prostate cancer treatment

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captain bob
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/19/2009 8:52 PM (GMT -6)   
Hello friends,
     I`ll call myself captain Bob because I am a pilot who was diagnosed with prostate cancer in 2006. I have been taking zolodex shots now for 2 and a half years and my psa is 0.1. Today I started the cure at Dattoli Cancer Center in Sarasota Fl. They have hugh success in curing this disease with radiation Beam and nuclear seeds. This is a world renown treatment center and Dr Dattoli explained to me that the zolodex shots work for awhile but the cancer with mutate and will break out of the prostate capsule after some time and then it can be very agressive. I am 65 years old and I know several people including my own Father in law who was cured it this center. I will continue to post my results as time goes on and I pray that I am a help to someone out there.God bless you all.   Captain Bob

RBinCountry
Regular Member


Date Joined Apr 2008
Total Posts : 270
   Posted 1/19/2009 9:13 PM (GMT -6)   
Sorry for the PC - welcome to HW. Your situation seems odd to me. You are the first person I am aware of who started on harmone therapy with the later intent of radiation. Usually harmone therapy is reserved for salvage therapy. Regardless, I hope you will keep us informed and of course we wish you the very best.

RB
Age 61 (now 62)
Original data - pre-operation
PSA: 5.1
T1C clinical diagnosis, Needle biopsy - 10 cores, Gleason 7 = 3+4 in 1 core (40%), 7 cores Gleason 6 = 3+3 ranging from 5% to 12%
All scans negative
Lupron administered 4/9/2008 for 4 months (with idea I would undergo external beam radiation followed by seed implants - then I changed my mind).
Robotic DiVinci surgery - Dr. Fagin (Austin) May 19th
Post operative - pathology
pT2c NX MX
Gleason 3+4
Margins - negative
Extraprostatic extension - negative
seminal vesicle invasion - uninvolved
1st Post PSA <.04
2nd Post PSA <.1 10/30/2008


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/19/2009 9:30 PM (GMT -6)   
captainbob, Welcome to HW and hope you can stay and share your Journey down the road with us.
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 12 mts.-.02, 16mts.-?


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 1/19/2009 10:22 PM (GMT -6)   
Captain Bob-
Welcome to HW! Thanks for sharing your journey. If you create a "signature" by going to the control panel tab on the upper left portion of the screen, it will help others to follow your journey. Please keep us posted.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/20/2009 5:57 AM (GMT -6)   
No Zufus-Bob also started on ADT3 hormone therapy (5-6) months before radiations(alot of patients have done this), there is a Bolla study (if I remember the study name now correctly) that showed in an abstract that radiation patients whom did neo-adjuvant (fancy lingo for the word "prior-use") followed by (adjuvant)radiations had a decent longer survival time. This is why abstract are worth knowing about and reading.

Back in 2002 when I read that and knew I was not a reasonable candidate for successful surgery, so (bolla) study, was looking better than anything else I had any knowledge of, and I did some looking once diagnosed. (8-opinions, then my own kind of research)

Dattoli is a great resource for patients, I personally like his take on IMRT first and brachy seeds after, just in case the arguement about 'synergestic' radation to the prostate hitting brachy seeds that are radio-active, seems logical even to an idiot like me, trying to completely comprehend radiology seems like rocket science to me. Also, heard from a patient or two whom chose him and one guy that got personal attention and discussion off the 'clock' (no charge) for maybe 2 hours with him....I think his is passoniate about his patients.
Any doc that shows real concern about a patient is a plus for us patients, it should not be all about the money only.

Good hunting and tell us the story on this proceedure.


 


wiggyann
Regular Member


Date Joined Apr 2007
Total Posts : 171
   Posted 1/20/2009 8:16 AM (GMT -6)   
Hi Captain Bob,

I have heard great things about the Dattoli Cancer Center in Florida,
I so wished my husband could have gone there for his radiation and
seed implant, but our health insurance would not pay for the treatment.

He has a very good urologist and radiation oncologist though and is doing fine, but my preference would have been the Dattoli Center.

Wishing you complete healing,
Wiggyann

Husband diagnosed at 68
psa 7.3, Gleason 7
25 IMRT and 90 seed palladium implant
April 2007
latest psa, 0.5

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 1/20/2009 8:23 AM (GMT -6)   
Hello and Welcome Cap Bob, glad you found us, be interested in your story
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 1/20/2009 10:09 AM (GMT -6)   
Welcome Capt Bob.

It is in fact common to treat with hormone ablation therapy prior to and during radiation of any form. It sounds like your cancer is still local otherwise the local treatment would'nt make much sense. Have you had recent scans or other diagnostics to confirm that the cancer has not metastasised. It sounds like you have getting very good treatment, please keep us up to date.

Were you ATP, corporate or military?

Best wishes. Scott
Diagnosed @ 48yo 04/07
focal low volume tumor gleason 6
RRP 07/30/07
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 1/20/2009 12:20 PM (GMT -6)   
Welcome captain bob,

Good luck in your treatments and hope you will share more of your on going story with us.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA due 2-17-09


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 1/20/2009 1:37 PM (GMT -6)   
Hello Captain Bob......Keep us informed of your treatment approach. Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4249
   Posted 1/20/2009 1:48 PM (GMT -6)   

Captain Bob,

Welcome and keep us updated on your progress. I read that pilots are in a high risk catagory for PC along with farmers; I understand farmers because of the dioxin exposure. Any ideas on why pilots are a high risk for getting PC?

I'm also starting hormone therapy for 3-6 mos before radiation.

JohnT

 


Diagnosed 10-08 at 63 with PSA of 33
PSA was 4.4 in 1999 and has risen steadily.
Had 13 biopsies and an endorectal MRI, all negative until 10-08. Two cores out of 25 with a gleason 6
2nd opinion with an oncologist said cancer found was insignificant, but suspected larger tumor somewhere.
Doppler ultrasound with target biopsy indicate a large tumor in the transition zone, gleason 7.
Bone and CT scans negative.
PSA3= 43; (high normal is 35)
Scheduled for Combidex MRI in Feb. (Lymph node imaging MRI done in Holland).
Location of tumor makes positive surgical margin unlikely.
Looking at IMRT with hormone therapy as soon as staging is complete with Combidex MRI.
Changed diet, eliminated all meat and dairy. Taking the normal supplements recommended for PC.
 
JohnT
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

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