New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

JonH
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/20/2009 7:09 PM (GMT -6)   
I'm having surgery tomorrow. Been fasting all day and getting ready to give myself an enema. Yee haa.
Any advice for tomorrow from anyone online? I'm not really worried, right now I'm just hungry and have a
headache from not eating, and darn I've gotta go give myself this enema. But I'm pysched to get this cancer out
of me.
Jon
38
PSA .2
1 out of 10 samples positve
Gleason 3 +3

JEKNY
Regular Member


Date Joined Aug 2008
Total Posts : 23
   Posted 1/20/2009 7:23 PM (GMT -6)   

Jon H, ,

Sorry to hear you have to go through this at your age, you are fortunate that they caught it when they did. Looking back on my experience the surgery wasn't that bad, and they gradually increase the food and by dinner time I was back to regular food. They even had me up walking before 9:00 PM. I was home the next day by noon. You should not have any problems, just keep everything clean.

Good Luck tomorrow I'll say a prayer for you.

 


Born 10-13-1952

Age 55 when diagnosed

Biopsy 5/08 2 of 12 cores positive

Gleason 3+3=6 Stage T1c

Da Vinci RP 7/31/08

Post Op visit 8/7/08 Cath removed, Pathology Gleason 4+3=7 Stage T3A Extra prostatic extension: Present (right mid, right base and bladder neck area) Seminal Vesicles: Negative; Peripheral resection margin: Focally positive.

9/1/08 One pad per day for strain or movement leakage. 

9/4/08 PSA <0.05

10/30/08 PSA <0.05 

ED-Still recovering nothing usable at 3 months post op.


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 1/20/2009 7:29 PM (GMT -6)   
Very best to you.

I doubt that you wil see this post before the surgery but I am wishing and praying for the best outcome for you.

Scott
Diagnosed @ 48yo 04/07
focal low volume tumor gleason 6
RRP 07/30/07
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


strawberry man
Regular Member


Date Joined Dec 2008
Total Posts : 23
   Posted 1/20/2009 7:35 PM (GMT -6)   

Sorry to hear you got this at such a young age.  I drink a clear protein drink that I got at GNC vitamin store, you might try that, it is clear liquid and it really helps!

 

take care


Dx 4/21/08 psa 9.7  Age 58 OMG

Biopsy results  3 areas of  3+3=6 gleason

Di Vinci surgery 6/3/08

Post op 3 months and 6 months -  all clear

0 psa TYG  (thank you God)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 1/20/2009 7:39 PM (GMT -6)   
Jon, good luck to you and may your surgeon have the greatest possible skill. Couldnt imagine giving myself the enema, lol, but I am married to a nurse. Due to a mix up, I had to stop eating on a Thursday morning, had my operation mid afternoon on Friday, and the first food I saw was Saturday morning and it was lousy broth! That steamed my clams at the time, so I feel for you.

We will be looking for you on the other side!

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 1/20/2009 7:42 PM (GMT -6)   

Uh, sorry but you cannot drink anything at this point.

Scott

strawberry man said...

Sorry to hear you got this at such a young age.  I drink a clear protein drink that I got at GNC vitamin store, you might try that, it is clear liquid and it really helps!

 

take care



Diagnosed @ 48yo 04/07
focal low volume tumor gleason 6
RRP 07/30/07
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


smc64
Regular Member


Date Joined Jan 2009
Total Posts : 40
   Posted 1/20/2009 8:47 PM (GMT -6)   
Hey Jon, Best of luck!
Age 44, DX 12/08
Psa 2.6 free 11%
One of twelve cores pos. with 5% pc Gleason 6 3+3


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/20/2009 10:08 PM (GMT -6)   
Jon, see ya on the other side, hoping you have an uneventful surgery and a even better recovery.
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 12 mts.-.02, 16mts.-?


Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 1/20/2009 10:33 PM (GMT -6)   

Good luck tomorrow.  Three words of advice: ducolax stool softner.

