Todd is coming unwound

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3218
   Posted 2/2/2009 5:16 PM (GMT -6)   
Hey everybody. I am losing my mind. I need a valuim or a bong hit.lol Every single ache and pain and sensation I have I am attributing to going off casodex and the Pca coming back. I have an apointment with the doc on feb 23. Three more weeks of this and I will be certifiable. 18 more days until my next P.S.A. That bong hit is sounding better and better. Funny thing is I dont smoke pot. ( yet ) My brain tells me that there is no way if it was coming back that it would happen basically overnight but my nerves are really messing with me. Thanks for letting me get it off my chest. Now I expect everyone one this site to chime in and tell me I am a hypocondriac sp.? and to quit being a moron. Its okay I can take it. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 2/2/2009 5:28 PM (GMT -6)   
I know it is easier said than done, but breathe Todd. ;) Your scans came back negative just over a month ago right?! Your last PSA was 1.49 right? So, put down the bong and pick up a glass of pomegranate juice :) Stay positive brother, this disease will drive you crazy otherwise. I'm sure your outdoor activities have absolutely nothing to do with you being in pain. I wouldn't be able to move if I did everything you did in an afternoon. Hang in there! :)
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 2/2/2009 5:41 PM (GMT -6)   
Call your doc and get some Xanax - it's much better than the other two meds you listed for this condition... Really - get some Xanax. It'll help tremendously (it's for treating anxiety, which is what you have).

cheers & beers,
Chris
Diagnosed on 9/23/2008, age 47
Gleason 6, T1c
da Vinci LRP performed 1/22/2009 at Moffitt Cancer Center
catheter due out on 2/4/2009


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/2/2009 5:42 PM (GMT -6)   
Todd, you just keep getting off your chest. That's one of the bennies for being here! You are not going crazy, you are not imagining things. I don't know anything about the casodex, so not sure how that factors in. The waiting 3 more weeks alone will make you feel bonkers. I am one week to the day of knowing my first post surgery psa, and I am 99.99% sure it will be fine, but it gets under my skin just waiting, I want to know! Hmn, smoking pot, that's probably better as a don't ask don't tell kind of thing. Valium, hmn, you could ask for tranzene, about 8 bucks wal-mart generic, the 7.5 mg once a day is good for keeping from feeling on edge all the time if you are looking for a medicinal cure.
Do what you do best, brother, just keep hanging in there and being the inspiration you here for the rest of us. Big job, sure, but you earned it. And on your last point, you are in no way a moron, lol, hope you were kidding there. We are here for you, pile it on and camp here a while.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/2/2009 5:58 PM (GMT -6)   
Todd,
Chayna said it best. And if your nerves are bothering you, you have to let the doctor know. If you are feeling any pain, let him know that as well. Take it sensibly. You have to get to that day to get a verifyable test. Hang in there buddy...Call me...

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 2/2/2009 6:05 PM (GMT -6)   
I know how you feel Todd. I'll have a flare up of arthritis every know and again and every time it crosses my mind "what's causing that pain?" I've good PSA results but still that bloody question is there. Just this last Thursday a knuckle on my left hand as well as my right ankle went right off............so bad it actually caused me to cancel my golf comp game on Saturday, and let me tell you, nothing keeps me off the golf course. Come Monday after a few anti-inflammatorys and it's virtually gone. Following a PCa diagnosis I guess everything little twinge seems suspicious, and the tougher the battle , the more suspicious we are.
I've no doubt that your next results will be all that you want, so tough as it is, try and put it aside till then and we can all yeah with your good news.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)

Post Edited (BillyMac) : 2/2/2009 4:18:51 PM (GMT-7)


gpg
Regular Member


Date Joined Jan 2009
Total Posts : 180
   Posted 2/2/2009 6:28 PM (GMT -6)   
Hypochondriac, no. Scared, yes.

And with good reason.

Hang in there, I also think that an anti anxiety med would be a good choice, not as much fun as a bong (ask Mike Phelps)

Keep venting, but get some help with meds when you need it.

Scott
Diagnosed @ 48yo 04/07
focal, low volume tumor gleason 6
RRP 07/30/07
Persistance of PSA
IMRT 11/07-01/08
Emerg, cysto obstructed bladder 01/08
Persistance of PSA
08/08 learned Dr. left significant amount of prostate
12/08 PCA3 negative
12/08 saturation biopsy 36 cores 24 having normal prostate tissue
12/08 referred whole to med malprac attorney


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 2/2/2009 8:48 PM (GMT -6)   
Hi Todd....We all have those fears...remember the Seinfeld episode , when George went to the doctor....and he thought he had cancer? It was really funny, but that was what made it so believable....WE ALL HAVE those fears.......and most of the time over only our thoughts..... Pete just called me into the bedroom to ask me to look at his hands....He said "Look at my hands ...they look strange...What do you think that is?" I said.." Pete, put some cream on them, have a scotch, and forget about it....they look normal"! Di



...
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/2/2009 9:53 PM (GMT -6)   
Di, that Pete is so lucky to have you. What you describe with his hands episode sounds like some of the conversations I have with my wife at the end of a long day. lol. Sometimes I think my imaginiation gets the best of me. Give my best to Pete, but don't dare tell him, his hands do look weird.

