My Turn For A Dumb Question

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 10:32 AM (GMT -7)   
As we all know, I am suppose to be taken off of catheter #5 on Monday, January 19th around nine in the morning, after some 66 days of this and two failed removals.  Assuming that it goes as my dr/surgeon planned, and the urethra doesn't try to close up a few hours later, what should I expect as acceptable flow at first?  I mean, when they tried the two times before, I had to sit to pee, and it was mostly a very slow drip, wouldn't hardly call it a stream.  The first time  it was taken out, and the first time I felt an urge, I peed all over myself because I was expecting some kind of normal stream from the standing position.  I will be wearing a pad when I leave the dr as before, no problem with that.  I know that the word "normal" in our context is very subjective, but what would be a normal flow to be expected once this blasted thing is removed?
 
David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/16/2009 10:38 AM (GMT -7)   
At first it was slow, but after about a day it was "like a race horse". I still have great flow. I think you will be slow at first until the swelling is gone. But you should be able too and that's the bottom line. It would surprise me that your doctor lets you leave right away after the last couple times. I would think he would want to see you go. And if you don't catheterize you again. So for me I'd bring a book, drink some coffee, and sit right there until you went.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
You can visit my Journey at:
 
STAY POSITIVE!
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 1/16/2009 10:57 AM (GMT -7)   
Yes, David, I think Tony is right. You might need to wait around for a little while.. Pete had the catheter in for ONE YEAR...., but that was because he had a fistula and had to have surgery to correct that. When it did come out, he had more scar tissue, and he learned to catherize himself daily... You might ask the doctor about that. It sounds difficult, but actually Pete learned to do it very well....Now he has the AUS which may be beginning to work. Good luck to you. I just brought Pete home from the rehab center and he is sleeping like a baby in his own bed..... The therapists will come to the house for the next couple of weeks to work with his hip..... Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 11:08 AM (GMT -7)   
Tony, since I live only blocks from the drs office, he will probably tell me to home, drink lots of water, and need be, get back up there before they close at 5.

Diane, so happy to hear Pete is home, no place like home, and no place like your own bed. Sorry they didn't have any room for him in a real therapy bed. The place my wife works at is half re-hab, half nursing center, and they are slowly switching over to all therapy. I hope he does well with the therapy.

On the self-cath biz, read about it, don't think there is no way I could handle doing that, creeps me out to think of it. Hopefully it won't come down to anything like that. The dr told my wife while I was in recovery, that he cauterized what he did after he made the opening bigger (didnt learn that till last night) so that it wouldnt try to re-grow scar tissue. So glad I was completely under when all this was going on. lol.

David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 688
   Posted 1/16/2009 12:09 PM (GMT -7)   
Hi David,

The first time, I had a dribble that was OK, but it got slower and slower until...By "dribble" i mean the stream went forward less than an inch.

The second time, it still started with a dribble, which had me worried, but it never decreased. Didn't really get a lot better for a couple days, though. Even now, I'm not really any better than before surgery, but it's a good flowrate.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day, removed again 14th day following negative cystogram
pT2c
lymph nodes negative
microscopic margins
next PSA 1/22/08


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 12:35 PM (GMT -7)   
Well DJ, as long as I don't stop all together, I will take any kind of steady flow I can get. That first 24 hours will be major paranoira moment for me. Just don't want to end up in the ER again, can't get that scene out of my mind or memory.
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Paralleli
Regular Member


Date Joined Jul 2008
Total Posts : 123
   Posted 1/16/2009 12:46 PM (GMT -7)   
Purgatory:

Well, I can tell you my experience with a stricture and catheter removal. I had a stricture caused by some scaring from IMRT. My Uro dilated me (no cutting) then had me in a Foley for 28 days. The first few times I took a leak after the Foley was removed it was like opening a fire hydrant. After that, things slowed down to a more normal but good flow. That was 14 months ago. Still very good flow with a self-cath once or twice a week to ensure things stay open. Best....
53 yrs
PSA 4.8
T1c – Gleason 3 + 3
IMRT 1/07 thru 2/07 (42 treatments)
PSA 6/07 – 0.76
PSA 12/07 – 0.36
PSA 6/08 – 0.72
PSA 12/08 - 1.02 (Uro & Rad Onc want me to give it 3-6 more months before freaking out.  O.K. say I.)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 1:10 PM (GMT -7)   
In my pre-surgery days, I could put out a brush fire with my flow, and at the same time, I'd been known to hold a pee for hours beyond the urge. Someone told me, don't know if it is true, that a lot of the continence issues have a lot to do with your pre-surgery condition. Right now, I would love to be able to flow like the fire hydrant!
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/16/2009 1:21 PM (GMT -7)   
David, I have been lucky. From the first time after catheter removal, I have had a strong flow. I could push the scent block in the urinal up the back wall-well, now that IS an exaggeration, but I did have a very high volume strong stream. tongue Before surgery, it was a hard deal to urinate with any normal stream or force, due to the very large prostate squeezing down.
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy- 16 core samples, size of gland around 76 cc. Staging pT2c
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 12 mts.-.02, 16mts.-?


