David E Update

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FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 1/26/2009 6:45 PM (GMT -7)   
I thought the old post documenting my Chemo treatment was getting stale, so I started a new one!

Well today I had my 12th and final (for now) Chemo treatment.
As alway, beforehand I had blood drawn for PSA and other blood markers then we waited and
hour and forty five minutes for the Doctor.

The blood markers we slightly low in most cases (ANC, Red and White cells etc).

The critical news, my PSA came in higher. After dropping from 39 to 29 three weeks ago
it rose back to 37. The irony is right before the doc pulled it up on the computer I told him
I was feeling better than last time.

Oh well, life goes forward. Next step is we meet in three weeks to finish out the trial and take one more
PSA. He is looking to see if I can start DES without waiting for the trial to officially end.

In the mean time we will begin to look at potential clinical trials and other potential off label treatments.

If you're curious, I fine, Mary is fine this is all part of the roller coaster ride that is PCa.

Tomorrow I turn forty six and in a few days I begin year 5 of my battle. There are many skirmishes ahead in the battle!

Peace be with you all!


scool
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (1-26-09)
PSA: 37.59
Taxotere + Prednisone + Atrasentan
[12th Treatment on January 26th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 1/26/2009 7:01 PM (GMT -7)   
Happy Birthday, David! Keep the faith, buddy.
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/26/2009 7:24 PM (GMT -7)   
Good luck to you David, and keep the fight going.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 1/26/2009 7:37 PM (GMT -7)   
Good luck to you David, hang on to that roller coaster and keep up the fight. Happy birthday and many more of them.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 1/26/2009 10:13 PM (GMT -7)   
David-
May your 46 year of life be filled with strength, hope and lots of frisbee golf. :) Tomorrow will be a day about you and you give us all so many reasons to celebrate. Thank you, tomorrow and always.
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 1/26/2009 10:23 PM (GMT -7)   
David-
Happy Birthday. I hope you can just enjoy this day and I will pray that you have many more. Your strength makes us all stronger.
Tim
Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins
PSA Jan/09 .03


mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 369
   Posted 1/26/2009 10:41 PM (GMT -7)   
  Geez, after hearing your story I feel ashamed for being so depressed about my life. My prostate CA was found in August '08 after second biopsy, PSA=2.85, 2/12 cores positive on R side, 5% one core, 25% second core, gleason score of 3+3=6, clinical stage T1c, pathological stage T2a after robotic prostatectomy on 09/11/08. Age 52. First 2 post-op PSA's undectectable. I guess we all have crosses to bear, my daughter graduated from college and moved to Peru to live with her boyfriend, I don't know if I'll ever see her again, my 23 year old learning disabled son still lives at home and works at fast food joints to pay the car note on the car I gave him, drinks and also smokes pot. He's going nowhere. My wife super depressed, taking heavy anti-depressants. If you can get up in the morning and march on I guess I can, you are an inspiration to me..............

jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 1/27/2009 5:30 PM (GMT -7)   
Yeah, it's all part of the ride, but I sure wish that none of us had to experience it. My best to you David, my very best.

Bill
August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 
Wow, almost two years behind.  I had a typical radiation bounce that
scared me, but it seems to be ok.  PSA is about 1.0 which is ok for
a rad guy at this stage of the game.
 
Got my FAA medical certificate back four months after starting my
treatment.  It's still a First Class, just jumping through a few hoops.


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 1/27/2009 6:16 PM (GMT -7)   

David you got friends who show support for you and your taking the time to share with other PCa patients about the journey and your treatments. When you are looking for answers you need to find them and/or comfort in something or someone. By your sign off words I know you already found what you need the most which is full filling beyond general comprehension.

As another guy who is aggressively fighting PCa, I can say to you that DES or estradiol patches are not all that big of a deal to use against PCa.  I feel more like a man on DES, than I ever did on LHRH/ADT3 drugs, I don't notice any real big side effects and feel strong and no hot flashes or sweats and no fatigue either, not even weight gain. Dr. Lee has used Emcyt another drug is this grouping, it has heavier duty side effects but must be very useful or he would not have used such on himself. I think you may see results with it and within weeks/month. I have had such and seen in others such. Even though you probably have to buy DES without insurance, it is almost free....as low as  $120-140/ years worth of 1-mg (daily useage). Patches might cost $80-100 per month, swag guess on that.

Patches:  www.prostate-help.org/download/estrogen.pdf 

I don't know if you know about Bill Aishmans research and journey on various protocols including Chemo treatments, he did alot of ground work for the sake of others he has it posted within www.prostate-help.org   not only for you to look at but anyone that is interested.

Best to you,

Bob-aka neutrondbob

 

 



 

Post Edited (zufus) : 1/27/2009 7:22:06 PM (GMT-7)


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 1/27/2009 7:24 PM (GMT -7)   

Hey, David

Bob from Belton,here.  Happy birthday, my friend.  Is tonight a tenderloin night?  A little chilly for the grill, but well worth it.  Hang in there, and disc golf is not that far away.

Bob


 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 1/28/2009 6:35 AM (GMT -7)   
God bless you and your family David, you are turning new ground in the search for a cure.

Happy Birthday.

Scott
Diagnosed @ 48yo 04/07
focal, low volume tumor gleason 6
RRP 07/30/07
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


mgl
Regular Member


Date Joined Feb 2007
Total Posts : 122
   Posted 1/28/2009 5:11 PM (GMT -7)   

Happy birthday David , I hope the day and many many more go great for you. Keep your chin up ,I know you will

mike

 

 

 

 

 

 


50 years old
gleason 3+4=7 psa5.8 clinical stageT3a
Da vinci surgery April10 2007 Mayo clinic Rochester, Mn.
extraprostatic extension Gleason -same
pelvic lymph nodes -negative
Catheter out April 19
psa aug 2007 0.28
37 treatments IMRT ended 10/26/07
psa Jan 29 2008 0.10
psa april 30 0.14
psa aug 21, 0.16
psa dec 17 o8 , 0.16


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/28/2009 5:13 PM (GMT -7)   
Happy birthday David and thanks for the update. I think of you often my friend.

love you brother

Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 1/29/2009 10:20 AM (GMT -7)   
I posted this, then the week got away from me....

- Sleep was bad Monday night/Tuesday but I got in four episodes of the Showtime series "Brotherhood'
- Work on Tue-Thur had been BUSY, which helps the day fly by!

Bob from Belton, no tenderloin this time, I was beat Tuesday night so our plan is to have a nice dinner this weekend!

There are far too many comments to answer, which I REALLY appreciate so I'll just end with this;

Being diagnosed with PCa is not the end but the beginning of something. That 'something' can be whatever you make it, good or bad, the choice is yours.

Am I a dreamer? You bet I am because to choose the opposite is to give up!
Dx'd 2/18/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Current (1-26-09)
PSA: 37.59
Taxotere + Prednisone + Atrasentan
[12th Treatment on January 26th]
Clinical Trial:
http://www.clinicaltrials.gov/ct2/show/NCT00134056?term=prostate+AND+atrasentan&rank=2
Lupron
Personal Blog:
prostatecancerat42.blogspot.com


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3195
   Posted 1/29/2009 6:08 PM (GMT -7)   

David, My brother.

   Happy belated B-day. I just turned 45 myself. I'm catching up to you so you better never slow down. My best wishes to yourself and your better half. Peace be with you. Todd


dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!

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