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HIFU proceedure is in Toronto Canada and other Canadian places and beyond

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zufus
Veteran Member
Joined : Dec 2008
Posts : 3149
Posted 1/17/2009 11:03 AM (GMT -7)
High Intensity Focus Ultrasound a newer protocol is available in Toronto, Canada and other Canadian places (maybe closest to USA), is used outside USA other places right now. Being held up by FDA for use here, but supposedly coming here soon. I have no idea how good it is, it does sound interesting enough. Some people have done this and there stories are at www.yananow.net in case someone is interested. You could google search more on it.

www.hifu.ca/

The imaging method that John T is going abroad to get looks like it is better than what we have here to date in the USA, another FDA holding up stuff for our benefit, of course. Sorry but I have to be skeptical about the FDA and our lobbyists system. Some things the FDA rushes through which has been seen and other things are dragged out.....makes me curious. Anyway we have more choices and can go get them if we want.

 

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zufus
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Joined : Dec 2008
Posts : 3149
Posted 1/17/2009 1:10 PM (GMT -7)
Not saying for anyone to jump into it, always good to look at 'everything' so atleast you knew it existed, good for others to learn what it might be about, is it 'sane' or not?, might be great for salvage treatment, like you say. It is comparable to cryo in the concept to destroy the prostate, cryo can have some nasty short term issues I remember others posting about sitting upon special donut pillows for awhile cause the pain down there was intense(or long term also), don't know how this one stacks up. Should it turn into or morph into another better mouse trap time will tell. Someone who can buy time, a number of years can be looking at this off and on perhaps.

Probably can be difficult and I believe cryo is not an easy task for the cryo-surgeon. Here's a tidbit about cryo surgery, the founder of it lives in Michigan (Dr. Lee). My onco-doc knows Dr. Lee and mentioned that when Dr. Lee was pioneering this new (non-FDA) later approved method, there was no special tool for monitoring the temperatures of the freezing techniques (that came later), need to monitor temperatures coming down from freezing and such, so what did he use?????? Kitchen meat thermometers...wow..that was high tech, the better machinery came a little better later. It was a new science in its day, fyi.

Bob
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zufus
Veteran Member
Joined : Dec 2008
Posts : 3149
Posted 1/17/2009 5:09 PM (GMT -7)
Andrew great observation about the crazy world of PCa, I said it was similar to the Twlight Zone, you couldn't make up this scenario on your own, nothing is definitive at this juncture. You need second opinions big time (and you are working on that now- Kudos to you brother-smartest move you can make right now) as the first uro-doc is likely a canidate for malpractice: only 2 biopsies (unheard of today), no assessment or biopsy of the bladder to know what is going on there???, but he was ready to remove it all(bladder and prostate) and would have sold that proceedure to an innocent patient whom would not have realized any different if this 'expert' had his way. Not only ruining a persons life and body, but cashin in on it in the process, it doesn't get worse than that in my book. There has to be many options as to drugs, radiations, partial surgery and save bladder or reconstructing a bladder etc. You will find some answers and you deserve righteous answers.

I have been mentioning the value of multiple opinions.....it shouldn't be....but can be a jungle out there.

I hope you further opinions are not only of much mental comfort and better choices and outcomes, but that you win this battle. Then go see the first doc give him a full assessment of his value as a doctor. (I would like go with you on that trip)
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