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 1:33 PM (GMT -7)   
So for you, james, it actually improved your flow, I find that interesting and encouraging. I noticed your prostate was almost 2 1/2 x bigger then mine, didn't realize they varied that much. Once I get through this hurdle, more then happy to move on to the next step of recovery, been in this holding pattern for so long.
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/16/2009 2:35 PM (GMT -7)   
David, I think that generally, on the whole, most guys come out of the surgery with much improved urine flow, especially the mid-50 and older fellows. I say most, exceptions are allows found. BPE and the difficulties caused by it is removed when the prostate is....
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 12 mts.-.02, 16mts.-?


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 2:46 PM (GMT -7)   
well if that's the case, i might need a harness when i wiz
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 1/16/2009 5:46 PM (GMT -7)   
David, I had an improvement in my flow post op. While I don't leak, I do have issues getting the dribbles to stop after I urinate. No matter how much I wiggle and dance, the last few drops go down my pants. I've learned to control that in the past months however. Once you get your stream moving, look the the information below if you have trouble stopping it. Good luck Monday. You deserve a break.


After Dribble

Few men admit to having this problem but a great many suffer from it and are often badly embarrassed by it. Men at all ages can be affected.

After-dribble means the loss of a few drops of urine after the main stream, when the bladder appears to be empty. The medical term for this condition is post micturition dribbling.

It usually happens just as the penis is being replaced and garments rearranged, and ends up with trousers getting wet and stained. Some men find that, despite waiting and shaking, it remains a problem.

What is happening is that the urethra (the tube leading from the bladder to the tip of the penis) is not being emptied completely by the muscle surrounding it. A "sump" of urine pools at a low point in the urethra (see diagram).



There are two proven ways of dealing with this problem. One is to perform pelvic floor exercises.

The other is to push the last few drops of urine from the urethra with the fingers before the final shake.

The technique is as follows:

* After passing urine, wait for a few seconds to allow the bladder to empty.
* Place the fingertips of the left hand three finger-breadths behind the scrotum and apply gentle pressure.
* Keeping the pressure in the midline, gently but positively draw the fingers forwards towards the base of the penis under the scrotum.
* This pushes the urine forward into the penile urethra from where it can be emptied by shaking or squeezing in the usual way.
* Before leaving the toilet, repeat the manoeuvre twice to ensure that the urethra is completely empty.

This technique can be practised at home. When in public toilets it can be done discreetly, with a hand inside a trouser pocket. It only takes a few seconds and will avoid the problem of stained trousers.
Age 50
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00

Post Edited (coxjajb) : 1/16/2009 6:10:05 PM (GMT-7)


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 1/16/2009 5:51 PM (GMT -7)   
My flow was OK before surgery, but I had noticed a slowdown from my younger days. After my surgery and a while to heal up my flow really increased and has remained good for over 3 years now. Good luck on Monday... I'll be pulling for you. Sorry, just had to say that.
Allan
Age 54 at Dx.   Currently 58
Jly 05- PSA 8.1
Sept 05- PSA 10.7
Sept 05- Biopsy revealed 9 of 12 cancerous, Gleason 3+3=6, T2 stage
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- Surgery for bone biopsy.  Pathology showed benign growth, no cancer in bones. Who ever thought I would be happy to only have PCa?
Nov 05- PSA 15.4
Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, SLC, UT by Dr. Robert Stevenson. 
Home after 3 days.Cath out at 2 wks.
Incontinence gradually improved for about 3 months to 100% continence.
ED- Tried the big 3 pills with no results
Feb 06- PSA undetectable, Started VED which worked but caused discomfort with constriction rings.
May 06- PSA undetectable, Dr. gave me an Rx for Trimx injections. They work great.  Still use VED on off days without constriction for therapy.
Aug 06- PSA undetectable 
Nov 06, May 07, Nov 07, May 08, Nov 08 - PSA undetectable
ED appears to be perminant but doing great with Trimix.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 6:23 PM (GMT -7)   
Allan, that was another encouraging report, I am pretty sure after the corrective surgery this week, that I will flow fine, just a bit paranoid after what I've been through. Thanks
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 1/16/2009 6:52 PM (GMT -7)   
Hi David,
I wouldn't sweat it...Like riding a bike. Just that you're standing up with your wanker exposed to the wind. I've heard the same results from some local guys I've talked to. Let nature take it's course and whiz away! But have someone stand behind you when that happens so you don't go crashing into the opposite wall. Good luck.
Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 8:09 PM (GMT -7)   
thanks for the article coxjajb. thanks for the encouragment, bob. I'm sure I am being paranoid for nothing, but after two painful strikeout, just a little gunshy. You guys have no idea how much I want to get beyond this issue. It has kept me in a virtual purgatory (use of my name here, since I am now then more then 2 months post surgery, it's held me captive in my mind as much as in my body. I am restricted in how I can dress, how I move about, how I sleep, there's never a time that you can rid your mind of worrying about where the bags and/or tubes are. I just want to move on with my recovery, and this, when it works, will make me feel less like a patient and more like the old me.