The surgery isn't bad.  The catheter was the worst part

 


Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 1/20/2009 10:41 PM (GMT -6)   
Best of luck for a successful surgery and a quick recovery.  We will be hoping to welcome you to the Zero Club.  Allan

Age 54 at Dx.   Currently 58
Jly 05- PSA 8.1
Sept 05- PSA 10.7
Sept 05- Biopsy revealed 9 of 12 cancerous, Gleason 3+3=6, T2 stage
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- Surgery for bone biopsy.  Pathology showed benign growth, no cancer in bones. Who ever thought I would be happy to only have PCa?
Nov 05- PSA 15.4
Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, SLC, UT by Dr. Robert Stevenson. 
Home after 3 days.Cath out at 2 wks.
Incontinence gradually improved for about 3 months to 100% continence.
ED- Tried the big 3 pills with no results
Feb 06- PSA undetectable, Started VED which worked but caused discomfort with constriction rings.
May 06- PSA undetectable, Dr. gave me an Rx for Trimx injections. They work great.  Still use VED on off days without constriction for therapy.
Aug 06- PSA undetectable 
Nov 06, May 07, Nov 07, May 08, Nov 08 - PSA undetectable
ED appears to be perminant but doing great with Trimix.


dixie1
New Member


Date Joined Mar 2008
Total Posts : 1
   Posted 1/20/2009 10:59 PM (GMT -6)   
My first post...Good luck Brother...with those low numbers you should do just fine...right now it really sucks... But the journey will get better...Being here will get you alot of info. and great support...

Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 1/20/2009 11:40 PM (GMT -6)   
Good luck on the surgery ,it isnt as bad aas your mind will wan to make it,everyone is different, the cath is a piece of cake ,and no it doesnt hurt when removed,go to a GOOD hospital and it will make ALL the difference..............dirt

Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night
continence a non issue at 10weeks


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 1/21/2009 12:53 PM (GMT -6)   
Good luck to you JonH

You may be out of surgery by now and if so may your healing we painless and swift.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA due 2-17-09


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 1/21/2009 1:02 PM (GMT -6)   
Hi John,

I would just like to wish you the best of luck for tomorrow. With your good numbers (except for your young age) you should have a very good prospect of a complete cure. I'm sure that before you know it you'll be back to your old self again minus the cancer.
All the best to you in the years to come.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06, Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 1/21/2009 10:43 PM (GMT -6)   
John-by now you are through surgery. It is all downhill from here. It was worse to prepare for it than to begin to heal from it. Looking forward to hearing from you in a couple of days.
Tim
Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins
PSA Jan/09 .03


Lungman
Regular Member


Date Joined Jan 2008
Total Posts : 276
   Posted 1/22/2009 9:05 AM (GMT -6)   
John, reading this late, but I hope your surgery went well, keep in touch.

Randy
46 you when diagnosed, now 48
Pre-Op PSA 9.9
1 of 12 cores positive, Gleason 3+3
DaVinci on 9/5/2007
Post-Op Gleason 3+6, Negative Nodes and Margins
Less than 1% of prostate involved with CA
3 Month PSA 0.01, 6 Month PSA 0.01, 9 Month PSA 0.01
One Year PSA 0.01
Incontinence resolved 9/15/2007, one day after cath removal
ED showing significant improvement.
Occasional Success with Oral Meds
Success with BiMix


JonH
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/22/2009 3:47 PM (GMT -6)   
am home now little sore in stomach and catheter is wierd but happy to be done ill type more soon thanks for all of the support
tips on living comfortably with catheter?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 1/22/2009 3:58 PM (GMT -6)   
Welcome back Jon!! Was just thinking about you today, and wondering if you were back home. Congrats for being on the other side now. On the catheter, after just getting off of over 2 months on them, ask any question you want! Hope the soreness eases soon, it should.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/22/2009 4:30 PM (GMT -6)   
Jon, welcome home. Nows the opportunity to flush out your system of the drug residue and surgical debris left behind. Drink water, plenty of it. The only time you'll be able to pee without a trip to the bathroom since infancy for most of us. Here's a link to some after care info, specifically catheter care:

www.med.umich.edu/1libr/urology/postcare/rprostatectomy.htm

Anything specific, just ask away
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 12 mts.-.04, 16mts.-.04


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 1/22/2009 4:42 PM (GMT -6)   
JonH,

You made it home! Welcome back. James is right, drink plenty of water and don't forget the stool softeners. I've even found out that mineral oil has a flavor...the flavor of smoothing things along.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA due 2-17-09


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 1/22/2009 4:49 PM (GMT -6)   
John, I forgot about these list of links for returning home after surgery. Read them when you feel better.

