My Continence Story So Far

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 9:19 AM (GMT -6)   
After 66 days of being on a catheter, was freed last Monday morning, so  I am coming to the one week mark.
 
Monday - had to go every 10/15 mins, stream weak, had scary almost blockage for about 1 1/2 hrs that evening, thought I might have to go back to ER, stood up, then all hell broke loose and gushed and filled the pad, but relieved.  No sign of blockage since (great relief).  Slept 2 hours that night, but dry in morn
 
Tuesday - went every 20/30 minutes, same pad all day, dry all night, slept 4 hrs
Wed - went every 30/45 mins, same pad, all day, dry all night, 4 hrs sleep
Thursday - could wait almost an hour some times, same pad all day, dry at night, 5 hrs sleep
Friday - could approach 1 1/2 hours, same pad, dry at night, but 3 hours sleep
Sat - could approach 2 hours, same pad, dry, an slept..tah dah........7 hours which is normal for me.
 
I honestly only flooded one pad on the first night after the mini-blockage.  Not bragging, just reporting.  So I am declaring myself 100% night dry, but will still wear something at night for some time just for assurance.  Day, I have to work at and be conscious too much about it to feel I am dry on my own by day.  But I think for 1 week, good progress.
 
Why am I doing so well, #1 Luck of the draw, #2 (This according to my dr) since my bladder neck and urethra had over 2 months of healing time, and the fact that I heal from wounds, etc amazingly fast normally, there was so much less strain on the system when the last cath was removed.  Most men had the catheter for 7-14 days, and their "parts" are just barely healing, etc.  Also, all those horrible painful spasms I had the whole time, and just about wrecked my mental being at times, served a purpose of the bladder being forced to try to expel the foreign object, in this case, the catheters.  So what was so terrible for two months, may be a blessing in disguise now that I am on this side.  But I also know #1 above has a lot to do with it, from reading all the cases here, too many variables, too many maybees, too many inconsitencies with how people react to draw any real conclusion.
 
I am hoping to consider myself day dry in another few weeks, but I never know if I might have a set bet, so certainly not getting over confident.
 
I hope this will be an encouragement to fighting to stay dry.
 
David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/25/2009 9:26 AM (GMT -6)   
That's great info David. I felt tlike you might really benefit in the long run with longer catheter time. Think of the spasms as internal, involuntary kegals. You know the progession if first the disease, then the continence, then the erectile dysfunction. Looks like its time for # 3 to begin. Maybe start the pills, at least a pump, the stretch and infuse routine. It's been too inactive too long, time to use it or lose it... tongue turn blush
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 12 mts.-.04, 16mts.-.04


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 10:03 AM (GMT -6)   
Thanks James, the amount of spasms I had is not common, thank goodness for the mostly relief that the Ditropan gave me. I think you are right about the Kegal analogy.

On the ED side, I haven't talked about that here yet, in fact, my dr. hasn't even had that initial conversation with me yet, should happen on 2/9 when we sit down with my first post PSA.

But, having said that, I have experienced several full errections on my own in the past week. At first I thought it was wishful thinking, but its true. My wife/I going to get "friendly" tonight for t he first time since early November. Last night, just normal petting, no thought of sex in mind, had another erection, and had her verify what was going on, she thought it felt 90% normal, and that without any purposeful stimulation or progress toward sex.

I am more then amazed, and can't wait to report to my dr. My first thought, and I use the word miracle in a clinical sense, how can this be happening. I had a non nerve sparing operation. The dr positively removed the left side, and because of the very difficult narrow and deep prostate bed that caused him surgical complications, they delcared the right side severely damaged, so effectively gone.

How can I even have a natural errection having just said that. If I understand how all the parts work together, it doesnt make sense, but I am thank beyond any belief. Going into my surgery, I fully expected and was totally resigned to perhaps never having a natural errection the rest of my life.

