How soon for sex?

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geetarguy
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/2/2009 10:25 AM (GMT -6)   
Hi guys. Had my prostate removed by laproscopic surgery 3 weeks ago. How soon can one attempt an orgasm after surgery? I'm a bit anxious to try to get back in the game! But can I cause damage, or impair my healing by trying too soon? Thanks!

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/2/2009 10:45 AM (GMT -6)   
First, Welcome to HW. I hope you will share your Journey with us, maybe in a signature with the relevant details?

AS to when to try, the standard answer is "What did your Dr. tell you? tongue In my case, I tried and accomplished an orgasm at the 4 week mark, and was cleared to resume full intercourse at 6 weeks. It varies by doctor and patient here. Some did a few days after catheter removal, some waited 8 weeks or more.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


geetarguy
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/2/2009 11:00 AM (GMT -6)   
Thanks James. I'll update my signature. When i saw my Dr. for catheter removal on Friday he was busy, and when I asked about sex, he just smiled and said I should concentrate on healing, pain management, and continence, but I thought that one could try to get started as soon as 2 weeks post surgery and that some started cialis/viagra that soon? I'm not sure I want to wait another 4 weeks before attempting anything (obviously, I have too much time on my hands!) But on the other hand, I don't want to take any chances with causing damage or otherwise interfering with healing.
Dx. August '07 at age 51.
Gleason 7.
Lapro sugery Jan 14/08.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 2/2/2009 11:04 AM (GMT -6)   
hello and welcome geet,

my, aren't we an anxious one. lol. sounds like you are doing good so far, and my normal response to your question, is to listen to what you doctor says. your body has been through a lot of shock and awe. the fact that your interest is back so soon is encouraging i think. hope you enjoy being here, and there are many that will help you along your path to recovery. my best to you.

david in sc
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/2/2009 12:15 PM (GMT -6)   
geetarguy,
Welcome to HealingWell. You'll find a bunch of great guys and gals here that can help a great deal. It looks like we some things in common ~ I was Gleason 4+3=7, I had robotic LRP, and I own 25 guitars. Been playin' since I was a young boy. We can chat about that later...

It's pretty soon after to try I/C. But I think everyone is different. James C is on the money, ask your doctors. Unfortunately for me, I have had a more advanced case so the additional treatments have left me pretty much impotent. But I would guess that your days but in business are coming soon. Stay positive and stay with us. Again welcome to a great site for prostate cancer support.

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


geetarguy
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/2/2009 12:20 PM (GMT -6)   
Thanks guys. I guess it's a bit silly to be worrying about this so soon, but I'm anxious to get back to as regular a life as possible. I have found that my interests in many areas have dropped (including guitar, but I only have 6!) so i'm trying to get back and forcing myself to do some things in the hopes of kickstarting my life. But I guess I have to be more patient and let nature take it's course. I was always pretty ummm "active" before, hence my question about when I can start up again. But maybe I should stick to guitar for a while!
Dx. August '07 at age 51.
Gleason 7.
Lapro sugery Jan 14/08.


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3236
   Posted 2/2/2009 12:28 PM (GMT -6)   
My we sure have a lot of guitar players on this site. Perhaps we should do a study. Perhaps playing guitar leads to pca. Everything else does for petes sake. No offence pete. Hope all my brothers are doing well. If you happen to be in portland oregon this weekend -feb 6 and 7 come check out my band at jubitz ponderosa. We are haywired and we will be coming soon to a honky tonk near you.

dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 2/2/2009 4:14 PM (GMT -6)   
Intercourse and orgasm are two completely different things - as if that needs to be stated! An orgasm in itself is most likely perfectly safe. I had an orgasm two weeks out. Nothing much happens in an orgasm to cause a problem - a few slightly contracting muscles. Your urethra goes through more than that with urination!

The reason for intercourse caution is because of the physical exertion. Think of doing it missionary position ...Ouch. You could really hurt yourself and the strain is considerable. Even any other easier position gets a bit risky if you get thrusting etc. (that is if you would ever get lucky enough to thrust with anything in the first place!)

So, just as lifting anything heavy is out of the question, so is real intercourse. NOW - M*sturbation, BJ etc are NOT intercourse and as long as you lie there quietly, the likely hood of anything happening is remote to say the least. And to that end...the likelyhood of ANYTHING happening is remote. The first few orgasms are usually disappointing. They might even hurt a bit, feel weird and not even feel like anything at all.