David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/2/2009 10:05 PM (GMT -6)   
Todd,
I sincerely hope that you are feeling better about yourself and things in general this evening. You can plainly see, we are all in the same PC boat, just all different passengers sitting in different parts of the boat. May you mind and soul come to peace tonight.

David
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3218
   Posted 2/3/2009 2:50 PM (GMT -6)   
Thanks everyone. Sometimes I just need a little pep talk or a slap to the head to get my mind right. Most always I do okay but as ya'll said its sort of the nature of the beast to have times of stress. I wont be smokin a fat one this week. Todd

dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2009 2:55 PM (GMT -6)   
so, todd, what are you going to do with the big doobies you rolled last night?
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 2/3/2009 6:41 PM (GMT -6)   
My words of wisdom Todd. PLease know it is ok to be emotional however if it is consuming you please share this with your doctor. Also know that we love you very much and consider you a part of our family. I have a great book called A Reason for Hope I would love to send you. It is about dealing with the emotional and spiritual aspects of cancer. It is worth the read. Email an address if you would like and I will gladly send it.

love you brother

Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 2/3/2009 6:56 PM (GMT -6)   
That book magically showed up at my doorstep one day, Dale....:-)

Tony
Age 46 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 15, 2007
Geason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (January 13, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 2/3/2009 8:22 PM (GMT -6)   
OhioState::: Go Bucks!! Di
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!


AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 2/4/2009 6:46 AM (GMT -6)   
divo said...
OhioState::: Go Bucks!! Di


Now wait a sec... You're not allowed to "Go Bucks" and have hip replacement surgery in Gainesville! ;-)

Psst: What is "AUS"?

cheers, beers & yes, I'm a Gator dad!
Chris
Diagnosed on 9/23/2008, age 47
Gleason 6, T1c
da Vinci LRP performed 1/22/2009 at Moffitt Cancer Center
catheter due out on 2/4/2009


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 2/4/2009 8:13 AM (GMT -6)   
Astronerd.... haha I am originally from Columbus area.....and all my family went to OhioState....We are here in Gator land for the winter, and Pete had the hip surgery last month....Great success so far....The AUS is an artificial sphincter to help with incontinence. Lots going on here!! We keep very busy....football, hip surgery, walkers, crutches, AUS's, catheters, pads, PSA tests, grandchildren, THE WORKS!!

Todd, life has so many odd contradictions that you just have to laugh sometimes, even with black humor. It is what really helps Pete. He has a strange sense of humor, which has kept us laughing through the tears... I hope you are feeling better this morning. This is your life. This is your journey. You are the hero. Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/4/2009 8:31 AM (GMT -6)   
So now I see, Diane is a good northern woman, a dyed in the wool Buckeye. I went to high school back when dinosaurs roamed the earth in Zephyrhills and Brooksville, FL. Went to boot camp in the Navy in Orlando, FL. Went to college and got married in St. Petersburg, FL. 1st born was born at Cape Canaveral, FL, so I have some Florida in me somewhere.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 2/4/2009 8:58 PM (GMT -6)   
divo: Just poking fun. I married a Buckeye! She's from the Bay Village area.

Purgatory: We were darn near neighbors! I grew up in Plant City - just south of Zephyrhills. I also do a lot of astro camping in the Withlacoochee area (north of Z).

cheers & beers,

Chris
Diagnosed on 9/23/2008, age 47
Gleason 6, T1c
da Vinci LRP performed 1/22/2009 at Moffitt Cancer Center
catheter due out on 2/4/2009


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/4/2009 9:13 PM (GMT -6)   
Chris (Astro) - that's amazing, though I haven't lived in FL in many years, had my time there as I indicated. I know the Withacoochee River area well, lived in a little place called Riverbend, right on the river, use to fly fish it in high school and go boating all the time. Lived in Ridge Manor too, when I was in high school in Brooksville. Know Plant City well, that was the big city to us in the sticks. my wife is a native florida cracker from st. petersburg, her people were all from gainsville.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 2/4/2009 9:35 PM (GMT -6)   
St. Pete? Well, get this... When I say "astro" camping what I mean is that me and about a dozen other like minded loonies drag our travel trailers/RV/tents/whatever out once a month at New Moon, setup our telescopes and have a good time. Me and those other folks - we're members of an astronomy club. The St. Pete Astronomy Club (aka SPAC, www.stpeteastronomyclub.org).

cheers & beers,
Chris
Diagnosed on 9/23/2008, age 47
Gleason 6, T1c
da Vinci LRP performed 1/22/2009 at Moffitt Cancer Center
catheter due out on 2/4/2009

Post Edited (AstroNerd) : 2/4/2009 7:40:13 PM (GMT-7)

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, July 18, 2018 11:05 PM (GMT -6)
There are a total of 2,983,012 posts in 327,070 threads.
View Active Threads


Who's Online
This forum has 161877 registered members. Please welcome our newest member, Caramyrrh10.
378 Guest(s), 5 Registered Member(s) are currently online.  Details
PeterDisAbelard., LymeIoana, reesener, InTheShop, DannyAub