Here's some links to info and discussions by folks who have gone before.

Tips before surgery:
www.healingwell.com/community/default.aspx?f=35&m=1070160

Shopping List before surgery:
www.healingwell.com/community/default.aspx?f=35&m=586391

Supplies-post surgery: www.healingwell.com/community/default.aspx?f=35&m=961219

What is the first day home like?:
www.healingwell.com/community/default.aspx?f=35&m=934032

www.healingwell.com/community/?f=35&m=1258414&g=1259037#m1259037

the thing to remember is each person had an individual course of recovery, and not like anyone else's, and so will yours be. However, there's enough common things that you can learn from and prepare for by reading these threads. Hope this helps.
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 12 mts.-.04, 16mts.-.04

Post Edited (James C.) : 1/22/2009 2:52:40 PM (GMT-7)


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/22/2009 5:54 PM (GMT -6)   
Welcome to the other side. Take it easy and a speedy recovery.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


califlostnspace
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 1/23/2009 10:39 PM (GMT -6)   
hope you have a uneventful and painless recovery Jon.  stay away from coffee and sodas while you have the catheter, these could irritate the bladder.  water and juice are best for now.

6'3"
205 lbs.
age at diagnosis:  51
diagnosed summer of 08
no symptoms
PSA  4.4
bone scan was normal
Radical Robotic Prostatectomy done with Da Vinci at UCSF on 12/23/08 by Dr. Peter Carroll
catheter removed 1/7/09
my local urologist referred me to a urologist at UCSF for the Da Vanci operation mainly because I had two
mesh panels in lower abdomen due to 2 hernia repairs 12 and 16 years ago
3 weeks post op I get a path report:   
 Your pathology results looked great.  Your final tumor grade was a Gleason 3+3, which was the same as your biospy grade.  The tumor did not extend outside of the prostate and all surgical resecetion margins were negative (meaning no tumor left behind).  The tumor did not involve the seminal vesicles.
Basically, the pathology is about as good as we could have hoped for.


Tobmeister
Regular Member


Date Joined Jan 2009
Total Posts : 41
   Posted 1/23/2009 11:32 PM (GMT -6)   
JonH - Tips on catheter: I had mine in for 16 days (long for some, short for others). They should have given you some antibiotic cream to put on it - use it 3 times a day and it will decrease discomfort. When it feels uncomfortable or stings that usually means it has twisted somewhat - take off your pants and leg strap and let it hang free for a second to get twists out.

Don't be afraid to change out large bad and small bad and use plug to take a shower - it was a short time of freedom for me while in the shower.

But most of all keep in mind it seems like an eternity but it is not and we have all survived and you will too.

Before I had mine removed several people told me it hurt like hell for a second upon removal. But mine did not hurt at all and what a relief to get rid of it!

The best of luck to you.
Tom, age 51
Diagnosed 11/12/2008
PSA 2006 - 2.8, 2007 3.06, 2008 4.6 (remember the rate of increase is as important as the level), PSA free 8.7%
Gleason score 7 (4+3); 6 out of 19 cores sampled positive for cancer; perineural invasion present
Bone scan and CT scan both negative
Prostate mildly enlarged, DRE negative
DaVinci radical prostatectomy 12/30/2008 - Duke Medical Center - left side nerves spared
Scheduled for catheter removal 1/15/2009

"Pick a good doctor and say your prayers"


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 1/24/2009 9:03 AM (GMT -6)   
When I had my 5th catheter removed last Monday, after 66 days on the catheters, I was really worried it would hurt. My dr., real sensitive to my pain level, had me stand up, and I said why, he said that with the very large diameter catethers like he had me on, the gravity helps. Once he deflated the balloon, it just slid out in easy pull. A little bit of pressure, but no pain. None of the other 4 hurt coming out, all the nurses were pretty sensitive about that.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Tuesday, August 21, 2018 2:52 PM (GMT -6)
There are a total of 2,995,174 posts in 328,204 threads.
View Active Threads


Who's Online
This forum has 161320 registered members. Please welcome our newest member, nighowl.
299 Guest(s), 9 Registered Member(s) are currently online.  Details
07kr5, xpeetzax, oceanfisher58, Seamus M, zack36, AnxietyKelller, pantherman59, InTheShop, FLBeachgal