Call your Dr. and double check if orgasm is out, or just sex. My Doc told me that things were pretty well stitched up down there and if I felt like an orgasm, that was a good sign and have some fun.

You learn that specifics are rare in this field.

Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
1/06 PSA 3.15
1/07 PSA 4.6 (Biopsy 3/07 just suspicious)
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
-totally contained to prostate,
-10% involvement in L & R Mid lobes
PSA 0 at nine months.
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - Took 100mg viagra every night. for several months
Totally usable erections at 10 weeks, which disappeared over the course of a month or two.
ED bounce is what they call it. Now, at one year, ED is fine with viagra.


Dandapani
Regular Member


Date Joined Jan 2009
Total Posts : 62
   Posted 2/2/2009 7:58 PM (GMT -6)   
Man, here I am 7 weeks past surgey and with a dead stick. LOL! A leaky one at that! :)
Dan

PC diagnosis @ 53 YO
PSA: 3.4 - 3.7 for preceeding 10 years, new GP advised Urologist visit

09/18/09 12 plug biopsy
09/29/09 PC diagnosis, 1 of 12 plugs, 5% cancer, Gleason 3+3 (6), left side plug w/cancer
12/17/09 da Vinci robotic radical prostatectomy, lab confirmed biopsy, 5%, PIN rest of prostrate, negative margins
12/29/09 catheter removed

current status: 3-4 pads/diapers a day, dry overnight, however; total ED


geetarguy
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/4/2009 3:47 PM (GMT -6)   
Well, apparently an erection is out of the question (try as I might). Orgasm is another matter, though as Paul said, it was kinda uncomfortable, felt a little weird, and seemed to leave me a little inflamed after, as my urine flow was restricted till the next day. Not sure it was worth the trouble, frankly. I think I'll wait a while longer before trying again. I had frankly thought I may have caused myself some damage there for a while because I was rather achy down there after and my urine wasn't flowing as well.

I'm at 3 weeks today. Still not very active. Not much energy, but I'm not sleeping really well either. Whenever i try to go for a walk or do anything around the house I get some pain at the surgical sites and discomfort and have to take it easy for a while afterwards. I really thought I'd be feeling better by now. I must try to be more patient, but when it comes to healing, I have little patience.
Dx. August '07 at age 51.
Gleason 7.
Lapro sugery Jan 14/08.


sandstorm
Regular Member


Date Joined Dec 2008
Total Posts : 194
   Posted 2/4/2009 4:55 PM (GMT -6)   
Welcome geetarguy,

I',m 26 days post-op myself, so we are close in time. I too deeply desire my wonderful wife again. But alas, Mr. Happy is still asleep and just won't cooperate. I even tried the vitamin V on Superbowl Sunday but no luck. However the last two nights I have gotten up during the night to empty the bladder and discovered that I have a definite elongation of the appendage. I woke up the wife just to confirm what I found and there was a slight firmness and added length but nothing usable. I'm beginning to feel like there is hope for the future and plan to get serious about it at the next doctor appointment. I bet things will get better for you too in the not to distant future. Good luck to you.
Age at DX 57
5-18-07 PSA 7.7
5-06-08 PSA 4.6  8% free psa, but stable
10-23-08 PSA 5.65 4% free psa
11-04-08 biopsy
11-11-08 2 of 12 cores positive
Gleason 3+3  6  stage t1c / post-op 3+4  7  stage t2c
CT and Bone scan negative
Da Vinci RRP 01-09-09
Catheter removed 1-15-09
Pathology Report says it's gone!
First Post-op PSA due 2-17-09


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 2/4/2009 5:25 PM (GMT -6)   
Geetarguy, I asked that same question to my doctor about two weeks post op. He said no sex for six weeks as it might cause a hernia. However, he did say that ********** or oral would be okay.
Age 50
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
ED, need a little help from Levitra
First post op PSA 11/11/08, 0.00


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 2/4/2009 6:48 PM (GMT -6)   
geetarguy, not being judgmental, but you do realize that your body just went through a major surgery? I value the imporatance of sex to a guy, trust me. But you only had surgery 3 weeks ago. You need to be concentrating on healing, inside and out, and getting use to changes from the surgery, and let everything heal up properly. You talk about not sleeping well, being sore, etc, these are all tell tale signs that your body is saying, give me time to heal. Just my take, but welcome and I hope you feel better soon.