My only uneducation thought, and you would have know me is that I having an amazing immune systems and healing ability. I can get a bad slash or cut on a finger, and in 48 hours, wont even be a trace. In almost 35 years, my wife has never seen a bruise on me. I may just be guessing here.

Even if one nerve bundle was preserved perfectly, I wouldn't think from what I have read here for months, that what I am describing would be possible. Need some feed back on this, was going to wait awhile longer to discuss this, but the cat is out of the bag.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 1/25/2009 10:22 AM (GMT -6)   
Wow, talk about a comeback. If you are having such success now, and am able to sustain those erections thru the act to completion, then you are gonna be the miracle baby for us all. Maybe you need to start selling your magic healing blood or something.. tongue Seriously, that is absolutely great news. congratulations
James C. Age 61
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Path report: 3 of 16 PCa, 5% involved, left lobe , GS 3/3:6.
9/07 Nerve sparing open Retropubic Radical Prostatectomy
9/07 Post-op Path Report: GS 3+3=6 Staging pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: 3 mts-.04, 6 mts.-.04, 9 mts.-.04, 12 mts.-.04, 16mts.-.04


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 10:41 AM (GMT -6)   
I know some here will think I am just b.s., but James, I dont lie or aggerate here. Would defeat the purpose in seeking truth, and getting support, and helping others here in return.

The last night erections as my wife and I were in bed cuddling and talking, a nightly tradition, maintained the entire time, and with any notion of conversations turning sexual, would make woody return on its own, just like before surgery. I am not complaining, just in my mindset to understand why things are the way they are, and too me, I still say, how is this even possible. Is there something else that helps the penis get errections beside the two main nerve bundles? I dont know anatomy enough to know.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


smc64
Regular Member


Date Joined Jan 2009
Total Posts : 40
   Posted 1/25/2009 11:06 AM (GMT -6)   
Withall you've been through, that is great news!! Congrats!!
Age 44, DX 12/08
Psa 2.6 free 11%
One of twelve cores pos. with 5% pc Gleason 6 3+3


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 1/25/2009 11:07 AM (GMT -6)   
Dave, I am pleased beyond words at your report but I gotta say something just the way I see it.

There are no such things as miricles in anatomy. I am not a Dr. but I can assure you that will not find any medical text to support the possibility of an unassited erection in a man whose neurovascular bundles have been severed or removed. If this was me while being thankful for the experience and hoping that recovery of normal erectioins would continue I would also be asking the surgeon for an explanation supported by recognized experts.

Glad you are making so much progress on the incontinence front. I see no mention of you using any meds. I have been taking Oxybutinin since the operation, it calms my bladder and gives me better control. It can be had in a straight oral formula, a time release oral and a continual release patch. I am trying the patch right now and I like the outcome but I don't know if I will be able to deal with the presence of the patch.

Best wishes. Scott
Diagnosed @ 48yo 04/07
focal, low volume tumor gleason 6
RRP 07/30/07
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 1/25/2009 11:43 AM (GMT -6)   
David,

That is great to hear about your excellent progress in both areas. It makes me wonder, did the extra catheter time wind up helping both continence and ED? Hmm, maybe we can do our own informal study among the guys here...

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
pT2c; lymph nodes negative; microscopic margins
PSA 1/22/08 non-detectable! 8-)


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 1/25/2009 11:44 AM (GMT -6)   
thats great purg ,i think your right , another couple of weeks or so,if those pads are as uncomfortable as i remember , i believe your at the point you can put in the womens panti liners , with out any pad ,you wont  even know they are in ,just a thought and congrats finally some good news brother...................dirt  turn
Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night
continence a non issue at 10weeks


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 11:47 AM (GMT -6)   
Scott, my doctor had me stop the oxyy the day the last catheter came out ,but I know its described for the use you described as well as bedwetting. Funny how the same drug can be used for different usages.

