now 0.5 and nodules larger. Lupron shot.
6/2008 Trip to Houston - Finally got results from doc. A number of lung nodules have grown, but, more important to him, is the fact that the malignant lesion on my pelvis seems to have flared up and he wants me to start chemo. He said I could wait a few months, but I told him I want to start now. He to get me signed up for a clinical trial in nearby NY.
9/2008 Interim bone and CT scans show progress vs. scans done before beginning trial. I'm cautiously optimistic. Next scans 10/30/08.
10/2008Bone and CT scans continue to show improvement. Med onc attributes mostly to Taxotere/Prednisone while I believe majority of progress attributable to investigational drug, Sprycel.
12/2008 Latest scans show no change. Bah Humbug!


LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 1/13/2009 5:57 PM (GMT -7)   
Hi, I'm a regular on the GERD panel, and by my name you can probably tell, I'm not a male either! I am, however, the wife of a man who is a cancer survivor.

My husband had 8 of 8 core samples positive; his psa was well within normal limits, but had increased a % that was bothersome. Surgery found that the prostate was packed, packed from edge to edge with cancer, but it hadn't escaped; he's at the 6 year mark now and wonderfully healthy.

A friend, at age 50 got his 1st psa, it came back a whopping 27. His cancer had spread and for two years he fought, through surgery, radiation, chemo and finally medication, he too survived.

2 cases, one bad enough but caught in time, 1 severe and not caught in time, one had a much harder road to travel, but both survived. Your road may not be the smoothest, but it is possible; don't despair, you have much to live for.
Janice

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/13/2009 6:01 PM (GMT -7)   
Mickey I had very similar pathology to what you have posted, I started with total urinary blockage that lead to diagnosis. Talk about omnious start even though you and I didn't have a clue 7 yrs. ago now (for me), what all that b.s. actually means. Well I am far from the finished line, and even went off all drugs for 2 yrs. just recently to see if psa would change, it looked that good-stablized and low psa, I got tested often because I have the option of a walkin hospital testing $15 anytime you want, so I did. I watched my results on different drug protocols and made the switch when I knew I needed better results...and I got them well enough that I took the 'vacation' off drugs.

Here's a program of armor for a newbie: prepare for questions to direct to your doctor, books, internet, tapes, forums, local support groups (www.ustoo.org)find one, seminars etc. Also, second or multiple opinions are a revelation in PCa world that a book cannot bring to you, highly suggested especially where you are starting get opinions (I got 8 in person and probably 4 more via letters or email consultations). Get copies of any thing done to you, start a journal and record stuff (psa, drugs etc.), learn to read abstracts and PCa lingo is real plus for any patients. No saying you need 8 opinions, I had alot of suspicions and comparitive docs opinions I had to weigh against what little I knew at that time. I got busy on the armor I just mentioned during that process, started into all that.

Coming up on 7 yrs. now since diagnosis, psa is .61 currently (month ago), maybe less I will have results to compare within a month or less and no doubt will be.

www.phoenix5.org
www.prostate-help.org
www.yananow.net

Great places to get busy with.

We love you man....we fight this as brothers and sisters...

*I also had 12 of 12 biopsies with 75-95% in everyone, gleasons 7,8,9's on both sides-fyi bpsa 46.7  (dx-2002)

Post Edited (zufus) : 1/13/2009 6:06:53 PM (GMT-7)


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3195
   Posted 1/13/2009 6:14 PM (GMT -7)   
Mikey,
although my pathology rep[ort had me pegged at solid sevens across the board I had severe metastacies in my lungs lymph nodes and bones. I am almost 3 years from dx and my cat and bone scans are clean. My blood work is normal and my psa is tolerable. Death sentence? H _ _ _!!! no!!!. It was scary at first and sometimes I am still afraid but mostly I am living and loving and having fun. I am also fighting and holding on to faith. I have many reasons to do so which I will gladly share with you anytime you wish. I do not want to offend anyone who does not share my beliefs. Read my signature. E-mail me whenever you want. If you want my phone number its yours and you can call anytime you want to. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3195
   Posted 1/13/2009 6:19 PM (GMT -7)   
check out my post (want to tell a story chapters 1 and 2
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3195
   Posted 1/13/2009 6:28 PM (GMT -7)   
mikey, its on page six of this forum Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 1/13/2009 6:34 PM (GMT -7)   

Hi Mikee,

My pathology was similar to yours but the Gleason was a little lower. I can empathize with what you are going through especially since your doctor has not discussed the report with you. I felt the same as you do now when my doctor delivered the news. But take a deep deep breath and clear your head. You are going to need your wits about you as you research your options for treatment. It will be confusing to say the least and everyone seems to have a favorite. Once you make your decision don't second guess it and be sure you are comfortable with your choice.

I am now 4 months out from radiation and in the middle of a 2 year hormone program. I do feel that I am going to survive this for some time to come and you will also.

If your PCa is organ confined you have really good odds.
 
Take care,
Don
Diagnosed 04/10/08
Age 58
PSA 21.5 (first and only test resulted from follow up visit to emergency room for kidney stone. first time for kidney stone too)
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear
Chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
PSA test on July 14, 08 after 8 weeks hormone .82
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
Second Lupron shot 09/11/08
Next PSA test by oncologist 03/09
 
 


mikee219
Regular Member


Date Joined Jan 2009
Total Posts : 53
   Posted 1/13/2009 6:44 PM (GMT -7)   
Thanks again, everyone. Each and every post is making this more bearable for me. I don't know what I would do without you.

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/13/2009 6:58 PM (GMT -7)   

    Mike,  We will be watching for a update with some more info such as age, psa, family history and what your doctor suggest.  Just take a deap breath and take time to gather some information.

    Good Luck,  KW


    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey
     


mikee219
Regular Member


Date Joined Jan 2009
Total Posts : 53
   Posted 1/13/2009 7:03 PM (GMT -7)   
Age is one month shy of 65. PSA was 8.6 and a couple of months later 12, although I misunderstood :-) the doctors instructions about ejaculations and acted like a bunny in heat. That may have given a false high and proves how stupid I am. Cancer in my father's family, but my father was the only male and he died at age 51 of brain cancer. Nothing that I know of in my mother's family. I'll find out what my urologist suggests on Friday and will be back here to report.

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 1/13/2009 7:47 PM (GMT -7)   

Mike:  My biopsy wasn't quite as tough as yours but I wanted to see what the situation would be if there was PCa outside of the prostate so I picked up Dr. Snuffy Myers book "Beating Prostate Cancer: Hormonal Therapy and Diet" for a worse case scenario.  After reading that book I felt so much better because it lays out for you in realistic timelines different situations if the cancer has gotten outside of the prostate.

He is an oncologist who had a pretty bad case of PCa and has dedicated his life since then to beating the beast.  He's the only one I have read that seems to tell the "real deal" and the real deal is much better than most garden variety uro's spew out.

You don't know the extent of your total problem yet but reading that book, giving you worse case scenario's and realizing there is so much that can be done even if the PCa has escaped should help put your mind at a little bit of ease. 

Don't put the cart before the horse, get all of the information and then be ready to take action.  

David


 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 PSA-5.5
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 4/24/08 -Started on Lupron and Casodex preparing for HDRT and IMRT in late July.  This treatment will not preclude me from surgery if I change my mind.
Decide to have DaVinci surgery after another consult with surgeon.
6/19/08- DaVinci surgery at University of Washington.
6/25/08- Path report, clear margins, no noted extension
9/12/08- PSA <0.02 
12/05/08-PSA <0.02 Six months after surgery 

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