Balancing time and decisions

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Sleepytime
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 1/31/2009 11:50 AM (GMT -7)   
I was diagnosed with prostate cancer on 09/22/08 after being carefully watched and having multiple biopsies over several years. The clinical staging wasn't great (T2b, GS 4+3=7), but it wasn't horrendous. As I got the news over the phone I had several days to do my homework before the followup appointment to discuss options, so my wife and I had already decided to do surgery. My urologist said that the surgeon he works with wouldn't be able to see me until the end of Jan. '09 and the surgery would be scheduled then. "But not to worry... prostate cancer is typically a slow growing cancer." he reassured me.

Instead, on 11/11/08 I took myself to a very highly regarded urological oncologist/surgeon for his opinion. After checking my current PSA velocity he informed me that we had to act now or else.

Though his surgical schedule was full through Feb. '09, on 11/21/08 (ten days after meeting him) he performed non-nerve sparing Laparoscopic surgery and from the pathological staging he was correct (T3b, GS 4+5=9). After a post-op PSA of 0.1%, he's now hoping for 5-10 years instead of 2-5 years. I like this guy!

Moral of the story... there are always exceptions to the norm. Not everyone diagnosed with prostate cancer has the luxury of time. One out of ten will have aggressive cancer. I'm hoping that by choosing to disregard my urologist and acting quickly, I will have the luxury of time... later.

On another note... though this is my first post, I have benefitted greatly from this forum. The moderators are doing all of us a great service.
Age 54 - 6'2" 200lbs
Overall Heath Condition - Good

PSA monitored every 3-6 months starting 04/01/04
Important readings and actions:
10/18/04 - PSA 03.48
05/24/06 - PSA 04.92 - 08 sample biopsy: negative
05/10/07 - PSA 16.84 - 14 sample biopsy: negative
09/02/08 - PSA 26.54 - 16 sample biopsy: positive - GS 4+3=7 - Stage T2b
11/11/08 - PSA 37.95
11/17/08 - PSA 40.98 - (doubling time less than 8 weeks)
11/21/08 - non-nerve sparing Laparoscopic radical prostatectomy

Pathology GS 4+5=9 - Stage T3b N0 MX - bilateral lobes - perineural and seminal vesicle invasion - surgical margins: negative - largest tumor 2.1 CM

Catheter in for four weeks - only minor stress incontinence after 6 weeks

01/19/09 - 1st post-op PSA: less then .01
01/30/09 - started hormone therapy


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/31/2009 2:48 PM (GMT -7)   
Sleepy,hello and welcome here, glad you are among us. Your case proves an interesting point that some don't seem to get or even want to acknowledge. There are aggressive cases of PCa, the kind where you don't have the luxury of spending months getting opinions and options. There are cases, where time is of the escence, and you have to do what you have to do to get a handle on the cancer. In your situation, you have a much more serious situation then you originally thought. I see you had your surgery one week after mine, so I hope you have healed pretty good. Please stay with us hear, hope we can learn from each other. My best to you.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 1/31/2009 3:13 PM (GMT -7)   
Sleepy, you need to clear up one point, in your story you mention a post surgery psa of .1% and in your signature it says less then .01%. Might not sound like much, but that is a major difference. The less then .01% is a statistical zero psa in the right direction. In other cases, after surgery, a .1% could mean a reaccurance. Which one is correct?
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 1/31/2009 3:29 PM (GMT -7)   
welcome to the sight Sleepy I hope you hang around and join in the discussions. We have a wonderful loving family here with many diverse personalities. There is a wealth of knowledge that you will not find anywhere else. So ask questions and share comments.
peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Sleepytime
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 2/1/2009 12:43 AM (GMT -7)   
Thanks everyone for the warm welcome.

Prostate cancer is a daunting journey for anyone with the diagnosis, but it is a call to life... to live. Reading the many posts I am amazed at the amount of encouragement from so many. My encouragement to others... when I turned 40 I had a massive neurological illness that left me disabled and nearly left my wife a widow. Last year I nearly lost my wife to a pulmonary embolism. Now we are living with prostate cancer. We have learned to live life to its fullest each day and leave tomorrow in God's hands.

Purgatory - This website helped me tremendously in being able to make good decisions quickly. Those decisions were good not because of the outcome, but because I could vigorously defend them. Being an active participant in one's medical treatment is the most important decision one can make. As for healing, I couldn't have wished for a better experience. The only problem I had was urinary retention when the catheter came out, which caused a trip to the ER (I've had a neurogenic bladder for 14 years). I was working from home 4 days after the surgery and returned to work 10 days after the surgery. Eight weeks after the surgery I took my son skiing for a week. Thanks for catching the typo in my profile. My first post-op PSA was less than 0.1%, not .01%.