I didnt mean miracles as in some quasi religious or paranomal sense, just saying, would have never expected to have anything the way I have so far happen at all, let alone this soon to surgery. I know a few guys here report having virtually no ED problem early on, but they are the exception, and I dont they had one bundle or both removed, but could be wrong.

I take a quote from the movie "Stir of Echoes", "I would never look a gift boner in the mouth"
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


gtmriviera
Regular Member


Date Joined May 2007
Total Posts : 338
   Posted 1/25/2009 12:24 PM (GMT -6)   
As any 16 year old guy looking at a Playboy can tell you, erections start between your ears and apparently you have a good memory. As for the urinary problems I am not doing that well. Surgery was 10/4/2007 and I am still wearing adult undergarments. I had dbs surgery (brain surgery for Parkinsons) last Wednesday at U of Fl and slept in the back seat all the way home. Had a soaked undergarment by the time we were half way home and I woke up this morning to a wet sheet on the bed. The doctor who did the prostate surgery blames it on the Parkinsons and the Neurologist says maybe. It looks like I may have this problem for the duration. No ED problem so I'm not complaining.

Tobmeister
Regular Member


Date Joined Jan 2009
Total Posts : 41
   Posted 1/25/2009 12:26 PM (GMT -6)   
Very happy for you David. You deserve a break!
Tom, age 51
Diagnosed 11/12/2008
PSA 2006 - 2.8, 2007 3.06, 2008 4.6 (remember the rate of increase is as important as the level), PSA free 8.7%
Gleason score 7 (4+3); 6 out of 19 cores sampled positive for cancer; perineural invasion present
Bone scan and CT scan both negative
Prostate mildly enlarged, DRE negative
DaVinci radical prostatectomy 12/30/2008 - Duke Medical Center - left side nerves spared
Scheduled for catheter removal 1/15/2009

"Pick a good doctor and say your prayers"


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 1/25/2009 1:44 PM (GMT -6)   
Thats really good news David. Congradulations. Just keep getting better.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA due 2-17-09


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 3:19 PM (GMT -6)   
gtm, i am not out of the woods yet on the incontinence, only barely coming up on a week, i have no confidence yet, i wouldnt dare not use a pad or pullup at night even though ive been dry at night so far, and today, we went to a baptism for the child of a friend of my wife, was only wearing a regular pad, and the service drug on and on after a delay, was a nervous wreck the whole time, and because i meant to wear black pants and ended up wearing light colored ones. definitley not over yet. i had read a head of time about not drinking juices, coffee, tea, soda, etc etc while trying to become continent, been faithful about that and only drink water. might look like i am do so great, but ask my wife, i worry about and stay consumed with working on the problem.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 1/25/2009 5:09 PM (GMT -6)   
David, great news. Sounds like you're on your way now.
Age 50
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 7:14 PM (GMT -6)   
Coxjajb, thanks, got a ways to go, but feeling little more confident, a little more alive, just getting rid of a two month plus catheter
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 1/25/2009 7:25 PM (GMT -6)   
David, You are definitely strong on.....It seems to me that you have had a very unusual (yet sometimes it happens)...not all of the nerves have been severed ....SO....Congratulations....You go guy!! And also thank you for your very kind and wonderful comments to me and Pete. Life goes on whereever and whatever.... My best to you and your dear wife.......Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 1/25/2009 7:31 PM (GMT -6)   
David, Glad to here you're doing so well with the incontenence. Congratulations on obtaining wood. I'm happy for you.... jealous, but happy. Here's to your continued success in both departments. Allan
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 7:37 PM (GMT -6)   
Thanks Allan. I was hesitant to post anything about either subject with me, because I dont want to discourage anyone, but, we all have our share of sucesses and failures, good times and setbacks with our fight with PC. It wasnt many weeks ago I was feeling hopeless in general, tired of my recovery and the never ending catheter battle. But all things are possible, and we all need to stick together in our battle, so my stories here are never meant to be boasts, I am thankful for every little good thing that happens to me. Best to you brother
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 1/25/2009 7:57 PM (GMT -6)   
Purg, Glad your doing so well. I understand the not trusting things. It took me a while after my AUS to be more relaxed in public.
Good Luck,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
    First Post op PSA on Dec. 11, 2006  Undetectable 0.00.
    ED workable and usable with Viagra.
    Feb. 20th, 2007 - Feb. 4th, 2008  Cystoscope, Two Collagen injections,Second Opinion Consultation for Incontinance at OU Medical Center, Bio-Feedback training, Chiropractic, Accupuncture  to try to resolve ongoing incontinance (4-6 pads a day)  All PSA's 0.00.
    Feb. 22nd, 2008 - Surgery to install the AMS AdVance Male Sling.
    March 27th, 2008 - Sling not working, Little or no improvement.
    April 18, 2008 - Collagen injection.  Back to using 4-6 full pads a day within a week.
    May 14, 2008 - Another collagen injection to try to Band-Aid the leaking for our June cruise.  Will start making conusultation appiontments for AUS after we return.
    July 14th, 2008 - AUS consultation with Dr. Morey at UT Southwestern (Dallas).
    July 30, PSA 0.00.
    Aug. 22nd, 2008 - AUS Surgery by Dr. Morey
    Oct. 6th, 2008 - AUS Activation by Dr. Morey.  Working Great, only light drips and dribbles.
     


