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New Member

Date Joined Jan 2009
Total Posts : 3
   Posted 1/18/2009 12:56 AM (GMT -6)   
Hello, I just joined in the hopes of getting a better understanding of what my husband is going through and what I can expect to care for him. Briefly, approx. 1-yr ago during our yearly physical, we were sent for stress tests to get a picture of our heart under stress to use as a baseline for the future. My husband's tests came back well, but the xray picture showed a funny spot in the background. This triggered CAT Scan, then PET Scan and then biopsy of his sterum and finally a pathology report identifying the sterum as extremely busy cancer cells rapidly multiplying and moving on. Node on his lung that indicated lung cancer. Diagnosed as Metastized Adenocarcinoma. Two oncologists were seen, one said 6-12 months and the other 5-11 months prognosis. No radiation because there is no pain, no surgery because there is nothing to remove, no tumors. Told this is one of the fastest moving cancers with approx. 98% death rate within 1 year. I am caring for him at home and we are doing quality life care. He has suddenly become extremely weak over the past month, and sleeps 20 of the 24 hours per day. I don't know what to expect, and I'm afraid everytime he falls asleep he won't wake up. Does anyone have any information as to how long someone can exist in this condition. I just want to be there when he passes, so I'm afraid of falling asleep. I still work to keep up the insurance and earn money, but I can't be home all the time. One of the children has moved in to help, but it is so difficult to judge. The doctors tell me it's apparent his liver is failing, and he may need to go to the hospital for a few days, but would be able to come home. Any information would be appreciated. confused

Tony Crispino
Veteran Member

Date Joined Dec 2006
Total Posts : 8128
   Posted 1/18/2009 1:34 AM (GMT -6)   
Hi Sadlee,
Metastatic adenocarcinoma can have other places of origin. Were they able to find the point of origin? When you describe the mortality rate as you have, and how the disease has progressed so rapidly, it sounds like your husband's cancer is pancreatic cancer. And that is a very bad cancer with a 98% mortality in the first year. I am very sorry for you both, and your family. Words are very powerless in these times. I wish you peace, and offer prayers, which is the very best I can do. My heart is really crying for you.

Love and Peace,

Age 46 (44 when Dx)
Pre-op PSA was 19.8
Surgery on Feb 16, 2007 @ The City of Hope
Post-Op Pathology: Gleason 4+3=7, positive margins, Extra Prostatic Extension (EPE)
Bilateral seminal vesicle invasion (SVI); Stage pT3b, N0, Mx
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
You can visit my Journey at:

Veteran Member

Date Joined Feb 2008
Total Posts : 1858
   Posted 1/18/2009 3:54 AM (GMT -6)   
Hello Sadlee,
Adenocarcinoma is cancer that has developed in a gland. As Tony has stated it can have many origins as there are numerous glands in the body (even the sweat glands are prone) from which this cancer can develop. If your husbands adenocarcinoma originated in his prostate a prognosis of 6-12 months seems unlikely. Tony may be correct in his assumption that it has its source in his pancreas and if so then it is a very serious situation. Others recently diagnosed with this type of cancer have been Steve Job and Patrick Swaze.
I am sorry to read that this has happened to you and your loved one and I hope other members may be able to offer more information.
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)

Elite Member

Date Joined Oct 2008
Total Posts : 25382
   Posted 1/18/2009 9:24 AM (GMT -6)   

My heart goes out to you, your husband, and your family. Do you have good hospice facilities in your area? They are better equipted to help families in your situation, and it might allow you to at least get the rest that you need. You are bearing a heavy load on your shouldeer, and it is very hard trying to do it all. My wife is a nurse that works at a Living Center, and even with the stories she shares about some of the terminal cases, the doctors are often wrong, some people they thought wouldn't make the weekend are still alive weeks and weeks later, and ones they saw on Friday in great shape didn't make it. Every patient and case would be different. I will looking for updates from you and hoping for the best

David in SC
Age 56, 56 at DX
PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, ranging from 40 - 90%, G 4+3 & 3+4
Open RP surgery  November 14, 2008 at St. Francis Hospital, Greenville, SC, Dr. Ronald Smith - Surgeon, Non-nerve sparing, 4 days in hospital, staples removed 11/24/8, Catheter out on 12/15/8 on day 32.  Day 33, urine stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08.  After 7 hours, complete stoppage again, emergency room put in Catheter #3 early evening of day 45, still 12/29/08. 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - Had operation St. Francis - removed blockage, put in Cath #5, suppose to be removed 1/19/9
Post-surgery Pathlogy Report:
Gleason 3+4=7, pT2c pN0 pMx, Prostate 42 grams, tumor 20% cancer
Contained in capsular, neg. margins apex, bladder neck, right lobe, neg. in seminal vessels and lymph nodes.
First PSA Post Surgery  Scheduled now for 2/9/9

New Member

Date Joined Jan 2009
Total Posts : 3
   Posted 1/18/2009 9:35 AM (GMT -6)   
Thank you so much Tony, and Billy-Mac for responding so quickly. You both have enlightened me with sharing your information and your strength. One thing to add to my original note is the doctors found this at stage 4, and said that he had only had it for a couple of months. I didn't believe that at first, but now see the possibility as Dick's change over the last 6 days has proven the quick spreading and all consuming disease has brought him to his final weeks. This morning he has complained of inability to breath well, suddenly can't lay down in bed without help, etc. I think it is time to call in hospice, which I had setup at the onset because I knew I wouldn't be emotionally equipped to apply common sense to his needs. I'm so happy he has no pain. I just want to do the right thing. confused

Veteran Member

Date Joined Jul 2008
Total Posts : 637
   Posted 1/18/2009 10:33 AM (GMT -6)   
Dear Sadlee, You sound strong and you are handling this very very sad event very well. It is wonderful that one of your children has been there for you and your husband. My heart goes out to you. I will keep you in my thoughts and prayers.....At this point Hospice is a godsend.......Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!

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