OhioState - "'... he's now hoping for 5-10 years instead of 2-5 years. I like this guy!' PLEASE don't take that as fact. There are so many protocols that can and will extend those numbers." Thanks for the encouragement. My wife and I are not assuming anything, either good or bad. We're simply enjoying our life together and making the most of it.
Age 54 - 6'2" 200lbs
Overall Heath Condition - Good

PSA monitored every 3-6 months starting 04/01/04
Important readings and actions:
10/18/04 - PSA 03.48
05/24/06 - PSA 04.92 - 08 sample biopsy: negative
05/10/07 - PSA 16.84 - 14 sample biopsy: negative
09/02/08 - PSA 26.54 - 16 sample biopsy: positive - GS 4+3=7 - Stage T2b
11/11/08 - PSA 37.95
11/17/08 - PSA 40.98 - (doubling time less than 8 weeks)
11/21/08 - non-nerve sparing Laparoscopic radical prostatectomy

Pathology GS 4+5=9 - Stage T3b N0 MX - bilateral lobes - perineural and seminal vesicle invasion - surgical margins: negative - largest tumor 2.1 CM

Catheter in for four weeks - only minor stress incontinence after 6 weeks

01/19/09 - 1st post-op PSA: less then 0.1
01/30/09 - started hormone therapy


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/1/2009 5:37 AM (GMT -7)   

Sleepytime this reply is not a dig towards your journey, you did right by dumping the first uro (asap). Maybe the second uro is fine in your situation and nobody likes to second guess, that is not fun for anybody. I want to make a point not on you but on this type of situation that is commonly seen and perhaps others may ask more questions from both of these types of docs that the may meet and it may make a difference in their journey or mindset.

First uro-doc no doubt another expert, says like you said 'PCa is slow growing most of the time'... Did he have your pathology (biopsies) information reviewed, did he explain the risk of Gleason (4+3) over it being Gleason (3+4), (with 4+3 and your psa level, absolutely no slow growing) did he mention that in nomograms or Partin tables with those higher psa scores that you would have much-much less odds than 50/50 for curative surgery? (maybe as low at 15% chance.....hmmmm)

Although second uro has a point about saying, you probably should not do any waiting around with seriously aggressive cancer(that is sound advice to consider), did he even mention you could if you chose to...start a hormone therapy while you thought about it or looked into other treatments that could and should be your___ right to have full disclosure and options on for a life threating and life changing disease???? This is compassionate medical advice and totally sound practice, why tell anybody they have possible other choices or options, when you can rush them into something whereby you make plenty of money. If you did not have insurance they may not see the rush to get you anything. In my book a 'real expert' secure in his hypocratic oath and self as a servant and not playing God himself....he is to be totally fair and upfront, disclose it all good or bad, use nomograms and partin tables and show them to the patient (why are we hiding information-agendas???), tell the patient why you are good at what you are doing (they usually all do that), tell them "if" you want to think it over or get another opinion....I am here for you....asap...if need be. Funny how they usually can fit anybody 'in' when crunch time seems to lurk around.

Hey I could be totally wrong on this(but don't think so)......keep your eyes open on all PCa issues....myself I make no money off of anybody and only want to see patients get "total" fairness and disclosure and mulitple choices.....which if you notice some of those other choices seem to do alright.

Don't shoot me as the messenger....if I was the doc or had time myself I would have told you "all" possible considerations up front (and I am sure there are some I don't even know about) I'm talking about 'all' known options. That is why free discussion opens the doors for change, we can hold them accountable, we can help inform the doc....hey you do the math for me...what are nomograms and partin tables saying about my disease level, can you show me or print it out, please!!! You are the expert show me the nomograms.....and I'll show you da money. (lol)


 

Post Edited (zufus) : 2/1/2009 5:44:21 AM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/1/2009 6:52 AM (GMT -7)   
There you go again, Zufas. Needlessly scaring and trying your shock treatment on new people here in particular. I feel sleepytime and his wife made a good sound medical decision based on some pretty strong numbers. He has done well since surgery so far, and his recovery is going great. What posseses you to want to plant a seed of doubt or uncertainty into someone like sleepy, or the others??

Sleepy and his wife have already been through some serious medical matters together, they are thankful they are both alive, to continue to have each other and love each other. And with his post surgery of Gleason 9 , T3 tumor, etc., he's doing very well. Like many others in that situation, they might just be happy to be alive, to live longer, and to be on the mend.

So Zufus, stop spoiling the little bit of joy and positive feelings men and their women might just be feeling after dealing with PC, their treatments, and their hope that they just may be ok.

David in SC.

