new to prostate cancer

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tsusmc
New Member


Date Joined Jan 2009
Total Posts : 8
   Posted 1/16/2009 5:06 PM (GMT -7)   
thanks for the replies on my prior listing...site is outstanding and I'll be visiting frequently, it really helps to talk to those who have gone thru what I'm getting ready for.  Drs keep saying they found it early but nothing is 100% sure...next is bonescan and catscan and then consult for gold markers. Its amazing how you can feel so good with no pain and then so bad with still no pain, but life is good.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/16/2009 8:20 PM (GMT -7)   
that's the paradox of having most types of cancers. many of us, myself included, had no sympton, no pain, nothing out of the ordinary before getting the PC dx. Then you find yourself making incredibly hard decisons, based on psa numbers and perhaps a biopsy or two. You research yourself crazy, and talk to lots and lots of people, then ultimately, you make your choice for treatment, and then it happens. All because of something you can't see or feel in most cases. hopefully your bone and cat scans come out squeakly clean, they do in most mens cases, unless things are well advanced. keep hooked up here at HW, its a major place of refuge and calm for me. best to you.

david in sc
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 1/16/2009 9:48 PM (GMT -7)   
tsusmc, welcome to the club. Purgatory is right, I have also found a place of refuge and calm. I only wish I had found this place as soon as you. I killed myself looking for info on the web that I found here in a short amount of time. Best wishes as you begin this journey.

Tim
Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins
PSA Jan/09 .03


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4813
   Posted 1/17/2009 3:06 AM (GMT -7)   
"No Pain - No Gain" takes on a whole new meaning when it comes to pc..
Age 53   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
 
06/25/08 - Da Vinci robotic laparoscopy
Catheter in for five weeks.
Dry after 3 months.
 
10/03/08 - 1st Quarter PSA -> less then .01
NEW-> 01/16/09 - 2nd Quarter PSA -> less then .01
 
Surgeon - Keith A. Waguespack, M.D.
Las Colinas and Plano Offices 


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 1/17/2009 12:54 PM (GMT -7)   
Great information can be gotten from the book Surviving prostate cancer by Dr. Patrick Walsh from John Hopkins. It is shown on this site under books etc link. Also I found Web MD to have alot of really good information. Start with prostate cancer and go to various liks from there. Cover down.

 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 
Rich man in a poor mans shirt.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/17/2009 5:51 PM (GMT -7)   
Walsh's book was my original primer on the subject, read it cover to cover about 6 months before my pc dx.
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 1/17/2009 6:20 PM (GMT -7)   
Dear TSU, There are many friends here.. (Purgatory)...is a wonderful contributor to this site. I gain strength from his posts, as well as others do. He has been through a lot , and knows a lot. as well as so many of the other posters here. There are men, and wives who are truly going day to day with decisions and problems and side effects. Prostate Cancer is a human condition. Not just a man's. We are all in this life together,,,,and tonight, it was difficult...for Pete and for me...Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!

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