I have been turned down twice, I was told for my third appeal that it would be 20 months before I see anyone. So I stated complaining, Then they changed it to August of 2009, still not soon enough for my condition <T4> stage. So I wrote my senator, she got a hold of the SSA and I got a letter back last Thursday, saying based on my statement we maybe able to issue a favorable decision without a hearing. But I also have Macular Degeration <blind in one eye trying to keep the left eye, no cure for this also>. My advice, keep trying they always turn ya down twice. It is real pain in the A%%.
Update: I got my dissabiluity and s.s., it pays to contact yout senater. It took only two months after contacting the senator.
Found out Jan. 07
The doc said chemo or radiation was not an option.
Started Lupron to shrink it before surgery, did not work.
Radical prostentechomy Sept. 5.
Couldn't get it all, it was outside the sack and into lower lymph nodes.
Cathader removed about 3 months.
Incontinont for about 3 months
Peranial rectal absesses w/ drains for about 4 months <MRSA>
Continued Lupron until Oct. 08 <psa.04 to .06>.
Started losing weight. <194 to 170>
Now trying Zoladex, next shot in Dec. 18, then we will see what the PSA is, before deciding on future treatments.
Now in the T4 stage
Lupron=memory, tired all the time, joints and muscle aches, hot flashes.
Zoladex=memory, tired after doing something, left back rib cage is tender when inhaling, all joints and muscles below the waist ache, the worst is the left hip.
Went to the doc's today 12-18-08, stopped Zoladex today waitin on blood work to come back.
Blood work came back .07. now back on Zoladex for three months then we will see what happens.
Post Edited (keepingon) : 2/24/2009 12:16:57 PM (GMT-7)