P.S. From an earlier post, Zufas, I am still waiting for a list of doctors that you think are alright that you have used.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/1/2009 7:04 AM (GMT -7)   
zufus, I am gonna shoot at the messenger here. You have a constant theme of multi-consults, multi-doctors, fire em all until you find the ONE, and present a general suspicion of the medical profession. All well and good, but have you considered how someone who has already made their decisions or someone who has to make it but has neither the resources or ability to do that multi approach, either because of location or financial circumstances or other important reasons, feels when they keep reading your many posts on the subject and thinking that they have maybe/probably/are gonna make a mistake if they don't consult multi times, research and discard until finding the golden ticket that will assure the absolute best results? Best world scenerios are fine, but real world reality does take its place more times than we would like or we can imagine. Your advice is fine, but I think we all need to remember there are many different people with many different circumstances that we can't begin to understand, and we need to be more helpful than pointing out how many different ways they can/could have done it better or how many different ways they can mess it up or have messed it up. A little understanding that people are different and their approach or the path they may have had to take would be helpful to balance your message.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months

Post Edited (James C.) : 2/1/2009 7:08:16 AM (GMT-7)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/1/2009 7:13 AM (GMT -7)   
Would you like me to leave today!!!! I think John T has explained it well enough already on what an informed patient needs to know and/or do. I never said there are not good doctors, I have seen alot of junk over the years. It may help open some eyes on new warriors to get the ulitmate factual non-sugar coated world of PCa...it is not all fairness and peaches and cream. We patients are at a huge disadvantage: trust in whomever cause he is a doc (alot of people herein know the down side of that already), the patient usually knows very little about the choices, the parameters, the outcomes, the total side effects you are signing up for, patient rarely knows about nomograms, options, or that you could postphone surgery (although it may be just what you want or need).

The doc either does know or should know your case well enough, sometimes they give false hope to patients intentially, that are seeking curative surgery and telling them yes it is curative and only 1% chance of incontinence....yada...yada...yada (I was told that by a local "expert"). You may have not witnessed the 'rush hour' program from other patients, I have seen in for many years on many forums.

Out of respect to you and others, I will tone it down....I made the point on the value of assessment, knowledge, choices, options, and why folks need to be on guard in the real world this actual is.
All treatments have their place.

P.S. (David- I have a list of some great docs...it took me 8 opinions and alot work on my part to find them(4-5 of them are curb material), and just because they worked for me or I am happy with them...I don't go around throwing out their names to others...hey this doc is the best...nobody is superior...I see that on other forums...it could be way biased(couldn't it). Definitely no doc is a one size fits all expert. 


 

Post Edited (zufus) : 2/1/2009 7:21:24 AM (GMT-7)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 2/1/2009 7:29 AM (GMT -7)   
Ok, enough said it is hard enough being new to the jungle of PCa.

I will take a vacation at this point.
 


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/1/2009 7:38 AM (GMT -7)   
zufus, no vacation is necessary. Each member here is valuable, although we may squabble at times, we still enjoy each others company and need each others strength. You have listened to my opinion and that's enough- just to listen and consider....that's all I ask.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/1/2009 7:38 AM (GMT -7)   
zufus, I guess its the classic is the glass half full or half empty. Your posts are almost always to to the half empty side, almost never to the half full. Hope sometimes can be a preception in one's mind and heart, its a key survival tool, I would never take that aways from someone. I don't know you personally, so not going to pretend, but I suspect that you have been damaged/hurt by the medical profession, and that underneath it all, you are scared and worried. No crime there, no foul, we all are, even when we put on our best faces in our PC paths.

Big believer in freedom of speech and I don't like censorship, but I guess you have to ask yourself, are you really trying to help those in need here, or is there some other agenda or axe to grind? If it is the later, then I don't think its helping the many people that are here with pending PC dx, pending tests and biopsies, pondering complicated and difficult treatment paths, dealing with their fears and uncertanities, and having to integrate all of this with their spouses/partners and their families members, and perhaps employers too. That's a lot on anyone's plate at one time, don't you think?

Since I had my first major medical event involving a life saving operation and 10 days in ICU unit, I can only think of one dr that has ever worked on me or with me that I "fired". He was a neurologist here in Greenville perhaps 10 years ago or more. He was an obvious egotist, and thought he was some kind of big rodeo star in his private life. He acted like a vain game show host. On the morning of a scheduled spinal tap, while on the table prepped, I had enough, and aborted the procedure and severed it with that man. My next neurologist was older, wiser, patient, and had great bed side manner, and we got along well. But that's only one bad dr for me since 1981.

With your attitude, I bet the medical people tune you out as soon as you show up. Do you even consider yourself a compliant patient? Do you follow sound medical advice, or do they write you off "as chosen not to follow medical advice?"

