Waiting for my Zero Club Entrance Pass

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2009 9:21 AM (GMT -6)   
Just got back from my doctor's office.  They drew a single tube of blood for my first post-surgery PSA test.  I did ask the nurse, if they did the ultra sensitive testing and she said they can go to .001.
 
This doesn't happen every day.  My appt. was at 0910.  Left the house at 0902, went there, no one was in waiting room, they took me back, drew the blood, didn't need any paperwork, drove home and walked in the house at 0913.  11 minutes door to door.  trust me, i've had my share of waiting hours beyond a scheduled appt, but this was nice.
 
In Easley where I live, my urologist's office is just a sattelite office, drs. are there M-W-F only, and they are trying to build up clientile, so there is almost never a wait.
 
My followup report with my urologist on the test results is next Monday, I am confident it will be a statistical zero, but deep down inside, it's not over till it's over.
 
David in SC
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 2/3/2009 9:41 AM (GMT -6)   
Excellent David...great news that the office is so close by and a breeze...in and out...hmmm...like a drive thru...did you order any fries and a coke??
That first three month test is so filled with anxiety, so I will keep my fingers crossed as you are and you will be able to join the zero club with an undetectable by next Monday.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal-Gland 38 cc
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral (Perineural Invasion present at base) - Gleason (3+3) 6  Stage T1C
August 23 - Bone Scan - Hips, Spine and ribs marked uptake - X-Ray showed clear -Hooray
Sept 9 2nd DRE - questionable - TRUS...shadow in base - Gland now 41 cc
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (4+3) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
4 tumors in prostate - largest being 6 cm 
PSA 5 week Oct 2008 <.05
       3 month Jan 2009 .06


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 2/3/2009 9:47 AM (GMT -6)   
We'll be crossing our fingers along with you until you get the zero results back next week...
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
16 mts: ED- 50 mg Viagra 3X week, pump daily,Trimix .35ml 2X week continues
PSA's: .04 each 3 months


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 2/3/2009 9:56 AM (GMT -6)   
David-
We will be thinking of you. I hope you manage to get some sleep between now and Monday. Nothing but zeroes! All the best!
Father's Age 62 (now 63)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2009 10:00 AM (GMT -6)   
Thanks one and all, when it comes to that first zero, all you can do is hope and trust at that point. my dr/surgeon feels a high degree of confidence, but again, the test is what it is. the nurse did say, that they test the blood a min. of 2 times.

les - yeah, i was hungry, should have ordered a togo breakfast while i was there. lol.

david
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


DoingFine
Regular Member


Date Joined Sep 2008
Total Posts : 46
   Posted 2/3/2009 11:06 AM (GMT -6)   
Yes David . . . we all will be thinking of you.

Put it out of your mind for the time being!

Cheers
Rich
Age at dx: 51 Age now: 52
Great health: Riding bike 200+ miles weekly; no symptoms
First PSA: 4.7 March 2008 Second PSA: 4.97 June 2008
Biopsy June 2008 Positive 5 of 12 cores T1c, Gleason 3+3, Bone scan: 7 July negative
RRP surgery 3 Sept 2008 at the Mayo Clinic: Rochester, MN, All clear
Catheter out 22 Sept 8:30 AM, catheter back in at 11:30, Catheter out 30 Sept (this time for good!)
Total continence, no erectile difficulties from day one (Cialis 10mg daily)
Back on bike 15 Oct. (42 days . . . with doc's approval)
Dec. 2 2008 psa Undetectable!


BillSD
Regular Member


Date Joined Sep 2008
Total Posts : 143
   Posted 2/3/2009 11:15 AM (GMT -6)   

David,

All the best to you...you deserve it! I've followed all the twists and turns in your experience, and you are due for some good news. I'll keep you in my thoughts and prayers.

Bill in San Diego


Age 60 (59 when Dx) PSA 4.4
Biopsy 5/15/08 Gleason (3+3=6)
Bone scan and pelvic CT: clear
HT - 2 mo Casodex, 3 mo Trelstar
RRP Surgery 9/15/08 La Mesa California
Geason 3+4=7, Stage pT2c pN0 MX
Seminal vesicals, perineural margin, 18 lymph nodes, bladder neck: all carcinoma free
Perineural invasion & Distal Margin: Carcinoma present
IMRT adjuvant radiation (35 Treatments) End 1/27/09
PSA (10/13/08): <0.1
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2009 2:28 PM (GMT -6)   
Thank you everyone else for the encouragement. I wish the same for every man in here and for the sake of their familes too. We need as many victories as we can muster.