david in sc
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Tobmeister
Regular Member


Date Joined Jan 2009
Total Posts : 41
   Posted 2/5/2009 1:10 AM (GMT -6)   
G - My doctor said it was very important for me to start Cialis and vacuum device as soon as I had catheter removed. Not sex right away but just to get the nerves working and blood flowing for long term benefits. Of course I had only 1 bundle of nerves spared so that may be the difference. But I would ask about the Cialis issue rather than waiting.
Tom, age 51
Diagnosed 11/12/2008
PSA 2006 - 2.8, 2007 3.06, 2008 4.6 (remember the rate of increase is as important as the level), PSA free 8.7%
Family history - brother and uncle (remember family history is very important)
Gleason score 7 (4+3); 6 out of 19 cores sampled positive for cancer; perineural invasion present
Bone scan and CT scan both negative
Prostate mildly enlarged, DRE negative
DaVinci radical prostatectomy 12/30/2008 - Duke Medical Center - left side nerves spared
Catheter removed 1/15/09 - no pain!

Post operative results:
Pathologic stage - T3aN0Mx
Post surgery biopsy - Bladder neck margin negative, lymph nodes negative, specimen confined, extracapsular extension positive, perineural invasion positive, seminal vesicle invasion negative, all margins negative, Gleason 3 + 3 = 6.

No incontinence problem within 1-2 weeks after catheter removal
1st post op PSA scheduled for 4/16/09

"Pick a good doctor and say your prayers"


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 2/11/2009 1:45 PM (GMT -6)   
Getaguy, Tony, Tobe, and all,
I sure do appreciate you all being candid about your progress or lack thereof and the time frames involved so far. As you can see I am traveling in your wakes -- just one week out from surgery.
I have only so far seen some nocturnal stirrings of the old P. I have been sometimes using some of my leftover FloxMax (4mg) and that does seem to help as I can see changes within the hour after taking. Of course with the Cath still in I don't think I want anything raging since a semi-hardy-softy is a little uncomfortable as it is.

A question about Tobe's remark that his Doc recommended Cialis + Pump. I have seen the articles on Viagra therapy (1 a day for 9 months after ) but have not seen same for Cialis. Perhaps ANY that increase blood flow will help, yes? ( OK i see some articles about Cialis studies with RP patients).

I ask because I want to discuss with my Doc tomorrow and get ducks lined up for post-catheter times.
(also anyone using Medco?? Any problems getting at least some minimum amount of V per month thru them?)

jim
Age 58, 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 Positive of 12 cores 5%, Gleason 3+3 - Sona showed 140+ ml prostate size.
Prostate way too big for any Rad treatment or even trying to shrink.
open RP surgery 02/03/9, Nerve sparing, 2 days hospital, cath due out on 2/19/9
Post-surgery Pathlogy Report -- none yet -- Doc said all went well. Visit 2/12/9.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/11/2009 1:57 PM (GMT -6)   
JimbStars,
The type or brand of ED pills is a physician and or patients choice. Some will tend to prescribe a certain one. All three of the big ones- Viagra, Levitra, and Cialis should work fine for penile and tissue rehab in most cases, it's just the mechanism that is different. Since most insurance companies won't pay for ED pills, or will for just a few, the real choice for most of us is alldaychemist and their generic versions. Generic Viagra (Sildenafil Citrate 100mg) and Levitra (Vardenafil) can come into the USA, wheras Cialis (Tadalafil) can't, so that may have some bearing on what your doctor prescribes for you or what you ask for. Viagra is short lasting, while the other two tend to last for up to 36 hours or longer. The effective of the allday generics are the same or even better in some few cases than the original name brands, so it is reported by users here. I use Medco, and my insurance plan does not cover any ED drugs for post-prostate cancer use. Now if you are organically impotent from other more 'natural' reasons, they will cover it.. Go figure--just one of the unbalanced areas of care for us guys... Between my GP and the Urologist I manage to bum quite a few of the brand name office samples and supplement with alldaychemist.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months

Post Edited (James C.) : 2/11/2009 12:01:19 PM (GMT-7)


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 2/11/2009 3:17 PM (GMT -6)   

Actually for Medco it will depend on your health plan as to whether or not it's covered. My plan does cover all the ED drugs as well as the Trimix so Medco pays for the prescriptions. There is a monthly limit of 5 doses and the co-pay is usually $60.00 a month.

