Hey, Mike I have been trying to tell you I have traveled your road ahead of you, my stats were very comparable and so is the journey. I also got the multiple-protocol-treatment method, save yourself all those extra steps for appointments is the idea. Hey it is an eye
opener of course and might be the best for you. Tony posted the yananow questions for doctors list...if you go..ask such questions and take tape recorder and/or wife etc.
Now skeptical Bob's opinion and why it is not as perfect a scenario as they sell and promote it to be. I am not saying don't go by the way, go and listen, verify, hold them accountable to their words of wisdom. Now, hospitals are also a profit center and have boards or special doctors meetings, in other words they can promote their own agendas, maybe they could steer a patient a certain direction...maybe correctly too (plus sign)...maybe incorrectly too or not to the patients best wishes for side effects or his personal choices as their top concern...it is your disease and your future and your choices (even if it sucks). Someone may wish to have quality of life over longevity or looking at considering a compromise of modalities that has both. So what do they preach, do they listen to the patients total choices or their choices????????????????
Anyway after I got my multiple disp. gig analysis, along with mulitple DRE's (some were women), I was going to sign on with them, two of them a radiologist and an oncologist. They were nice looking (if it were about
nice looking they were hired for life)and seemed to be 'doctors'(lol) and were from one of the largest Hospitals in Detroit area and suburbs. Well the onco-doc was not up to date on ADT3 combo drugs (I already had some decent knowledge as to what that meant to a patient with rough stats), she would not let me take proscar (period) but would love to dish out the Lupron+casodex, proscar is the least of side effects and already in books and abstracts as having longer survival when added to ADT3, than monotherpy or ADT2 especially when used prior to radiations and after (bolla study I think)( even if it did not make any difference about
using this drug why the fuss on not giving it). I asked her what is the downside or negative on this drug....dead silence I hit her with a question that the 'expert' could not answer (my nose was sniffying this one). I knew after another question or two she was perhaps an onco specialist for breast cancers, but not up on PCa. Her closed mindedness and unexpertise then lead to her being fired soon after. I needed all the pluses I could put into my corner, maybe this was round 7 in the fight.
Now the radiologist onco-doc missed fired about my questions: Does your hospital have IMRT machines? Do you know where I can get (IMRT radations? they were promoting only EBRT methodology which has more side effects and not as precise, not as good) she said no I don't.
Well I call it lying: her hospital does have IMRT machines (they weren't using them yet on PCa-I found out) and secondly she did know where you can get IMRT (locally)-I smelled this one but could not confirmed it at the time and fired her 1-day before radiations were to take place. Did confirm it herein:
Well after some phone calls I was determined to know whom had this technology around here (2002 remember). I found two places that have it (LOL), but she did not know anywhere else that had it????(she probably hob-knobs with these people too)(smell test confirmed again by stupid Bob, never question your docs they are there own demi-Gods).
So I proceeded to interview those two centers(had IMRT) that were well known and had highly skilled radiation onco-docs (that were unknown to me prior). When I met up with the doc I finally chose, I was talking to him about the experience with the lady onco-doc and told him about her by name, he said yeah I know her shes even been here (but she didn't know they had IMRT-remember???). Some docs are full of agenda....you can believe I am full of it(fine-I am not cashin in on you too)....I been there and done that more than once. Do you think I liked getting 8 opinions and mostly on my own without that many referrals, and 8-10 DRE's along the way????? I am a skeptic but after seeing what I have seen, I think I have reasons.
I post this to open some eyes....question everything....and then make a decent decision and go for your gold, not someones agenda gold, they count theirs you live yours. Of course the other choices are: flip a coin, go with the flow, don't get envolved let the expert guide you...hopefully you got a good 'expert' for your particular case of PCa and many do, some have horry stories that make you cringe.
*Straight talk and unsugar coated, sorry, but my agenda is truth, choices, fairness, patients wishes...we pay the billings, the price, and walk the walk.
Post Edited (zufus) : 1/18/2009 11:46:57 AM (GMT-7)