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 8:50 PM (GMT -6)   
Diane, my whole life has been as the odd duck odd, so with me, you never know what's going to happen next, lol. My wife had a good weekend together, lots of shopping Saturday, good extended family time this afternoon, etc. Getting a little braver on the being dryer part then I was even a couple of days ago.

Give my best to that husband of yours, if he ever would like to talk by phone, if you think it would help or be an encouragement, just zip me an email.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/25/2009 8:52 PM (GMT -6)   
Thanks Dirt, I always rejoice in the good news of others here, it cant be bad all of the time for us, at least that is what i tell myself. david

and thanks to the others for your encouragement
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3, 9/8 14.9, 10/8 16.4
3rd Biopsy 9-2008 Positive 7 of 7 cores positive, 40 - 90%, G 4+3 & 3+4
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, Catheter out on 12/15/8. Stopped flowing, new catheter put in 12/16/08, Catheter out 12/29/08. Emergency room put in Catheter # day 45, 1/5/9 - Cath #3 out, dr. did cycloscope, saw potential blockage, put in Catheter #4, 1/13/9 - removed blockage, put in Cath #5, 1/19/9 -out
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery  Scheduled now for 2/9/9
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/26/2009 8:59 AM (GMT -6)   
A week ago today, had the 5th catheter out, my ability to stay dry is still improving day by day. Been dry every morning. Still on one pad by day, but I think its more for my head then for my bladder. We all got to do what we got to do. Just a little gun shy.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores positive, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th catheter out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grams, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/26/2009 9:21 AM (GMT -6)   
Sure sounds a whole lot more encouraging, bravo on all levels. The Brits call them 'stiffies' and that is always a plus item to have happening early on. Just don't hire any 'interns' is good advice (wink-wink).
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 1/26/2009 9:50 AM (GMT -6)   
Trust me, its not like it was pre-surgery, not by far. After some "experiments" this weekend with the other half, probably more like in the 60-75% range, perhaps a bit more, but that is w/o any medications, pumps, etc. Just what the lil fellow can do on its own. The desire part in my brain has now fully activated on its own, something I chose not too do all that time I was on the cath. So I am encouraged at this point, but have very realistic expectations. Not going to obsessed or go nuts on the sexual part. Perhaps its just how I read things here, but there's loads of ways for a man to please his woman, full intercourse ending in ejaculation isnt going to happen any more for use that went through surgery, but some might have to learn to be creative in the sack, if they weren't doing it before. My wife is most happy this morning.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 

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