David
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


AstroNerd
Regular Member


Date Joined Sep 2008
Total Posts : 56
   Posted 2/3/2009 2:59 PM (GMT -6)   
Here's hoping you're a big fat ZERO!

cheers & beers,
Chris
Diagnosed on 9/23/2008, age 47
Gleason 6, T1c
da Vinci LRP performed 1/22/2009 at Moffitt Cancer Center
catheter due out on 2/4/2009


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4183
   Posted 2/3/2009 3:12 PM (GMT -6)   

Hi David:

Like most of your other bro's here, I have followed your journey over the past few months...especially the hell you went thru with the catheter!  So..if anyone deserves a zero it's you and I'll say a little prayer for that result!!!

Tudpock


Age 62
Gleason 4 +3 = 7
T1C
PSA 4.2
2 of 16 cores cancerous
27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 1/31/09.


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 759
   Posted 2/3/2009 3:29 PM (GMT -6)   
If I were that office, on Monday you would get:

*A less than 0.001 report;
*A bronzed catheter mounted on a walnut plaque.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 759
   Posted 2/3/2009 3:40 PM (GMT -6)   
One more thing, the results will almost certainly be ready before Monday. You might call them later this week.
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)


beachbum50
Regular Member


Date Joined Sep 2007
Total Posts : 292
   Posted 2/3/2009 3:41 PM (GMT -6)   

 

David, I'm looking forward to your induction into the PSA Zero club, may it be a LIFETIME membership!

Beachbum turn


Beachbum
 
PSA 10 June 2007
Biopsy July 2, 15 of 16 samples positive
T2C
3+3=6
prostate weighed 40 grams
Di Vinci 10/09/07, four hours on table, 3 in recovery
Total time in Hospital: 29 hours
Record for Dr. Lance, 70% of prostate had cancer, but NO spread, clean margins,Clean nodes,
First PSA at 5 weeks, UNDETECTABLE!
Catheter out at seven days, dry from hour one!
Second PSA 19 weeks post op, UNDETECTABLE 2/11/2008
Third PSA 5/12/08, six months post op, UNDETECTABLE
Fourth PSA 8/21/08, nine months post op, UNDETECTABLE
One Year visit in December 2008, UNDETECTABLE, now go visit every six months!
The Lord has truly Blessed me.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2009 4:12 PM (GMT -6)   
tudpock, thanks for the thought, my catheter/spasm hell was just one of many hells we fighters of PC endure, so i dont feel singled out, my situation sucked for me, but i have read of other torments here that would be just as bad. lol.

djbear - i will pass on the bronze catheter, i only this past weekend through out all my catheter gear, took me two weeks to convince myself i wouldnt be needing that junk anymore. when i was through with my radiation 9 years ago for my previous cancers, they wanted to know if i wanted to keep the custom made titantium mask they made for my face, i thought they were nuts and told them why would i want to be reminded of that every day. lol. yes, i could call and but and get an early answer on the psa, but i dont mind waiting till i sit with my doc next monday morning. as my ex boss loves to say, it is what it is.

thanks beachbum, i certainly hope that is true for all of us in the trenches
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 2/3/2009 4:39 PM (GMT -6)   

Hi, David

Here's to hoping for a big, fat goose egg in the nest on Monday.

Bob

 


 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci scheduled for Jan. 19, 2009.Dr. Scott Montgomery, KC Urology,
Shawnee Mission Med. Center. Kansas


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 2/3/2009 5:12 PM (GMT -6)   
Dear David, Here's hoping for the good news of zero!! You surely deserve it....Your journey and positive words has been a strong support for all of us! Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Forging ahead to health!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2009 5:27 PM (GMT -6)   
ralph - thanks, thats all i am asking for right now

diane - i dont know about the deserving part, but its my hope and desire, then, perhaps, i can finally feel like i am on the other side of my hopefully long term recovery. my journey actually started with the first biopsy in 9/7, then the dx in 9/8, then of course, the surgery on 11/8 and the corrective surgery on 1/9. Told my wife, I am tired of thinking of myself as being a patient. give the old man of your a big hug from me, manly one of course, and for you too
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 2/3/2009 6:33 PM (GMT -6)   
Ok guys as president of the club I had to check to see if we could make room for one more. After much review YES YES YES we can take you. So David you better get that darn Zero, I need a vice president and a secretary for the club anyway.
Peace to you brother and know my thoughts are with you.