So I have also started to use alldaychemist for the Levitra. And the drugs work just as well as those from CVS, etc.


Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


califlostnspace
Regular Member


Date Joined Jan 2009
Total Posts : 51
   Posted 2/11/2009 9:21 PM (GMT -6)   
I had a catheter in for 15 days.  three days after the catheter pull I experienced my first orgasm, it was not that enjoyable or comfortable.  I waited another week or two to try again and there was no discomfort.  I can have orgasms although Mr. Happy does not work at all still, even with Viagra. 
6'3"
205 lbs.
age at diagnosis:  51
diagnosed summer of 08
no symptoms
PSA  4.4
bone scan was normal
Radical Robotic Prostatectomy done with Da Vinci at UCSF on 12/23/08 by Dr. Peter Carroll
catheter removed 1/7/09
my local urologist referred me to a urologist at UCSF for the Da Vanci operation mainly because I had two
mesh panels in lower abdomen due to 2 hernia repairs 12 and 16 years ago
3 weeks post op I get a path report:   
 Your pathology results looked great.  Your final tumor grade was a Gleason 3+3, which was the same as your biospy grade.  The tumor did not extend outside of the prostate and all surgical resecetion margins were negative (meaning no tumor left behind).  The tumor did not involve the seminal vesicles.
Basically, the pathology is about as good as we could have hoped for.


down not out
Regular Member


Date Joined Jan 2009
Total Posts : 25
   Posted 2/16/2009 7:16 PM (GMT -6)   
Regarding the big "O" after surgery; I was told to wait 6 weeks. I was just too impatient to see if it still worked, it was under 4 weeks. Different experiance without an erection, very strange almost painfull sensation. After 2 or 3 times the pain was not an issue. God I feel like I'm 12 again trying to fiqure it all out. lol
Regarding ED meds, I am on my first month with Cialis. If you google "Cialis free trial" you can print out a voucher for a free 30 day supply. Bring it along with your script to the pharmacy.
Good luck to all.

ljm2246
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/25/2009 12:50 PM (GMT -6)   

Hi everyone ... first, I don't want to freak any of you out by acknowleging that I'm a 'female' and 44... but I can absolutely talk the language of prostate cancer - da vinci machine surgery - and post-prostate removal activities and frustrations.

My 54 yr. old, musician, and significant other of 6 years had to have his prostate removed 1/8/08.  We did a LOT of research as you likely all can concur this decision is NOT an easy one.  We decided that the da vinci was the best route to go as we were assured it was the least invasive of the surgeries for total removal of the prostate.  Prior to his surgery we noticed his frequent urination, and declining erection control.  This is what led him to seek answers to why he was having these symptoms.  Before all of that we had a fantastic and healthy sex life.

We were assured that though we could expect a period of anywhere between 3-8 months before bladder control and sexual function would be potentially fully intact ... it could actually be up to 2 years post surgery before sexual function would be back.

It's now been 13 months since surgery.  His bladder control came back completely just 5 weeks post-surgery (so we're thinking YEAH sexual recovery should be just around the corner!).  Not so.  Immediately post surgery - while still in the hospital ... he was put on Cialis.  He took that faithfully for a year since.  In late Jan. 09, he met with his urologist to discuss the fact that 'nothing' was happening in the erection department.  He has done the penis pump faithfully as well, tried the rings, etc..  Urologist gave him an abundance of Cialas, Viagra and Levitra and said 'experiment and see if something works'.

Aside from the horror of reaching the point in which a specialist simply hands out meds and says basically 'hey, i have no idea, try these ...' .... it was an emotionally and mentally draining experience as well - as this is the point where it became evident that we likely are no longer on a 'progressive' recovery ... but rather ... potentially ... a permanent pitfall.

Which brings us to today ... none of the combinations or experiementations of those three pills made any difference.  He suffered side effects from the Viagra that we both agreed were definitely not worth taking them again.

He spoke with his urologist two days ago, said he was ready to try the last resort of 'injections'.  He received those meds today.  To my astonishment ... he was not told to come in to the dr. office to be injected the first time to learn what dosage is appropriate for him to begin, much less given a 'hands on' instruction on how to overcome the mental discomfort of injecting his own dick with a needle.

So, the meds came ... no instruction, no indication of dosage amount whatsoever.  Calls the dr. they're out for the day.