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/1/2009 7:40 AM (GMT -7)   
p.s. I don't think you need to leave. Information is needed in our quests here. I read all sources, even that way outside the box.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/1/2009 11:54 AM (GMT -7)   
Hi Sleepytime,
Welcome to HealingWell. I am sorry if anyone has made you feel that you need to be questioning what you have done so far. Personally, I believe you have made great decisions. I am a 3B brother of yours though you doubled my PSA of 20. You are also my brother in faith and you will have my prayers for you and your family. I have read some interesting studies that are showing that even with a G9 and PSA of 40, surgical removal of the disease prostate is life extending. Your undetectable PSA, which by the way is in nanograms per millileter (ng/Ml), is cooperating nicely. 5-10 years is a good starting point, and bucking the system and chatting here with me in 15 years is most welcome. May peace be with you!

And welcome to the best site on the web for compassionate care and support.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/1/2009 1:44 PM (GMT -7)   
Tony, perhaps we should all plan a 10 or 15 year reunion somewhere centrally located, and have a real reason to celebrate. Although I would love to meet many here long before then. Might give us all something to look forward to.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Sleepytime
New Member


Date Joined Jan 2009
Total Posts : 12
   Posted 2/1/2009 2:13 PM (GMT -7)   
Hey zufus - all your points are well taken. But in my case, my urological oncologist did walk me through countless different scenarios. For me I felt that surgery offered me the best chance of cure (though very, very low) and allowed me greater flexibility for followup treatment later. Initially, we discussed starting hormone therapy AND radiation two months after surgery, but my oncologist has now asked me to wait on the radiation until we could discuss it further at our next appointment. He has informed me of the most recent studies and anecdotal evidence, which don't necessarily reflect standard protocols, i.e., multiple concurrent therapies versus mono therapy, changes in diet, exercise, and stress reduction. Furthermore, I know for a fact that doing the surgery did not line his pocket.

As to being informed about all the implications of prostate cancer and the associated therapies, it's impossible to communicate within a forum all the information that a doctor bestows, but I feel that my oncologist has done a very good job of informing me. I have only had two surprises since the surgery. First, I have been dealing with incontinence and adult diapers for 14 years because of my neurological issues. Imagine my surprise as my daytime incontinence has reduced to minimal stress incontinence. The doctor says it happens occasionally because the bladder is forced to retrain. This was a good surprise. Second, I did not understand that with non-nerve sparing surgery Viagra would no longer work. That was not a good surprise.

Because of all of my neurological issues I have seen countless doctors that are clueless. But I have also had the privilege of being under the care of several who were truly world class. Being under the care of some great doctors taught my wife and I how to be pro-active in our health care, which we believe has paid off in regards to my prostate cancer treatment.

TC-LasVegas - thanks for the apology, but it is unnecessary. If I was concerned with reactions I would have just kept reading and not bothered posting. Thanks for the encouragement, and yes... let's keep chatting for the next 15+ years! God bless.
Age 54 - 6'2" 200lbs
Overall Heath Condition - Good

PSA monitored every 3-6 months starting 04/01/04
Important readings and actions:
10/18/04 - PSA 03.48
05/24/06 - PSA 04.92 - 08 sample biopsy: negative
05/10/07 - PSA 16.84 - 14 sample biopsy: negative
09/02/08 - PSA 26.54 - 16 sample biopsy: positive - GS 4+3=7 - Stage T2b
11/11/08 - PSA 37.95
11/17/08 - PSA 40.98 - (doubling time less than 8 weeks)
11/21/08 - non-nerve sparing Laparoscopic radical prostatectomy

Pathology GS 4+5=9 - Stage T3b N0 MX - bilateral lobes - perineural and seminal vesicle invasion - surgical margins: negative - largest tumor 2.1 CM

Catheter in for four weeks - only minor stress incontinence after 6 weeks

01/19/09 - 1st post-op PSA: less then 0.1
01/30/09 - started hormone therapy


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/1/2009 2:24 PM (GMT -7)   
Sleepytime, the pro-active part on your behalf can never be underestimated. Being passive in treatment is not a good plan, even if you are passive by nature like I am. With my wife being a nurse, she knows a lot about patient rights and patient advocy issues. On my medical issues, we work as a team. Glad you and your wife feel that way.

David
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 2/1/2009 4:55 PM (GMT -7)   

Sleepytime - welcome to HW and I am thankful you have found a better doctor and more time (hopefully much more). 

Purgatory - I like the idea of a 10 or 15 year reunion.  Let's plan it.

Tim


Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins
PSA Jan/09 .03


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25353
   Posted 2/1/2009 5:39 PM (GMT -7)   
Tim, me too, At first it was a fanciful thought, but then, why not. People get together for long ago highschool reunions, for military reunions, etc. We would all have a real reason to meet up, because it meant we are brothers in the battle against PC, and that we survived. Hope others will feel the same way. Best to you.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 

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