peace and love
Dale
My PSA at diagnosis was 16.3
age 46 (current)
My gleason score from prostate was 4+5=9 and from the lymph nodes was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .06
Testosterone keeps rising, the current number is 156, up from 57 in May
cancer in 4 of 6 cores
92%
80%
37%
28%
 


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 2/3/2009 6:39 PM (GMT -6)   
All the very best David - my husband and I have all fingers and toes crossed that you will be a life member of the zero club. It is a freaky time waiting for results, especially the first ones - hope the time passes quickly for you,  and that you can distract yourself until you get the news. Have a happy day and thanks for all your great input. Kind regards, Lana & CJ.
Creed_three
Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x (5%) core of 12 positive at biopsy. 11 cores negative. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable PSA since Surgery (< 0.1) specifically,  
June 2007: 0.01; Oct 2007: 0.02; April 2008: 0.02: October 2008: 0.03: November, 2008 (repeat PSA with instructions to lab to calibrate carefully) = 0.02.
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2009 6:47 PM (GMT -6)   
Dale, thanks for the kind words, I can feel your love all the way to South Carolina

Lana & CJ - thanks for the kind words. Believe or not folks, but I am anxious, but not worried per say, I know anything can happen, but I really do have faith in the surgeon/dr, and the post surgery pathology findings. Logic tells me that I am fine, but then, I've been fooled by cancer before. I have enough going on this week to keep me plenty busy, that will help.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


Tobmeister
Regular Member


Date Joined Jan 2009
Total Posts : 41
   Posted 2/3/2009 7:37 PM (GMT -6)   
David, may God be with you Monday.
Tom, age 51
Diagnosed 11/12/2008
PSA 2006 - 2.8, 2007 3.06, 2008 4.6 (remember the rate of increase is as important as the level), PSA free 8.7%
Family history - brother and uncle (remember family history is very important)
Gleason score 7 (4+3); 6 out of 19 cores sampled positive for cancer; perineural invasion present
Bone scan and CT scan both negative
Prostate mildly enlarged, DRE negative
DaVinci radical prostatectomy 12/30/2008 - Duke Medical Center - left side nerves spared
Catheter removed 1/15/09 - no pain!

Post operative results:
Pathologic stage - T3aN0Mx
Post surgery biopsy - Bladder neck margin negative, lymph nodes negative, specimen confined, extracapsular extension positive, perineural invasion positive, seminal vesicle invasion negative, all margins negative, Gleason 3 + 3 = 6.

No incontinence problem within 1-2 weeks after catheter removal
1st post op PSA scheduled for 4/16/09

"Pick a good doctor and say your prayers"


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/3/2009 7:55 PM (GMT -6)   
thank you tom
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


vs1vs2
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 2/3/2009 10:55 PM (GMT -6)   
Purgatory-I cast my vote as yes for your membership. BTW, the test are usually available within a day or two. I have arranged to call for the results before the appointment. Try to rest until then.
Tim
Age at Dx:48, currently 49
PSA May 08 2.96
referred to uro
PSA June 08 3.44
biopsy 7/25/08-29 core samples
path 7/31/08-8 of 29 PCa/10% involved L/R base and mid
high grade PIN in apex/seminal vesicles clear stage GS 3/3=6 pT2a
10/7/08 robotic at Cleveland Clinic-Dr. Kaouk
10/10/08 path GS 3/3=6 pT2c
cancer contained/neg margins
PSA Jan/09 .03


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 2/4/2009 8:27 AM (GMT -6)   
Tim, I could do that, but I would rather just wait till Monday, with my list of questions for my dr. If it is good as expected, I can wait. If by the remote chance its bad, would rather not ruin the rest of my week and weekend ahead, and I would still need to talk to my dr anyway.
Age 56, 56 at DX, PSA 7/7 5.8, 7/8 12.3
3rd Biopsy 9/8 Positive 7 of 7 cores pos, 40-90%, Gleason 7
Open RP surgery 11/14/8, Non-nerve sparing, 4 days hospital, staples out 11/24/8, 5th cath out on 1/19/9
Post-surgery Pathlogy Report:Gleason 3+4=7, pT2c, 42 grm, tumor 20%, Contained in capsular, clear margins, clear lymph nodes 
First PSA Post Surgery   2/9/9
 
 


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 759
   Posted 2/4/2009 4:14 PM (GMT -6)   
"... I would rather just wait till Monday.."

David,

As we know from your history, you are the master of patience.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)

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