Now, this may seem a testimony that most don't want to hear ... but I feel it should be said.  This is a real scenario. It's an emotional and mental upheaval to say the least.  I feel his urologist is very neglegent with the medication - Prostaglandin -E1  20 MCG/ML - but now that it appears we're at this level of 'not' being able to have a normal or even any sexual life again ... it's horrible.

All that stated ... he is able to achieve orgasm and was able to achieve that (sans the fluid as removal of the prostate disallows the seminal fluid you used to have) - at about the 6 week mark, though no erection.

Thanks to any of you who read this whole thing .. I appreciate just being able to discuss it.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25382
   Posted 2/25/2009 12:59 PM (GMT -6)   
hello and welcome ljm, glad you found us here, and you are most welcome. We feel that we are the best patient to patient PC source on the net. Thanks for sharing your first post with us, hope there will be many more to come.

there really isnt any connection between him doing well and fast on the incontinence department and his current state of ED. There are many men here experienced with all the drugs and methods working with Ed in various stages. It can really vary from man to man, from treatment protocal to treatment protacal. There is no one easy answer, but I am sure you can get some good first hand experiences here with the different meds and methods.

it would help to know more of the extent of his PC, perhaps you could put some of his stats at the bottom of your posts as you see on others. it would help us to understand what he started with, his surgery and post surgery, past and current psa, his gleason score(s) etc. just helps us help you a little bit easier.

hope we can be a big help and source of support to you and your guy.

david in sc
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Right nerves saved, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9 .05
 
 


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 2/25/2009 1:35 PM (GMT -6)   

ljim

It would really help to know if the drug was Caverject, Edex or Trimix. It sounds like he was given Caverject, which can give you this really awlful burning pain. I have tried all three of the above and now only use the Trimix.

I can state that all three of the Injection Drugs worked great for me. I had four hour erections all over the place until I discovered the right drug dose.


Age 60
PSA 2007 4.1
PSA 2008 10.0
Diagnosed April 2008
Biopsy: 6 of 12 cores positive
Gleason 4 + 5 = 9
CT and Bone Scan negative
Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared
Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th
pT2c
lymph nodes negative
PSA Sept 28, 2008 0.00
PSA Jan 22, 2009 0.00


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 2/25/2009 1:39 PM (GMT -6)   
ljm2246, I hope you will give the injections a try. My situation is very similar to your S.O. I am over 3 years post open RP and have no natural erections but I use trimix with very good results. Many others on this site use trimix or bimix and are happy with the results too. Natural erections are what we hope for but trimix has kept my wife and I's love life very fulfilling. One bit of advice.... start with low doses and work up to the dose that works for you. I started too high and the results were too hard for too long (nearly 3 hours) and quite painful. Good luck on good results and remember if you don't have immediate success keep trying. That's the fun part. Allan
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/25/2009 1:49 PM (GMT -6)   
ljm, Welcome to HW. Pardon me for being a little confused. You have the med. for injection Prostaglandin 20mcg strength. This I understand. I can't tell if you have tried it yet or not? If you haven't tried it yet, we/I can give some pointers for the initial attempts, if that is what you are asking? The fact that your doctor has dumped this in his lap without any education or support ir bad and not anything that a patient could or would expect. He definitly is wrong on this. That being the case, it is something you/he will have to take up. In the meantime, we can help you with education and tips for using the injection drugs and try to get you two off on the right foot using it. It's a mater of trial and error beginnning, and you will still have some failures along the way, but there's a ton of sources, data, and experience here if and when you two are ready to try it. It may be that this drug will not be the one to work, but finding the right one can be managed. If you wish to investigate the ed injections in detail, I got lots of links for you to read and learn, or just ask what you need from us. There's a couple dozen here that has been down that same road and should be more than willing to help as we can.

As an aside, I have been in the same situation as far as failure of ed recovery as he has, just 4 months longer. Been thru the pumps, pills, and the injections, I have had no recovery of function using the pump or pills, but do get good results with the Trimix. I personally am not giving up hope until the 2 or 2 1/2 years mark. Lets us know how we can help.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/25/2009 2:01 PM (GMT -6)   
I started ljm2246 her own thread, so we can start posting our comments on that one, and not hijack this one, Ok? turn
You can click here to go to it:
www.healingwell.com/community/default.aspx?f=35&m=1397105
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months

Post Edited (James C.) : 2/25/2009 1:31:30 PM (GMT-7)

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