Thanks one and all, as usual for great support and encouragement

David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/17/2009 8:23 AM (GMT -7)   
In theory, all I have to do is make it through the weekend with this extra large nuisance of a catheter, and then it will be all over early Monday morning. That's what I am trying to convince myself, although earlier, I turned just the wrong way and the tube moved and it felt just like someone shoving a pencil, pointed end, up my penis. Just two more days, that's what I am hoping. If this doesn't work, I think I will be a broken person. I want at least some of the old me back in control.

David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 688
   Posted 1/17/2009 8:35 AM (GMT -7)   
David,

I feel your frustration. You're the expert, but I hope you have plenty of lidocaine gel for the next couple days.
Hang in there! Keep us posted.
DJ

Age 53
PSA 2007 about 2
PSA 2008 4.3
Diagnosed September 2008.
Biopsy: 6 of 12 cores positive
Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter removed on 7th day, replaced on 8th day, removed again 14th day following negative cystogram
pT2c
lymph nodes negative
microscopic margins
next PSA 1/22/08


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4012
   Posted 1/17/2009 8:38 AM (GMT -7)   

David, I have no experience to share with you...just encouragement.  For some reason I have a good feeling and think this last procedure will be the fix and that, after Monday, all will be fine and that you will be well on the way to recovery.  Try to enjoy the weekend and think positive!!!

Good luck on Monday and we'll all be waiting for your good news!

Tudpock


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 12/30/08.


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 1/17/2009 8:46 AM (GMT -7)   
David,

It's coming out Monday and it's not going back in, I just know. Mine has been out 2 1/2 days and although I have flow, it is not what I had before surgery. It's a stream all right but I could not knock a bee off a flower with it, if I had too. I'm able to start and stop just fine but as I push or sqeeze that extra bit to make sure the bladder is completely empty I get a gnawing pain from peins up to the stomach. Still tender from surgery I guess.

Hang in there, it's gonna to get better.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
First Post-op PSA due 2-17-09


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/17/2009 9:15 AM (GMT -7)   
thanks sand, and you are only 8 days out from surgery, so ouch is right, my surgery was back on November 14th, over 2 months ago. You take it easy on your own healing, it's barely been over a week, you are doing great!

David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 1/17/2009 10:18 AM (GMT -7)   
I have never had a restriction but can say that prior to surgery my flow had slowed from my younger years. After surgery I have returned to the fire hose days. It takes seconds to empty my bladder. The information from coxjajb is valuable. Stopping urination has been more of a chore in post surgery. I have found that milking to empty is essential.

Once you get the restriction situation behind you, you will be fine. Blessings.

RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 1/17/2009 12:42 PM (GMT -7)   
I would suggest you also bring a pull up with you to be sure you are covered. A little extra protection is better than being caught wet handed. I had no pre-surgery urination problems. After cathater was removed my leakage was significant. Now I am at 2 pads per day and am dry at night. In the beginning I rarely had a stream because most of my fluid was going into pad. I was getting up 3 times during the night to go. Now it is only once. I am 15 weeks out from surgery. I was using 5 pads per day which I put in pair of prevail pull ups. I have a active job so I felt the need to be somewhat overloaded. The lack of real urination during the day did confuse me but my uro said it was normal since so much was going out due to leakage. Good luck.

 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 
Rich man in a poor mans shirt.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/17/2009 5:54 PM (GMT -7)   
thanks jersey, i griped to my dr before, that they didnt supply a pad when they pulled the cath the first two times, so i have a supply of depends pads and pullups ready for day one. i am lucky too, because when I see him monday, its like two or three blocks from my house, so no long drive in an uncertain situation.

david in sc
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, February 17, 2018 7:58 PM (GMT -7)
There are a total of 2,930,362 posts in 321,523 threads.
View Active Threads


Who's Online
This forum has 160275 registered members. Please welcome our newest member, maddie520.
395 Guest(s), 4 Registered Member(s) are currently online.  Details
81GyGuy, Ak123, TOOTY, Whattheheck